Good News Is Good News

On November 29th, I had my check up at Dana Farber, Methuen with my oncologist, Dr Mehta. After the obligatory blood draw and checking/recording of my vitals I waited to be called in.

Finally my name was called and and I followed the attendant to an examination room.  Upon leaving, I was told, "Dr Mehta will be in shortly".  I guess shortly is open to interpretation.   I was tempted to take a nap on the examination table.  However, at the half hour mark I heard steps and a light knock on the door.  Low and behold, it was Dr Mehta.  Post Covid, I could see his face again (sans mask).

After chatting and catching up, he looked at some results and asked if I had any symptoms or new 'things'.  I told him, "Other than old age pains, I'm fine."  He chuckled and said, "Let's take a look."

Stripping off my shirt and tee shirt, he began pressing the areas that were once cancer infested.  I'll tell you, he was very thorough.  Finally, he said "Everything looks good".

I have a mammogram scheduled for March so he wants to see me after those results.  He inquired on my bladder cancer and mentioned that Dr Previte has been keeping him informed.  He showed his happiness that my last cystoscopy was clear.  He looked at my file and said I was approaching the 10 year mark.  After 10 years, he will only see me annually. Time flies!

I received the results of my PSA testing today (as ordered from Dr Previte).  The results have not changed since last April's test.  My PSA is still 1.86.  Anything less than 4.0 is normal.  I'll take that good news.

Post Script: I've been scheduled for my next 3 rounds of BCG in January with an in-office cystoscopy on Leap Year Day 2024!

More to come!

Something Else To Be Thankful For

Today was cystoscopy day at Northeast Urological.  I've been somewhat worried, because Cancer sucks.

I messed up and arrived an hour earlier than scheduled.  My calendar said 1:50, but my brain said ten to one.  Oh well, better early than late.  I sat in the car and watched the rain and listened to an XM Beatles Station.  Time passed quickly (or so it seemed).

I arrived to a full waiting room.  After checking in and providing my specimen, I join those waiting to be seen.  However, it wasn't long before I heard my name being called.

I was grilled to confirm my identity while following the nurse to the 'special' room.  Everything was arranged and just waiting for me to drop trow and assume the position. 

It felt like a long time, but it was probably 10 minutes when Dr Previte arrived.  He went through his notes and recited the litany of procedures and treatments bringing me up to today's procedure.  The doctor said that the monitor was on the fritz, so I couldn't watch today.  Not that I knew what I was looking at, but it was interesting to see nonetheless.  Well not today.  The doctor said that he'd be the only one seeing what's going on (or not).  I was fine with that.

In lieu of my watching the camera being pushed around, I got a blow by blow description of what he was seeing.  I was happy to hear the words: clean, looks good, and beautiful.  He even said he looked into my verticulum and it was clean.  "That BCG works for you", he said.  

After pulling out the scope, he was thinking aloud and said, my next steps would entail my next round of BCG maintenance then another Cystoscopy.  He said the BCG will start in January-ish and the scope sometime February/March.  He wanted me to have my PSA tested again in a week.  [I've already scheduled that].

He wished me a Happy Thanksgiving and told me to pick up some paperwork on the way out (for the PSA test).

I'm elated that this treatment is working for me after an initial failure.  

More to come!

3 of 3

It was quite busy at Northeast Urological for my last dose of BCG.  I had a very early appointment and the parking lot was maxed.  I had to park way at the end of the lot.  It was a brisk partly cloudy October day, so the little jaunt hopefully would wake me up.  At the advice of the Physician's Assistant, I dispensed from my daily coffee.  This helps during my marination, but I feel foggy-brained.  A necessary trade off.

Upon entering the lobby, I was able to check in right away.  However, I wasn't provided with a specimen jar.  When I inquired why today would be different, the medical assistant said, "Right.  I need my coffee.  I forgot.'  I told her I can relate.  I took the container and headed for the rest room.  There are three, but today all were occupied.  So I had to wait.  I finally did the deed and returned to the lobby.

I just sat down and my name was called.  While walking to the examination room, I was grilled on my vitals. I had the same room as last time.  The one I called the meat locker. I readied myself and tightly wrapped the large napkin around my nakedness to keep warm. 

Michael and Joanne arrived.  Joanne had previously been in training, Michael asked if it was OK for her to administer the BCG.  I said, "No problem'.

Joanne wasn't as good as Michael, but the unpleasantness didn't last too long.  She was done with everything quickly.  Michael said according to my records, I'll be back for my in-office cystoscopy on November 22nd.  I said, "Ya, the day be fore Thanksgiving."  Michel went through his spiel on what to do if I developed a high temperature or felt ill, then both bid me a good day.

I was able to do my full two hours of marination.  After voiding,  I took some pyridium (Azo) to help with the burning and frequency.  I had nothing on my calendar so I stayed home and surfed the net.

Like previous times, I felt blah, was cold and had little desire to do anything..other than drink fluids and flush out my system. I did pass a few clots.  But, I was told I could have bleeding.  It's disconcerting to see that, but I hope it's a sign that the BCG is working.

More to come!

Number 2 of 3

Had an early appointment on this summer-like day for my second dose of BCG.  I anticipated that there would be morning traffic but was hopeful the train wasn't going through at this time.  Wrong!  Although the train went through quickly, traffic had backed up in each direction quite a bit.  Nonetheless, I made it to Northeast Urological early for my appointment.

The lobby only had a few people waiting and there were three windows open for check in.  I received my specimen jar;  did my thing; then, returned to the waiting room.  It wasn't long before I heard my name.  After verifying my identity, I was brought to a familiar examination room.  The medical attendant remembered me and said, "You know what to do. Torri will be with your shortly." It was very cold today in the exam room.  Sitting sans pants with only a table sized napkin for coverage, I anxiously awaited my treatment.

There was a knock on the door and Torri popped her head in.  I said, "Welcome to the meat locker."  She chuckled and said it was warm outside and will be hot later.  She thought that someone may be over-compensating with the thermostat setting. Torri then added that Morgan will be performing the procedure today.  I met Morgan during my last maintenance round when she was being trained.  This time she'll be putting her training to use.  Morgan and Torri were speaking medical jargon as the 'set-up' the implements.  Apparently, Morgan has to specify which additional 'things' are needed to accompany her 'hand-carried' syringe.  So she had to set things up to her liking.

After having thing 'just so', she went to work.  It was very uncomfortable, but I knew it would pass.  And yes, she was now done. Torri did mention that I received a 1/6 of a dose today, so my side effects might be lighter today.  [Side effects were not what I had recalled during my last time.  So hearing this made me hopeful].

I then said, "See you next week."

Once home, I marinaded for two hours. Took two Azo pills and drank 16 oz of water.  I'm trying to drink extra water this time to flush my system.  The Azo takes some of the sting away.  So far, just feeling blah. 

Post Script: I have had a little bleeding, which was not surprising.

More to come!

It's Fall In New England

Since my last post, I had an appointment at Northeast Urological so I could provide a urine specimen.  This was needed to ensure that I had no bleeding and to clear me for my treatment.  Pretty routine at this point. I was told I could come in any time from 8AM to 3PM.

Monday September 19th was a gorgeous day.  I hoped to be at the office by 11:30, so I left the house at 11. Well something was causing traffic to be heavy, so a 12 minute ride turned to 25.  Gee, just in time for the train to close the road.  Not one but two (one North; other South).  This made my time be later.

Got to the office and it was 11:57AM.  Saw a sign that said, closed for lunch 12 to 1.  So much for planning.  I decided to try a Roast Beef sub from a place across the street.  It was OK, but I still had 45 minutes to kill.  So I listened to the radio and decided to stand at the door at 12:55PM.  To my surprise, the door was already open but the lobby was full.  I waited to see the attendant.  Checked in, filled the cup then left.  

