Third Round Of Three

I had a dose of BCG this morning.  For this round, it was the third.  I'm happy that this round is done and grateful I don't have 6 rounds as I had in the past. As my body reminds me, this is cumulative, meaning the side effects get exponential with each subsequent dose.  For my first two rounds (other than having to deal with vertigo during number one) up until today, the side effects and recovery time had been quite manageable. However, the side effects have been quite pronounced today.  

After having an uneventful commute and in-office instillation by Jenna, I proceeded to do my two hour marination.  First hour was tolerable, but the second hour what quite uncomfortable.  Despite my preparations and 'eating light' yesterday, Mother Nature had a large deposit that needed to be released.  I tried to soldier through, but the pain of my colon pressing on my inflamed (and full) bladder was too much.  I barely made it to the 1 hr 35 minute mark.  In quite a bit of internal pain, I made it to the throne and did my business.  I took some UTI medicine immediately in hopes that it would start providing relief for the burning. I did note that I got home and 9 and by the time I gave up, it had been 11.  Two hours there, but shy of the last two roll arounds. The pain was just too much.

Since 11, I've not been far from the toilet.  Pretty much every 10 minutes, I had the urge and yielded very little (thimble full).  This time I could feel all my lymph nodes screaming and providing my body with what felt like electrical shocks. As visits transpired, I began to notice my passing clots (expected and normal reaction).  I was still waiting for the urine to start changing color (fluorescent orange) to indicate that the medicine (relief) was kicking in.  3 hours and very little orange tinge, but lots of clots, but at this point no blood.

I'm hoping the UTI meds begin to kick in and the clots clear up.  I have been drinking lots of water to flush out the system.

Other than these symptoms, I'm feeling pretty blah, the weather is really nice, so I haven't had any chills.  I hope things begin to calm down so I can take my walk.  We'll see.

So, my next step is to heal.  Then on July 31st, I'm scheduled to have an in-office cystoscopy.  Fingers crossed.

More to come!

Love It When Things Go Smoothly

Round Two Of Three

Made sure my alarm was set and turned on today.  Got up made black tea, read the paper, left early and got to my appointment with time to spare.  Check in was uneventful.  They collected my co-pay (even got a receipt).  I hardly waited anytime when I heard my name.

A 'new' guy escorted me to a familiar examination room.  Quizzed me on some vitals, then told me to drop trow to my ankles, cover up and wait for Jenna.  I don't recall having her before.

A few minutes transpired and Jenna arrived. (She looked familiar, but I wasn't certain). While looking at her file, she said, "You are here for your second BCG, right?" After my confirmation, she began to prepare her implements.  She was quick and there was very little discomfort.  Upon her completion, she asked if I knew about the two hour hold in.  I said, "All too well."  She chuckled and said she'll see me next week.

Ride home was uneventful and I did my two full hours of marination.  I needed to be close to the bathroom since I had the urge to go about every ten minutes (normal).  I had taken over-the-counter UTI medicine (AZO) and it usually takes about an hour to produce florescent orange pee.  This medication eases some of the burning and reduces the 'need to go' time.  I noticed that my supply needed replenishing so I bought more on eBay.  It should arrive early next week.  (Monday is a holiday, so Tuesday?)

So today was a blah day.  I did some recycling, loaded the dish washer, made blueberry muffins then a sandwich. I waited until later in the day to take my walk, but it wasn't as long, since I wanted to be close to home in case I had the urge.

More to come!

Are We Having Fun Yet?

Today was my first of three rounds of BCG.  Having gone through this many times before, I was already accustomed to all the unpleasantness, but am thankful for the treatment that 'works'.

Having an early appointment, I set my alarm for 7AM.  Unfortunately, I forgot to turn it on..DOH!  On the bright side, I was awake at 7:08AM so I lucked out.  But, the reason I was awake is the clincher.  