Not that I was worried, but my tests are done by Quest Diagnostics.  I have an account with them and I usually get notified that I have test results.  Never got a notification and when I logged on to my account there were no pending tests.  Hmmm!

Fall 2023

The sun rises later and then sets earlier.  Temperatures are crisp and we've had way too much rain, but time marches on.

Today, I started my next round of maintenance BCG. This consists of just three doses (over the next three weeks).  I'm scheduled for my next in-office (look/see) cystoscopy on November 22nd (day before Thanksgiving).  

Once again, I arrived to a full waiting room.  There were signs saying there were new people in training.  [Maybe they can have coverage instead of closing for lunch?].  Like most trainees, processing was slow, but I was early today.  After check in I was told to provide a specimen.  [I didn't even want to ask the new person why my last one seemed to be among the missing.]

I didn't wait too long before being called. After verifying my identity, I was shown to a familiar examination room.  I heard a knock on the door and Michael popped his head in and asked if it was alright to have a nurse in-training come in.  "Sure", I said.

So the trainee did all the work and Michael coached her.  She did well.  So well that she had completed everything faster than I had anticipated.

Got home and marinated for the two hours.  The last 10 minutes are very uncomfortable.  I took some Azo to help with the burning.  Other than my feeling cold and lack-luster, this recovery is pretty much like others.  I did end up turning on my heat.  I couldn't take a 60 degree house any longer.

So, I'm just taking it easy today.  Hope to be back in business tomorrow.

More to come!

Maintenance Round Scheduled

At my last visit, the nurse said she would call me to schedule my next round of BCG.  

Well, the following day, Jackie called me and we booked my next three visits for my induction of BCG.  As a precursor, they want a urine sample on September 19th. I'll be starting my maintenance round of BCG on September 27th and then on the following two Wednesdays. 

I'll be having the next in-office cystoscopy sometime at the end of November or beginning of December.

POST SCRIPT: Cystoscopy has been scheduled for November 22nd.

More to come!

An Early Birthday Present?

Today is August 22nd, one month before my birthday.  I had a cystoscopy scheduled to 'see' if the BCG has (continued) to keep me bladder cancer-free.

It was an absolutely gorgeous day today, sunny, low humidity and just warm enough with a light breeze.  I arrived at Dr Previte's office in North Andover feeling somewhat anxious.  After checking in and providing the obligatory urine sample, I waited to be called.

I was finally called and after verifying my identity, I was brought to yet another examination room.  However, this room had a bunch of medical equipment all set to go.  The nurse verified some information and prepped me for Dr Previte's arrival.

Dr Previte arrived and after pleasantries, he reviewed my chart and spoke of my last time with him and what he would be doing today.  Dr Previte plays violin, so we had a nice discussion about a favorite violinist of ours as he poked and probed.  This time I was able to see the monitor.  As he spoke and moved the camera around, (to me) it looked pretty clean, but I'm no doctor (nor do I play one on TV).

He interrupted his musical chatter and said, "This looks really good.  Very clean.".  I could then feel the camera being pulled out.

The doctor said that the BCG was working and stated that I would be having another round (of three doses) then another cystoscopy in 6 months.  He wants me to start the BCG treatments in September/October.  The nurse said that she would call me to schedule these.

He bid me a good day and shook my hand.  Needless to say, I was thrilled with the prognosis.

More to come!

3rd And Final

An early morning appointment today at Northeast Urological in N. Andover for my 3rd dose of maintenance BCG.  At this point things are pretty much routine. I arrived a bit early and there was no one in the waiting room.  After check in and providing my urine specimen, I didn't wait too long before being called and grilled for my information.  This time I did visit an examination room I had been in once before.  The attendant said,"You know what to do." She then left not before saying, "Michael will be seeing you today."

I had Michael, the Physician's Assistant administer my BGC in the past.  Of all that have facilitated in these inductions, he is by far the best.  Today he was training a new PA, who just watched and assisted with small tasks.  Michael indicated that this would be my last dose and that Dr Previte will be seeing me at the end of August for an in-office cystoscopy.  I was in agreement.  He arranged his procedural implements and did his thing.  Once again, very little discomfort and no leakage.  He's a pro.

He bid me a good summer and his trainee said, "It was nice to meet you but I hope I never have to see you in the future."  Now wouldn't that be nice!

When I left the office the waiting room was full.  So glad I beat that.

Got home and marinated for the full two hours.  As usual, feeling blah and chilly.  It's 80 degrees outside and I'm wearing a sweater.  Extremities are cold.  I did think about gloves, but never donned them.

I'm hopeful that the rest of the day will be low keyed and uneventful.  I do hope to get out for my walk, but we'll see.  I'm optimistic that I won't have any more entries to this blog until the end of August.  I'm looking forward to enjoying the Summer and all it brings and not having any repeat of "Dexter" scenes in the bathroom.

More to come!

2 of 3

Gorgeous day today, but I'm sitting inside with a sweater and feeling blah, for good reason.

I had an appointment this morning for my second (of three) dosages of BCG for my bladder cancer maintenance plan. After arriving at Northeast Urological and providing my urine specimen, I was brought into yet another examination room where the attendant said, "You know what to do."  I certainly do.  So I dropped trow, sat on the diaper and covered my privates with the huge napkin.

Not too long after, Torrie Rogers (NP) arrived mask less and said, "I see you've brought your mustache." This was my first time there without a mask, so she didn't know I had a mustache.  She is always pleasant and a bit chatty, but she can multi-task. I was surprised at how fast she instilled the BCG.  I said, "Oh.  You are done?"  She said, "Yes.  I'll see you next week."

I drove home and did my mandatory 2 hour marination.  As usual, for the rest of the day I feel cold and blah.  I get the urge to 'go' often but I have very little output.  Some time ago I picked up some ASO over the counter meds for urinary pain.  It turns my urine florescent orange, but it does ease some of the burning.

Pretty routine at this point.

More to come! 

A 'Two-fer' Today

One

I had my first of three maintenance doses of BCG at Northeast Urological in N. Andover.  

It was a bright, but chilly May day with light traffic.  I made good time getting to the appointment and after checking in and providing a urine specimen, I was met outside the restroom by a medical professional who called my name, grilled me for my vitals and asked me to follow her. 

Visiting yet another examination room, I was told to drop trow and wait.  Not too long later Torri (NP) and Morgan (trainee) arrived.  After exchanging pleasantries and verifying who I am and why I was there, Torri began to prepare her implements. She took time to explain a few things to Morgan and then I felt the tube go in and my bladder empty whatever I didn't get out.  Once again, I felt that unmistakable warm feeling as some urine decided to run down the uglies.  There was some chatter of jargon and Torri announced that we were all done.  She collected her laptop and other items and said, "Until next week."

Got home and did my two hours of marination.  Got ready for my appointment with Doctor Mehta.

Two

 

Not knowing what traffic would be like mid-day, I gave myself extra time to arrive at Dana Farber, Methuen. This site still requires masks and covid screenings.  I got up to the 3rd floor and after check in, was provided with SATs to complete.  I just sat down and was immediately called in for blood work.  The phlebotomist was very pleasant, but I think I scared her with my tales of multiple jabbings and very little blood.  She then told me she was still in training.  She called her 'trainer', who looked at my veins and said that taking the blood from my hand was the best option.  Although not my favorite area, at least she sized up the situation without torturing me.  The phlebotomist successfully drew the right amount of blood, with just one jab.  Yay!  I was instructed to return to the waiting room where I completed my SATs.

Not long after, my name was called and I was directed to follow her to an examination room.  Luckily for me Dr. Mehta was already there, so there was no waiting.  I gave him my SATs.  He looked at my electronic record and said, "The blood work is good and everything else looks excellent."  I mentioned that I had a cystoscopy in April and the results were good.  It appears that the BGC was working.  I added that I had by first round of BCG today.  Two more to go over the next two weeks.

He seemed pleased and said there's nothing he can offer me right now, but wished to see me in 6 months.  Of course if things change, notify his office.  He also mentioned, "There are a number of trials in progress and they are showing some positive results.  So there are a few things in the pipeline."

My next appointment is the day before Thanksgiving.

More To Come!

Scheduled Maintenance Is A Good Thing

I was surprised to receive a call from Dr. Previte's office.  First thing I thought of was, "Oh Oh, I hope this isn't bad news".  I had a mental note to contact the office at the end of June to schedule my BCG maintenance.  Coming out of my anesthesia fog, I thought the doctor said he'll see me in August for maintenance.  Well I wasn't too far off.  Today's call was to schedule my next round of BCG, starting in June and an in-office cystoscopy in August.

So I'm happy that I don't need a reminder to chase them down and was pleased that the next cystoscopy will be in-office versus a hospital. 

More to come!

Tele-health Follow-up With Dr Mossanen

I had a follow-up visit on Zoom with Dr Mossanen today.  It was very short and sweet.  He was very happy for me when he heard that my cystoscopy (last Thursday) yielded NO Cancer.  He was in agreement with the plan going forward: round of maintenance of BCG in August with a cystoscopy.  He did add that if things change, or cancer comes back, to contact his office to discuss options.

Fingers crossed.  Hoping to enjoy the summer without this looming over my head.

More to come!

Oh Happy Day!

Good news does come in threes.  No cancer/or lumps found in my mammogram; Biopsies came back as benign for the two polyps found from my colonoscopy; and today - no tumors or cancer found for my bladder cystoscopy.

After much prep work and medical tasks needed for today's procedure at Holy Family, Methuen, I had a 12PM check-in for my cystoscopy/biopsy and  possible TURBT.  Last few times they have been scheduled for 6AM so I was optimistic that today might have good results.

My sister Leslie provided my ride to and from, today.  She was also happy that the appointment was mid-day so she too could sleep in.  We arrived at the hospital at 11:45 and prior to her leaving we estimated the timing for best and worst case scenario.  The best would be my having the procedure completed by 4 or so; the worst case I would be required to spend the night and living with the 'bag' for the weekend.  Luckily, it was the best case scenario.

Inside, after checking in, I waited almost and hour and a half before being called.  Once called, I was brought to my 'home' to remove my clothes, slip into the johnnie and be greeted and questioned by three teams: nurses, anesthesia team and Doctor Previte.  Each asked me pretty much the same questions (that I aced).  When Dr. Previte arrived, we went over the possibilities and the risks; had me sign off on some forms; then said he'd be seeing me soon.

Around 2:15, I was wheeled into the operating room. The medical staff operated like a pit crew where each had a specific task to complete.  They were a well oiled machine.  I heard one say, Dr. Previte has arrived.  Another said, "Breathe deeply".  I was out.

I woke up in the recovery room and noticed the clock said 3:15PM.  I thought that was fast and was encouraged by that.  My hand meandered to my privates and I had no catheter.  YAY!

A nurse saw that I was coming to and said that the procedure went well.  She offered some juice and cookies.  I was still in a fog, but agreed to having them.  Glad I did since I hadn't had anything since 11:45PM the night before.  I noticed that Dr Previte was approaching, with a big smile and he said "I have good news. I found no cancer (tumors to scrape out).  I'll see you in about 10 days to discuss the biopsy results and we'll start the three rounds of maintenance BCG in August."  

Great news!

So my assumption is that the BCG worked.  I fully expect that biopsy will still show cancer, but hopeful that the maintenance BCG will continue to work.  Earlier conversations included this plan.

In the interim, I'll enjoy the summer-like weather and bask in this encouraging news.

More to come!

Good For Three More Years

After a hellish night of colonoscopy prep, I had crappy (not literal) sleep.  Just having to get up just as I was falling into deep sleep was torturous, but not having to 'let go' in the bed was worth my getting up every 15 minutes until around 3AM.  I did set the alarm for 9AM, but woke up at eight with that feeling, so I decided it was time to get up.  I was still fasting so I couldn't have anything, so I figured a shower would wake me up.  It helped, but not as much as a cup of coffee would have.

My appointment was at 10 and I had my sister who kindly agreed to pick me up at 9:40.  The hospital is on the other side of town.  Well at 9:15, the phone rang.  Figuring it was a robocaller, I let it go to my answering machine.  It was the nurse, Julie from the hospital asking if I was coming.  Strange, I thought since I confirmed my appointment through the portal.  But, I said yes, I'll be there for 10.  She said we like to have you come in sooner so you are ready for the 10:00 procedure.  I told her that my ride wouldn't be here until 9:40 and I'll be there as soon as I can.  She said, "Ok as long as you are still coming".  Very strange.

My sister Leslie arrived right on time and we zipped over to the hospital and I arrived at check in at 9:50.  I was directed to walk down a long corridor to endoscopy.  I arrived and there was a note on the door to ring the bell and have a seat. I waited for about 20 minutes.  A nurse had come out and was talking to another patient who was there for a 2:30 appointment.  I guess she was there early hoping for a cancellation so they could squeeze her in.  Not wanting to be aggressive and interrupt saying I was here for a 10 appointment and it's now past 10.  So I just waited.  She finally turned to me and asked why I was there.  Of course I said I had a 10AM colonoscopy.  She said the nurse will be right with me.  Interestingly enough, the other person was taken in before me.

Finally, the nurse called my name and I entered the prep room.  Julie was very personable and professional in gathering all the needed information and providing me with my required garb.  I donned the johnnie and stretch socks and jumped into bed.  She had provided a blanket that was warm to the touch.  Nice!

A few more nurses stopped by.  One gave me an IV the other questioned me about my history of anesthesia. From what I heard in various goings on, there's one room for procedures and one big room of 6 bays for procedural prep. The though crossed my mind about their slipping in a patient.  I looked at the clock and it was 10:10AM.

I lie waiting for my turn, I saw one patient return, who was still out of it, then they wheeled away the other squeeze-in.  I needed to get up a few times cause I had the urge, but while in the lavatory it was mostly water coming out of me.  The nurse did say that they do have a vacuum to do any clean-up that is necessary.  But, I don't want to ignore nature's calls.

I noticed at 11:10, the squeeze-in had returned.  The doctor had come out to discuss his findings with that first patient who had come out of his slumbers.  I guess that guy had a big polyp and a number of others that took longer than expected.  He has to come back in 3 months.  Poor guy!  The doctor went over to the squeeze-in and they seemed to be discussing something a bit more serious.  I did hear the word cancer.  But, it wasn't my conversation since I was eaves dropping.  Of course, I thought of the rule of three.  What will be my news?

I finally got into the procedural room and was introduced to the whole team (2 doctors and 3 nurses).  Each had their specific tasks and by 11:20AM I drifted into darkness.

I came to at 1:10.  Very foggy.  The nurse stopped by and told me that I did well.  The doctor removed 2 polyps (very small) and sent them to pathology.  The doctor stopped by and repeated what the nurse said and added that he'll see me in 3 years.

I don't anticipate any bad news from pathology and I'm glad this is behind me (no pun intended)

More to come!

Follow-Up With Dr Song And Other Stuff

Had my follow up with Mass Eye And Ear today in Waltham.  It was right at the end of the morning commute so the highways were busy, but moving right along.  Although I give myself an hour, (in off time it's a 35 minute ride), today it seemed that I might be there in the time frame until I got to route 128 S.  For some reason traffic was at a crawl.  I only had to be on 128 for about 6 miles and it took me just as long to do that stretch as it took me to get to 128 from home. So I'm glad I gave myself a buffer.

I arrived close to my check in time and because I did an e-check-in, I was allowed to take a seat and wait to be called.  Not too much time elapsed before an eye technician called my name and brought me to an examination room.  She gave me eye drops and performed some tests.  I took the eye test and she said that my eyesight had improved (in my left eye).  I now have 20/15 vision.  Sweet! She did perform the eye pressure test and I had 20 in my left and 15 in my right.  Much better than the previous readings of  33 and 17 respectively (and a second test of 25 and 17).  She finished up entering data and asked me to return to the waiting room.