At 5AM, I had a call from nature, but as I stood from the bed, the room was spinning.  Just what I needed.  Vertigo decided to make a return.  I hadn't had an episode since January 2024.  I bumped into walls on the way to the bathroom, then was hoping I could find a good position where the dizziness would subside.  Luckily, I found one, but the anxiety of the episode and the first round of BCG kept me from falling asleep.  As I lay there thinking about things, I glanced at the clock and OMG, I'm late.

I stood and was greeted with dizziness.  I raised my head to a position where it was tolerable.   I was able to take my meds check my blood pressure and have a cup of green tree.  Each time I deviated from the 'safe' position, the spinning would start. I did manage to keep that position while driving, but as I needed to turn my head to watch for traffic and taking turns, I could feel the dizziness coming back.  I was happy that I had no stopping for the train or signal issues and arrived at the Urologist's office.

By this time I knew the 'safe' positions for my head.  So check in was uneventful.  It wasn't too long before I heard my name being called.  I was grilled for my information and brought to yet another examination room.  After taking some vitals, I was told to prepare myself for the instillation.

With pants down to my ankles and my head trying to keep in the safe spot, Torri (NP) arrived.  She has the best disposition.  Really bubbly personality and talked through the whole thing and before I knew it I was done.  She said, "By now you know about the two hour 'marination'.  I'll see you next week."

The ride home was uneventful and the dizziness appeared to calm down a little.  I started my two hour flip around and hoped that one of my positions wouldn't trigger the Vertigo.  There were a few times when I could feel it coming back, but I managed to avoid it.  I almost made the whole two hours, but nature had a delivery that was pressing on my bladder.  Really uncomfortable.  But I was able to empty myself completely.

Feeling kind of domestic, I paid bills online; made blueberry muffins; dropped off some recycling; did two loads of laundry and decided to finish my taxes.  I guess I should have waited on that last part.  H&R Block program told me there was an update.  Did that.  Continued.  Printed out a copy for my records.  Then was unsuccessful in eFiling.  First it said the servers where busy.  I waited then tried again.  Told me that the program needed to be updated.  AGAIN!  I tried 5 times.  (Definition of insanity is attempting the same thing expecting a different outcome.)  I was in no mood.  I printed everything out and I'll be mailing.  So tomorrow, after my dermatology appointment, I'll be at the post office.

As the day progressed the dizziness subsided.  I was all set to do the Epley Maneuver (used to move the canaliths out of the canals so they stop causing symptoms), but things calmed down.

So manged to get some things accomplished without caffeine today.  I hope I sleep well tonight and remember to turn on my alarm. 

As an aside, it only took about a week for my new medicare replacement card to arrive.  And true to form, my old one was right where it was supposed to be, but it was stuck on the back of another card.  I felt somewhat vindicated because it's not like me to lose things.  Now I have two cards.

More to come!

Shape Of Things To Come?

Late Night Squeeze

On Monday, March 31st, I arrived at the Methuen Holy Family Breast Cancer Care Unit (BCCU) for my annual mammogram.  From my previous blog, I had mentioned that this was originally scheduled for March 17th then rescheduled for the 19th (at their request), but a the last minute cancelled to accommodate their switch over to a new computer system. Stewart Health sold their two Holy Family hospitals to Lawrence General.  So with new ownership comes new systems, etc. But, I was not rescheduled and time had been running out.  I had an appointment with my oncologist already scheduled to review the results. So my primary care doctor gave me referral paperwork and I called to book the mammogram.

Probably due to the late hour, traffic was light and the hospital seemed like a ghost town.  Having been to the  BCCU a few times, I knew the location and arrived with 5 minutes to spare.  There was no one in waiting room, and check-in was quick.  I was given some paperwork to complete and as I was filling in inforation, a medical professional said, "I'll be with you shortly".  A few minutes later she returned and told me her name (didn't really hear it).  She told me she was going to be the technician.  She asked me to follow her.

We walked down to the mammogram room and after asking me to remove my shirt and undershirt, she pulled up my record and reviewed my vitals and asked a few questions. Finally we were ready.