Once again it seemed like no time at all when I was called to go to another examination room were Dr Song would see me.  There are four examination rooms in this section of the building.  The doctor goes from room to room, I guess all day.  It's an efficient process.

Dr Song arrived and after exchanging pleasantries, he went right to work.  He made some audible approving sounds and said, "Things are looking good". He then tested my eye pressure and said, " The pressure has gone down, but I think we'll have to continue the eye drops in each eye". I mentioned that my prescription was initially for one eye and I was sensing that I was at the end of the bottle. It's up for renewal in a week, so I requested that he send an updated refill.  He did, right then.  [Got home and had an email from the pharmacy indicating that they are working on filling it].

Dr Song asked that I come back in November.  Apparently they are moving 4 miles down the road to Lexington, so next time will be at that location.

Other Stuff

Tomorrow I'm having my colonoscopy.  I did get a call form the doctor's office to ensure that I had my instruction for the prep.  Claudine, indicated that the prep these days is much more effective, but stopped short and said, "Oh you have Medicare.  So you will be having the over the counter prep.  Medicare doesn't cover the two pill prep".  Of course not!  So I'll be taking 4 laxative pills at 4PM and drinking the vile concoction of 64 oz (8 oz every 15 minutes until it's gone) and spending the evening on the toilet.  I'm also fasting.

I received a message in my portal indicating that my images and technician's report was available.  The CT Scan images are amazing.  I wish I had someone who knows what I'm looking at guide me through.  But some are 3D and in color.  I can clearly see the stint.  One set of images shows only the heart and aorta and you can manipulate the image to rotate and zoom in. Fascinating and kind of creepy at the same time.  The notes indicated that most things were normal or 'unremarkable'.  I knew I have a hiatus hernia and the report said it wasn't too bad.  There were some comments about divertuculum in the intestines that I didn't understand, but they didn't seem to be too concerning, more reporting of what is seen.

I'm hopeful for good results for the colonoscopy.  Then focus on the bladder cancer and results of my second round of BCG.

More to come!

Equinox

Spring has sprung, although it started out quite chilly, the strong March sun quickly brought the temperature up to the low 50's.  Seems hard to believe, that last week we had a Nor'Easter that dumped a heavy wet blanket of snow.  These parts saw about 5 inches +, but you didn't have to travel far to find 'feet' of snow.  But as of today, there is little left, just some mounds of dirty snow.

I had my annual AAA check up with Dr Schanzer at UMass Medical in Worcester. More than a year ago I had an MRI and the technicians indicated that I had an enlarged aorta above the heart.  Dr Schanzer ordered a CT Scan to be performed today.

The scan takes place in the main building.  Having been there before, I knew the location.  They had electronic self serve check-in (so for me it was a breeze).  There were many struggling with the technology, but there were roving helpers assisting those having difficulty. 

I arrived at radiology and had another quick check-in, but since I had already e-checked in last evening from home, the attendant said that I was all set and have a seat.

It didn't take long until the radiology tech called my name and had me follow him to the machine.  He was quite personable.  (I didn't catch his name). He had me lay on the slab, covered me with a blanket and instructed me to pull down my pants to my knees.  He started un-buttoning my sleeve and I stated that many don't have luck with my veins.  But he seemed adamant in using my left arm since it was close to the IV (for contrast).  He was awesome.  No pain and hit the payload in one try.  I told him he got a gold star.  Amazing how some know what they are doing and others know how to torture.

He then told me that we would start and when the recording would tell me to take and hold my breath, just take normal breaths.  I can handle that.  We took a few rounds of pictures without contrast then said I would feel oddly warm and flushed when the contrast is induced.  He was right.  Reminded me of the hot flashes I had during my Tamoxifen travels.  Before you knew it, I was done.  He told me to get dressed and have a great day and pointed to the exit.

I had a few minutes, but the line at the Dunkins was quite long.  So I meandered across the street to Ambulatory Care for my follow up.  They had a Starbucks there, but they also had quite a long line, so I took the elevator to 3 and walked to vascular surgery.

Check in was easy because I did the e-check in from home.  The attendant was pleased.  I sat and waited to be called.  Just a few minutes passed when I heard my name.  The medical professional mentioned her name, but with the mask, I didn't catch it.  She did have a bit of an accent.  I followed her and she pointed out the exam room I'd be using.  Weighed me and took my vitals.  She said the doctor will be with you shortly.

Not long after, the Nurse Practitioner, Devon arrived.  I recall seeing her last year and she mentioned she remembered me.  She also mentioned that Dr Schanzer was reviewing the scan and would be right in, but also said she saw the scan results and the graft hadn't moved and the aorta (above the heart) was normal.  She also said the the endo-sac continues to shrink.  All good news to me.  She instructed me to don the johnnie and wait for the doctor.

Dr Schanzer arrived and after exchanging pleasantries, he reiterated what the NP told me.  Yes.  Good news for a change.  He said he'd see me next year, but since the false aorta enlargement is no longer a factor, I'd be having an ultrasound (as I normally would have).

Next On The List

On Wednesday, I have a follow up with Dr Song to determine if the eye drops are working to reduce the pressure in my right eye.  If so, he mentioned that he'd take me off timolol (for that eye) and have me come back for a follow-up.

On Thursday, I'm having a colonoscopy.  I was supposed to have one in March of 2020, but they suspended all routine exams due to the pandemic.  I hope my good luck continues.  However, in the past I had received information about the dreaded colonoscopy prep.  I had sent a message through my portal and got a response that instructions were in my surgical procedure instructions.  Well, that did not exist.  I called the number listed and spoke with Carla who determined I was correct, but didn't know why.  She was able to access the instructions, but indicated that I wouldn't get it in time if mailed, also she couldn't send to me via e-mail (HIPAA laws), but she said she could print out and I could pick them up.  Having just driven nearly 250 miles, I wasn't thrilled to go out again.  I figured it would take me a few minutes to go to Holy Family, Haverhill.....but no....she was in Methuen.  OY VEY!

I drove to Holy Family Methuen and picked up the instructions.  I read them in the lobby, in case I had any questions.  On the way home I bought $33 dollars worth of stuff that makes you wanna go #2...a lot.  So all that fun starts Wednesday when I have a day of fasting, then begin using the concoction starting at 4PM.  Yes the colonoscopy itself is nothing, but the prep is hell.

More to come!

Litlle Of This And That

Since my last post, I've had a number of tests.  

I received the results of my CT Scan/Urogram through my patient portal. I'm no doctor, even though I play one on TV, but the notes I received indicated that things looked pretty normal, meaning that the cancer has not spread.  

There were two items in the notes that I questioned.  One being presence of blood.  I haven't seen any bleeding, but it might be microscopic and the notes indicated that it could be related to an infection (UTI), although I have no symptoms.  I have had urine tests performed after this and there was no mention of a UTI or presence of blood.  The other note mentioned that the left wall of my bladder had a thickening.  I recall Dr Previte telling me that tumors were found on the left wall. So I'm not sure if this means scar tissue or new growth.  I do have  a biopsy/cystoscopy scheduled in April and a follow-up with Dr Previte the week before to discuss the urogram.  

I also have a tele-health follow-up with Dr Mosannen later in April to also discuss the urogram and the next steps. I am hopefully optimistic that the BCG worked this time, but am prepared that it might not have.  I know of others who have had multiple rounds of BCG before the cancer was relegated to monitoring status.  One of the early discussions with Dr Previte also mentioned this possibility.

I had my annual mammogram last week and I received notification that no cancer or growths were found.  

Follow-up With Dr Mehta

 

Today, I had a follow-up with Dr. Mehta. Prior to my appointment he requested that I have blood work done.  After my arrival and quickly after check-in I was called for my stabbing ritual.  Although I stated that phlebotomists don't have much luck with the veins in my arm and most of the time resort to my writs.  Well who am I?  Of course the first pin prick yielded nothing.  The next arm wasn't much better.  I could sense that the attendant was adamant in proving me wrong and proceeded to torture me with more jabbing.  Still nothing.  I guess she relented and headed for my wrist.  I don't like to watch, but I could hear her make a noise of approval (successful) and a quick sigh of disbelief when the needle came out and fell on the floor. She called for help and another came in and tried my vein on my right arm.  I knew she would not be successful. She wasn't.  So she went to my other wrist.  Finally, she yielded some blood, but apparently not as much as they wished, so they kibitzed a bit and decided that what they got they could use. When I got home and removed all my bandages, my arms where all black and blue. No gloating from me because I was right, but glad it's not short sleeve weather. I was dismissed and told to wait to be called to see Dr. Mehta.

 

In the waiting room I completed making corrections to my file print-out and was called.  I followed the nurse to an examination room and waited for the doctor to arrive.  It seemed like 20 minutes or so when he finally arrived. We discussed the results of the genetic cancer panel I had done at the end of last year.  He said he was pleased to see that I didn't have the Braca 1, 2 gene.  I know I was tested for that in 2016, but internal systems upgraded at Dana Farber caused those results to 'get lost'.  I did have a copy on paper, 'somewhere' but I could find it, so this is a good confirmation.

 

The doctor checked both breasts for lumps an anomalies.  He said, "Normal".  [A good word].  We discussed the upcoming procedures and requested that I see him in two months. I bid him good day and proceeded to check out and made the appointment.

More to come

That Last Minute Call (s)

It was almost 5PM (3/1) and my urologist's scheduler called to ask if I could go in for a cystoscopy TOMORROW at 10AM!  I was slack-jawed.  I mentioned that the last one was done in the hospital.  She said this would be an in office procedure and probably will take about a half hour.

So I'm off to the urologist tomorrow.  But I have to wonder why the urgency.  I had the CT Scan/Urogram done on Friday.  Did he see something?  Kind of disconcerting.  I probably won't be getting a good night's sleep.

More Calls 

I was already to get up and get ready for my appointment when I received another call from the doctor's office indicating that my appointment for today was cancelled.  Apparently, the attendant told me, the doctor wanted this done in the hospital.  She apologized for the confusion and indicated that the scheduler would be calling me with information on the hospital procedure. I decided to roll over and get some sleep.

Not 20 minutes had passed and the phone rang.  I screen my calls and heard a voice identifying themselves as calling on behalf of Dr Previte's office.  I picked up ans spoke with the scheduler, Sandy.

She had asked if I could go to Lawrence General on 3/10 to have the procedure.  Of course, I'm at the mercy of scheduling gods, so I said yes. She then went into her spiel about my needing to fast and have someone bring me there and pick me up.  I asked what time, she said the hospital will be calling me ahead of time for pre-registration, pre-screening and time of the procedure.  OK, I said.  But, thankfully I was lucid (and pre-caffeinated) enough to question why I'm having this scheduled when I already have this procedure scheduled for 4/13?  There was silence.  Then she said, "We'll keep that one.  I book so many appointments." She did request that I provide a urine sample sometime before 3PM today.

So, the sense of urgency seems to have been mitigated...until the next call.....LOL

More to come!

I'm Ready For My Close-Up, Mr. Demille

I had a call on Tuesday requesting that I have some blood work done in anticipation of my CT Scan/Urogram scheduled for Thursday.  While discussing the timing, I had mentioned that we were supposed to have a 'weather event' that day.  The medical staffer suggested that I move the scan and blood work to Friday, the 24th. Works for me.  Hind sight, I'm so glad that this was rescheduled since Thursday was quite stormy, icy and treacherous.

I got up early today to ensure that I could arrive at the Hospital for my two appointments.  Although I had cleared my driveway the previous day, over night we had freezing rain so there was a coating of ice on everything.  The sun was out and had started to melt the ice, but anything not in direct sunlight was still encrusted.

I bundled up and crossed my fingers that I would be able to open the car door and start the engine to begin the defrost.  I was pleased that I was able to open the door, start the engine and turn on the defroster.  I started chipping away at the ice that had started to melt from the sun.  By the time I was able to clear the partially melted ice, the defroster had begun to work, so I finished off the rest of the car.  By this time it was time to leave.

I arrived at the hospital at 8:45.  The front doors were wide open (frozen open).  I entered through the secondary set of doors and was greeted by the screener who had just set up shop.  She asked my name and began thumbing through some printed sheets.  I guess my name wasn't there.  She powered up her laptop and asked for more identification info, still I wasn't there.  I mentioned that I was originally scheduled for the 23rd, but because of the storm, I was rescheduled to today.  She still couldn't find me.  She had me sit while she looked for someone to help. Not long after, she returned and said that she couldn't find me because I was supposed to be there yesterday.  [Insert ground hog day reference here].

I was referred to a registration clerk and she quickly printed out paperwork.  I was told to wait for the lab to open.  My name was called.  The phlebotomist greeted me and asked for my paper work. I was instructed to sit and roll up my sleeve.  I had mentioned that most have a hard time getting blood and they resort to my hand.  She frowned and said, "They aren't me."  Well she was successful at hitting the mother lode in one try.  I thanked her for not torturing me.  She chuckled.

I walked down to the imaging department and checked in.  I waited for about 15 minutes when someone came and asked who I was and what I was there for.  [So much for the paper work.]  I was then instructed to proceed to the CT Scan waiting area.  I waited there for about 10 minutes and was called in.

After removing my coat and dropping my pants, I lay on the slab.  The attendant said that I was going to have an IV with contrast, but she was going to take some pictures before and after. I had the first round of pictures.  Seemed quick.  She returned and turned the spigot to let in the contrast. She said, "You'll feel a warm sensation.  I'll give you half a dose, then wait 10 minutes and give the rest.  Then we'll take more pictures." It was exactly the way she described it.  And the whole thing was done. 

I got home in time to receive a call scheduling my biopsy for April 13th at Holy Family Methuen.  I would have to drop off a urine sample on April 4th. Many balls in the air for this juggling act.

More to come!

If It Isn't One Thing It's Two

Today, for my post-op follow-up with Dr Song,  I had an eight o'clock appointment in Waltham.  

For joy, I got to join the ranks of people rushing for work on the busiest of highways; 495 S, 3 S, and 128 S.  Because you never know what to expect for traffic or an accident, you need to allow for more time.   Without traffic the ride is about 35 mins.  So I gave myself an hour and 15 minutes.

I had set the alarm for 6 AM, but of course I woke up at 5:30.  I lay in bed trying to get back to sleep and of course I did just as the alarm went off.  Par for the course.  It's still dark out at 6AM.  I stumbled into the kitchen and turned on my dimmest lamp, which seemed to be too bright. Started coffee, answered a call to nature and then took my meds. Caffeine eventually kicked in and I got ready to leave.  It's still on the dark side at 6:45, but getting lighter.

Highway traffic seemed to be on the light side.  I figured it was early, a Friday and this coming Monday is a holiday.  So maybe folks were working from home or taking a long weekend off.  No complaints from me.

Made it to Route 3 and around Chelmsford, it began getting a bit congested, but that cleared up and I was soon on 128.  Not too bad.  You cannot plan these things but I arrived in Waltham at 7:30.  I parked the car and was on my way.  At the office, there were only two people in the waiting room and I checked in and was told to wait.  Not 5 minutes went by and Kelly called my name and asked that I follow her.

I had a few eye tests, then was told to follow her to an examination room.  I had more extensive eye tests then eventually had my left eye dilated.  I recall her saying that my left eye (the one that was just operated on) had a high pressure level.  But she thought it might be because I just got off a regimen of prednisone.  She then asked me to follow her to another examination room where Dr Song would see me.

It wasn't long before Dr Song came in and upon reviewing the various test results, he said that I had 20/15 vision now.  He asked if I had experienced any vision issues since the surgery.  I mentioned that I'm still in the 'break in period'.  [Since I have mono vision: two types of in ocular lenses- one, distance, the other for reading, The brain needs to adjust.]  So I mentioned that from time to time I had some blurriness, but it passed and didn't interfere with my reading or looking at TV.  He agreed that the breaking in period is pretty normal.  He used some machines to look at my eyes and took my pressure.  He indicated that my left eye had a pressure of 25 and my left 17.  I currently take timolol for my right eye, so he told me to start taking it for my left also. He also indicated that next refill will prescribe that it's for both eyes.  He asked to see me again in four weeks. 

So, I get to have drops in both eyes now.  I have a follow up booked for 3/22.

More to come!

Another Graduation?

Today was my sixth and final dose of BCG.  This being the end of round two, there was less celebration for my graduation.  It was even quite quiet in the office waiting room.  

Upon entering, I had to really think if I had my appointment day correct since there's usually a boat-load of people.  But, I was right, it was my day to be here.  Still, it was strange.  I began to think that maybe my 'tacked on' appointments (due to my being ineligible last December because of bleeding and my skipped appointment in January) brought me out of sync with everyone getting the BCG on the 6 week schedule.

I had received an itemized bill in the mail on Monday (first one from this place).  It showed that I owed $40.  I recall last time they said I had a balance of $40 and a new co-pay of $50, so I thought that it was possible the bill crossed in the mail.  I called the number listed and received a call back indicating that I did in fact, pay the balance due.  In addition, she said I had a $35 credit. So I was not asked to pay the co pay today. I was asked to provide a specimen, which did and then waited to be called in.

Not too long before I heard my name.  Seeing I was the only person there, no confusion this time with two Richards standing when the name was called. I followed the attendant to an examination room I had been previously, was grilled for my identification data and told to 'strip from the waist down'.  Done.

Michael arrived, and after indicating that this is my 6th dose, he said my next visit will be with Dr Previte.  I indicated that I was already provided with an appointment.  He acknowledge it and began his preparation.  He was quick, and there was very little discomfort and no leaking.  I mentioned that he did it the best, to which he chuckled and said, "That's good to know".

I got home and did my 2 hour marination.  Those last 10 minutes seem to last an eternity. So at this point, I feel kind of blah and meh, and feel chilly (not the chills).  I do have the urge to go, often but produce very little.  This is normal.  I'm hoping to NOT have any blood (like I did two times ago), but if there is, it is expected.  So, just taking it easy today.

More to come!

And It's So Nice Out

Wednesday again.  I had an early appointment for my 5th dose of BCG in this second round. We did have some ice last night and when I got up, I noticed that everything was coated.  I figured I'd have to let the car warm up so I could chisel away the ice.  The streets had been treated so it was just sidewalks, driveways and tertiary roads that could be treacherous.  The sun was shining bright and the weather man said today was going to be the 'pick of the week'. So I grabbed the local newspaper from the perch and had my one cup of coffee.

I gave myself extra time to clear the ice off the car, but to my enjoyment, the sun had melted away most of it.  The front windshield, being in the shade, still had ice, but by this time it had softened significantly rendering it to slush. I guess the weather man might be right, for a change.

At this earlier hour, many were clogging the highways as they rushed to work.  Although heavy, traffic was moving.  I arrived at Northeast Urological at the planned time.  Lots of cars and lots of people in the waiting room.  I checked in and was hit with a $50 co-pay and had to pay a balance due of $40.  Whatever!

While at the window I had inquired on the referral to get my CT Urogram (as requested by Dr Mossanen).  There was nothing in the paper file, but she did see some notes.  She excused herself and returned with Dr Torri Rogers (whom I spoke with last time).  From what I heard everything was all set and it just needed to be scheduled.  The attendant said, "You are generally free everyday."  I replied, yes generally, when I'm not at a doctor.  She then said, "The scheduler will be calling you today to schedule the CT scan at Holy Family in Haverhill.  Great!

I was given my specimen cup and directed to fill it and return to the waiting room.  Easy enough.  Task complete.

Not too long after my returning to the waiting area, I heard: Richard.  I stood up as another guy stood up.  Apparently he is a Richard too, but he didn't have my SAT answers so he did not pass go nor collect $200.  I was drilled for more info and visited yet another examination room.  It was set up this time.  I was asked if my meds were changed and if I had any surgery since last week.  Yes, I had eye surgery Monday (laser) and I was on predisolone acetate 1%.  She noted it in the file, but it had no affect on my getting the BCG.  So she instructed me to drop trow, sit on the diaper and gave me a very large napkin to 'cover up'.

Dr Torri Rogers arrived, asked a few questions then went right to work.  Torri is very personable and has a bubbly personality.  With all the chatter going on, the procedure was done in a flash.  (No wet bottom this time either.)  I did mention that this was my 5th dose, but I had two more appointments scheduled.  I wondered if the last was a follow up consult.  Torri indicated that the extra appointment must be a mistake and she'll report it to the front desk.  Her records showed this as being the 4th dose.  But I corrected her with the dates and who administered the previous treatments. [Wondered to myself if I should have just kept the extra appointment, but also though that someone might be waiting for the BCG.  So I think I did the right thing.]

I got home and marinaded for the 2 full hours.  Made blueberry muffins and banana nut bread and tried to get out of the brain fog.  As the day progressed, I began to feel blah and meh; cold but not the chills and pretty much low energy.  Still waiting for the call for the CT scan appointment and anxious to see if I bleed.  So I'm gonna take it easy and go with the flow.

Post Script: Received a call scheduling my CT Scan (Urogram) at Holy Family Hospital for 2/23/23 and a follow-up visit with Dr Previte, April 6th.

More to come!

Aye Aye, Doctor

A balmy 45 degrees today when my sister picked me up for my laser surgery in Waltham.  I was scheduled for a YAG Capsulectomy (in English: Had the layer of tissue separating my vitreous humour from my in-ocular lens removed with a laser).  This was a corrective procedure to eliminate the condensation on the underside of the lens which caused my vision to be less than perfect.

Traffic was free flowing and we arrived at the Surgiste location 45 mins early.  Upon check in the attendant said, "You are early.  Have a seat and I'll call you soon to check you in."  My sister had just returned from the rest room and I joking said that I was yelled at for being early.  The attendant interjected, "I didn't yell at you." I responded that I was joking, but thought that this might get weird.

We sat down and waited.  She called, "Mr Page", but it didn't register, but my sister heard it.  I walked to the counter and said, "That's my father's name."  She chuckled.  So I knew she did have a sense of humor.  I was asked for my insurance cards and my covid vaccination card.  She scanned them into her system, then had me electronically sign some paperwork.  She was interrupted as she was asking if I had a health proxy.  Since my sister is my proxy I pointed out the attendant's name on the screen so she could use it to answer her.  She did, but blamed me for having her do it.  We all laughed.  We finished up and was allowed to go to the 'other-side'.  I bid my sister adieu, and said, " I'll see you on the other side."

Well the other side, unlike biblical/religious lore was just another waiting room.  So I did my time in purgatory then was called for some procedural preparation.  I had my vitals recorded and many eye drops.  I was sent back to purgatory (they must have found another sin I needed to atone for).  Then I was called for some dilation drops.  Then returned to purgatory for twenty minutes of atonement.

Finally, the pearly gates called me in.  More drops, then waited for the doctor to arrive. Upon his arrival he prepared the 'machine' then I received some numbing drops.  I guess it's a good thing because he had a guide lens sit right on my eye.  I just felt pressure, no pain.  Drops were working.

Dr Song had me rest my chin and forehead on the rails of the machine, then had me look at a light.  He then proceeded to play space invaders and I could hear multiple clicks of the trigger and saw a very colorful battle with flashing lights and many explosions.  All scary looking but no pain.  It was over before I knew it.  I received more drops and was returned to purgatory to atone for a really old sin they discovered. About 20 minutes later, I was called.

I entered another examination room and a nurse (Ralph) checked my eye pressure.  It looked like he was training someone because he was describing his every move and what each instrument was for/and doing.  After a few minutes, they both exclaimed in unison: 12.  I know that's a good number from past visits.  I was dismissed and provided with some post op instructions.

I walked back to the main waiting room and found my sister and said we are good to go.  She recommended that I use the facilities prior to leaving (good plan).  We left and she had made me a sandwich and some cookies that I chowed down as we drove home.

Uneventful ride home, and was thankful that the weather and traffic cooperated.  Thank you Leslie for the ride, laughs and the lunch!

I have a post op follow up with Dr Song next week.

More to come!

It Depends

For my fourth dose in this round of BCG, things were pretty much routine.  Much like that TV series: Cheers, the place were everyone knows your name, familiarity is taking hold and I'm learning most of the medical professional's names and they know me.  Kind of weird when you think of it.  I'm such a regular, but the offerings go straight to the bladder. Just food for thought.

It was a bit chilly, but sunny today.  Check in was very routine.  I'm still waiting for a referral for my CT Urogram (requested by Dr Mossanen).  I'm most certain that it's in the pile of faxes...somewhere.  I provided my required specimen sample and didn't wait too long before being called in.  This is a good sign since they wouldn't call me in if there was blood found in the sample.

Was given the required identification questions that I apparently answered correctly then visited yet another examination room.  While entering, the attendant uttered, "There's no set up." Then she quickly set the 'table' with 'things' needed for the treatment.  It was interesting to see how the sausage was made nonetheless.  After completing the task she said, "Strip from the waist down.  Torri will be right with you."

I got ready.  Dropped trow, sat on the 'diaper' and covered the uglies with the very large napkin and waited.

Torri arrived and after asking a few questions (verifying who I am and any allergies) she asked, "Do you have any questions for me?"  I thought it might be a good time to talk about the CT Urogram referral/paperwork.  She was aware of the reasons why, but said she would look into the paperwork.  She even asked where I was going to have this done.  I took it as a good sign.

As procedures go, the bladder has to be emptied before BCG can be instilled.  So the uncomfortable catheter is inserted and any urine present is drained into a plastic urinal.  This is normal, but I felt a warm sensation 'down there'.  Torri said, "Looks like someone had some coffee today.  I thought I got it all, but there was more."  I did say that I had one cup of coffee (not that I shouldn't, but coffee is a diuretic and my normal intake makes my 2 hour marination difficult in the last 15 minutes.  So Michael suggested that I only have one cup.)

Torri blotted what she could and gave me the BCG.  I could feel that my 'bottom' was wet.  After she was done, I used my napkin to 'towel off' and noticed that the diaper I was sitting on, did its purpose.  So I'm sure that has happened before.  

Got home and marinated the full two hours and waited for the side effects.

Most of the day I felt meh and blah.  Brain was foggy and I didn't really feel like doing too much.  It was too cold (and I felt too chilly) to take my daily walk.  Late in the afternoon I went grocery shopping joining all those that needed bread and milk for the up coming polar vortex.  

I basically chillaxed until going to bed.  No blood was passed.  

More to come!

Becoming Routine

We've had some wild and woolly weather since my last post.  True to New England fashion, nothing transpired as predicted.  Luckily the larger storms produced more rain than snow, but there were a few storms we got hit with about 8 inches of heavy wet snow.  Hey this is January, and it's almost over.  The clocks will be changing again in early March.  I've already noticed sunsets getting a tad later.

Since my last post, I've been calling/messaging/emailing various providers to ensure all the stars are aligned for various upcoming procedures.  My next being in early February.  I'm going in for a removal of  my capsule in my left eye.  Since I had my cataract surgery, vision has become cloudy in that eye.  It was discussed after the surgery that condensation might cause that, so it's not a surprise and should be quick.  I've already received some eye drop meds for post-op.  

I received a call scheduling my colonoscopy.  Still waiting for more information (prep instructions) for the March 23rd procedure.  This will be close to home (Haverhill Holy Family Hospital).  

I'm scheduled for my annual AAA repair check-up in Worcester on March 20th.  Because an earlier CT-Scan showed an enlarged aorta above the heart, the doctor wants to have a new scan done.  I received a call and they want me to have blood work done to clear me for the contrast.  Working on getting that scheduled so it's a few weeks before the procedure.  In addition, Dr Mossanen wants me to have a urogram prior to my next appointment with him.  Still trying to get that paperwork finalized.  [Still find it hard to fathom in this day and age that a fax machine is the preferred method of communicating medical information.]

Dose 3- Round 2

Not sure exactly, but this week's BCG appointment was moved to today (Thursday).  I'm thinking the bad weather had something to do with supply chain issues, but being retired (and not having a different doctor's appointment) the change was pretty easy to make. 

I arrived, checked in, provided my sample, waited my turn and visited yet another examination room.  The Physician's Assistant, Michael administered the BCG today.  Of all those that administered, he's the best.  And I told him so.

Just finished my two hour marination and waiting for any side effects to kick in.  Feeling chilly (but not the chills), mostly tired.  We'll see how the day progresses.  The sun is out, but it's breezy.  Another change in the weather.  Yup, New England.

Just received email notification/confirmation of my last two BCG appointments, bringing me up to February 22.  Let's hope the weather cooperates. 

Post Script:  I did have some bleeding but it wasn't too much and cleared up quickly.

More to come!

I Know The Drill

Today I had my second BCG treatment for this round (two).  After having the appointment time change a few times, I arrived 10 minutes prior to my appointment and checked in.  The front desk was really understaffed today, but I was patient.

After my Covid screening, I was given a specimen jar and asked to provide a sample.  Although I haven't visually seen any blood, I was concerned that I might be disqualified if they did find some.  So I completed my task and returned to the waiting room.

About 10 minutes later, my name was called.  I was grilled on my identification information while following the medical professional to yet another examination room. After being asked if I was allergic to latex, iodine and any medication and answering negative.  I was told, "You've been here before so you probably know the drill." Yes, I know the drill.

Torri, the Nurse Practitioner arrived.  She was quite personable and bubbly.  We chatted about the weather while she arranged 'things'.  She did the procedure relatively painless and said, "You are done.  We'll see you next week."

I got home and managed to marinate for the full two hours then emptied my bladder.  I knew that my energy level would decrease as the day went on so I went to the recycling center, dropped off some outgoing mail and picked up a few thing at the store.

I made something to eat and started feeling kind of blah.  As predicted, my energy levels dropped and I was having frequent visits to produce a few drops, but feeling like I had much more.  Normal.

So I'm keeping a low profile tonight and just taking it easy.  I hope that things return to 'normal' tomorrow, although I have an early chiropractor appointment.  It is what it is.

More to come!

So Far...and Far Away

Since My Last Post 

I had a call from Anna, the scheduler for Northeast Urological.  Since I missed my first treatment of BCG, she said she would provide a new schedule for my upcoming treatments so I get my round of six.  Basically she said she would tack them on to the end of my current schedule.  She did say she would follow-up with confirmation via email and snail mail.  I also mentioned that I had a conflict on the 11th and was not able to make the treatment.  Once again she said she'd tack it on the end.  Cool.

Later that day I received two email confirmations; one appointment tacked on the end, but another for Monday the 9th.  I had recalled that they only do BCG treatments on Wednesdays so I was semi-skeptical on the Monday appointment.  So I was prepared to have this week's treatment on the Monday versus the Wednesday.

Monday came and I arrived at the office a bit before my appointment time.  Upon check in, I had mentioned that I was there for my BCG treatment.  The attendant looked puzzled as she looked at my 'chart'.  Then she said, "They just want a urine sample today."  I wasn't going to have an argument, but did mention that I generally provide samples the day of (with a few exceptions).  So I took my collection cup and completed my task.  On the way home, I realized that I left the specimen at the sink instead of placing it the depository cabinet.  I hope someone sees it and puts it where it's supposed to be.  (Someone did.  I received notice from the lab that the sample was 'routine', meaning no blood or infection).

Later that day, I received the snail mail confirmation.  I had to laugh.  In the envelope was two appointment cards.  Of course the one for this day was clearly marked 'urine drop off  from 8AM to 3PM.  The email had no mention of that.  Now I have to chase down another replacement appointment. [By the way, Mercury is in retrograde currently]. 

Consultation with Dr Mossanen

After a consultation with Dr Mehta, his office scheduled an appointment with Dr Matthew Mossanen.  He is affiliated with Mass General/Brigham and Women's.  He has a number of offices, but according to Dr Mehta, procedures are administered in Boston (for joy).  

My first consultation appointment was for 10AM in Foxborough.  Given the time of day and the work commute, I gave myself two hours to get there.  In preparation I looked up the address and reviewed the directions so I have it in my head what to expect.  Of course traffic was typical and there were the slowdowns at various intersections of major routes, but generally moved along.  

My GPS took me 495S to 3S to 128/95S to Route 1 (to Gillette).  As the crow flies, pretty direct, but that part of the world has spotty internet/phone signal.  The closer I got, the less I knew where I was heading.  It was almost 10 and I wasn't there yet and GPS had me turn onto a street that was very residential looking.  Par for the course, GPS decided to change the destination from 20 Patriot Place to 20 Patriot Circle (cul de sac with expensive homes, but no offices - or stadium).  I knew I was lost so I called the office, got in the automated phone maze and finally got someone who transferred me to an automated system for directions...in Spanish.  

I retraced my path to get back to route 1 hoping to see a human where I could ask for directions to Gillette.  All pavement and roads, but not one human could be found or seen.  So I drove on Route 1 looking for any signs to Gillette.  In the distance I could see the stadium, but no clear path to get there.  It was now 10:20AM.  I was seriously contemplating turning around and going home, but by chance I found a turn that bought me into the massive parking lot.  I meandered around and caught a glimpse of a sign that said "Health Center".  Of course there were signs everywhere indicating that you can't park here.  Finally I found a lot where it said parking for guests of Patriot Place.  I pulled in.

I noticed a slight incline and many restaurants, bars, stores, etc.  Then, hallelujah, Brigham and Women's sign.  I found the entrance, made the path to pick up a mask and sanitize my hands.  Found the information desk and was directed to the Urology Department.

Arrived to a small waiting room (not a soul waiting).  I walked up to the attendant and said, "Sorry I'm late, but I got lost.  I have an appointment at 10, but I know it's 10:30."

She asked my name, looked at the computer and said that she would check to see if they will still see me.  YES!  She told me to have a seat.  I didn't wait long before a nurse called my name and had me follow her to the vital sign station.  I had my weight recorded, blood pressure, pulse, temperature and answered some questions.  I was then asked to follow her to an examination room where Dr Mossanen would be seeing me.

I was happy to have finally arrived but a bit anxious. It wasn't long until Dr Mossanen arrived.  A young guy, very personable and engaging.

I had provided information from the questionnaires I completed online and we discussed my medical odyssey beginning from my breast cancer, multiple surgeries, AAA repair and finally my relationship with bladder cancer.  Not having my daily allotment of coffee and having had a commute from hell, it was tough bringing up the dates/time frame/and various doctors involved in this medical chapter.  But we were able to build a good time-line to help him understand my journey.

After having 4 TURBT's and one failed round of BCG, I had mentioned that I just started another round of BCG treatments.  He agreed and supported my current plan, but he did discuss some options, if BCG doesn't work.

He provided a web site: BCAN.ORG (Bladder Cancer Advocacy Network).  Quite informative.  I will be checking out the contents and I also sign up for their newsletter.  Dr Mossanen also talked about possible treatments which are chemotherapy, but unlike the chemo I had intravenously, this is administered like BCG.  He gave me two drugs to read about: Gemcitabine and Docetaxile.  Both are used to treat various cancers.  Of course I gravitate to the side effects.  So far I've been reading potential side effects when administered through the veins.  A few things I've read about being inducted into the bladder had some side effects listed, but not as scary as those caused by intravenous. 

Basically, if it came to this, I would be getting this in the Jamaica Plain location.  I'd marinate, void and be on my way.  Not happy about the location, but I'll worry about that later.  There are always unwanted side effects, I might lose my hair again...but this time for good.  And, other potential side effects that really are unpleasant.  More reading/research is in order.

So Dr. Mossanen was in agreement with my current plan.  He will obtain pathology reports, requested that I have a CT Urogram and have a tele-health visit in the Spring (after my BCG and next cystoscopy/TURBT is done.  [At this point, I was thinking that today's visit could have been done via telehealth...grrr]

So I have more reading to do.  More calls/correspondence regarding when and where I'd need the CT Urogram.  Once again, the more you know, the more you don't know.

More to come!

Some Semblance Of Order...Possibly?

Housekeeping

Since my last post I managed to catch some 'crap' going around.  I tested negative for Covid (twice), but this really threw me for a loop.  I began to feel poorly on New Year's Eve (day) and it went down hill from there.  The headache, the chills, the aches, the runny nose, the loss of appetite and general feeling of sh*t came on strong and lasted for a few days.  So I had yet another crappy holiday (minus Christmas with good friends).  

While being benched, I was fortunate that so many were willing to provide anything I needed to return to good health.  Other than myriad remedies and home grown brews, a friend dropped off some homemade chicken soup (very hearty) and fresh baked goodies.  There is something to said about the chicken soup cure. Each day now is better than the previous, but I do have a lingering post nasal drip and sporadic coughing spells.  Yes, this too will pass. 

I was able to reschedule my January 11th appointment to Monday, January 9th.  In addition, I have a new appointment tacked onto my BCG schedule that will bring me out to February 8th.  I logged on to my patient portal and completed all the questionnaires required for my appointment/consult with Dr Mossanen in Foxborough, next Wednesday.

Another Journey

After last week's false start, it was recommended that I provide a urine sample on Tuesday (which I did). Once again it was to be tested for the presence of blood in the urine.  Since the BCG vaccine cannot be introduced to the blood stream, it's imperative that I am not bleeding.  I heard nothing from the office so I felt pretty confident going in today.

I arrived and after check in and a re-scan of my medical coverage cards, I was told I had a credit so no co-pay.  (I'll take that.)  I was asked to provide yet another sample, which I gladly provided.  After which, I waited to be called.

My name was called and the nurse walked up to me and asked if I was feeling OK.  I know I had my temp taken and aced my covid SAT, but did say that I had a cold last week.  She said, we found some blood in my sample.  [CRAP! again].  She said he was going to talk to the doctor for guidance. Not long after a different person called my name.  I expected them to say it's not happening today, but she said,"Follow me."

Walking to the examination room I was tested on my DOB, name and address [Aced it again].  Prior to entering the examination room, the Nurse Practitioner, Kristine said, "I'll be right with you."

I was instructed to drop trow and sit on the table covering the uglies with picnic table sized napkin. Kristine came in and I inquired why I was getting the BCG when there was blood present in the urine.  She said, "It was microscopic.  You have bladder cancer. That would be the normal result, so the BCG induction was cleared to proceed."  I was ambivalent, but was eager to get this show on the road.

As usual, the procedure is quick, but very unpleasant.  Some administer it so much better than others.  But I was on my way.  At this time I didn't have my rescheduled date so I indicated that I might not be back for 2 weeks. [But I'll be back Monday].

I went home to marinate and I made the two hour mark. I'm attributing this to my having only one cup of coffee.  I'll have to remember that next time.

More to come!