She was very clear on how I should stand; how to lean in; and where to place my arms.  Not having much meat on my breast, she managed to get me into a position for the big squeeze.  Uncomfortable is not a strong enough word.  Just when I thought I was done, she asked me to change positions and place my arm 'just so'.  Squeezed again, then she said, "We are done".

She instructed me to dress and indicated that the results would be reviewed and sent to the doctor.  I too would receive something in the mail.  [In hind sight, I should have asked which doctor the results would be going to.  My primary care gave me the referral, but my oncologist needed the results.] 

I left and stopped at the front desk to book next year's appointment.  The attendant said once I receive the 'letter' with the results, I can book the appointment.  [hmmm]

Dana Farber

Today (4/2/25), I had my annual follow-up with Dr Mehta at Dana Farber, Methuen.  Their protocol was to wear a mask and be screened for Covid.  So everyone was masked.  It's been a few years since I've been in this situation, but it is what it is.

After being cleared to proceed, I checked in and the attendant indicated that they hadn't received the mammogram results.  I told her I had the mammogram Monday at Holy Family.  She then called them and although I only heard one side of the conversation, apparently there's no record.  After the attendant hung up, she indicated that they (Holy Family) are having problems with their computer system but whomever she was talking to said that I was a no show. Around this time, my name was being called.  The attendant said she was going to ask the doctor for guidance.  She told the other nurse to hold off. A few minutes later, I was told to follow the nurse and the doctor would still see me. 

I was weighed, measured and had my vitals checked.  After-which, I was brought to an examination room and waited about 10 minutes for the doctor to arrive.

Dr Mehta arrived and reiterated that he didn't have the results, but physically examined my nodes and breasts for lumps.  When finished, he said everything looks good.  He added, "A mammogram is just a test if there was something, it would be useful in doing a hands-on exam.  But he said, "You've been 10 years, so when it does surface, I feel confident that you are clear.  So I'll see you in a year."

He also indicated that these types of things will happen more often as smaller hospitals struggle with funding and staffing.  He said, "It would be a shame if you had to go to Boston for a mammogram". I said, "It would be more than a pain.  Let's hope it doesn't get that far."

On the way home, I provided a urine specimen at North East Urologic in anticipation of next week's round one of BCG. Fun, fun, fun!

More to come! 

POST SCRIPT: My mammogram results appeared in my portal. Mammogram was routine/clear!  I contacted my oncologist who confirmed that they had access to my files.  I also sent the results (PDF) through their secured messaging system within the portal. I was told it would be added to my file.  I also received an appointment for my next mammogram for 2026.

A Look See

The day started out ominously.  

I had an appointment for my in-office cystoscopy with Dr Previte at Northeast Urological in North Andover.  I gave myself plenty of time for travel and check in.  Traffic was heavy, but moving.  At my exit to Merrimack/Sutton St, traffic was at a stand-still.  I could see further up the road that the signal lights were flashing for an oncoming train.  Generally this only takes a few minutes, but things didn't seem right.  Impatient people were making a U-turn, while some dangerously went through the gates.  Others decided to take a side street to get around the signals.  However, I noticed an approaching police cruiser with lights flashing.  The cruiser proceeded to the side street and blocked traffic so no others could go this route.  Traffic began to mount on both sides of this major intersection.  I had thought about taking an alternative route, but figured others had the same thought so I'd once again be in grid-lock.

The police officer exited the cruiser and made their way to the crew assembled at the junction.  After a few minutes. traffic was allowed to cross through the lowered gates a few cars at a time.  Eventually I made it through only to get stuck at the next set of lights where cars were once again grid-locked because someone thought they were special and ended up blocking the road as they waited to move. I looked at the time and I had 5 minutes to spare.  So close but yet so far. 

Finally I was able to proceed.  I snagged a spot near the entrance and stood in line to check in. After my verifying information on file, I was asked for my insurance cards.  No problem.  I dug out my wallet and pulled out my secondary insurance card, but my Medicare Card was not where it was supposed to be.  I took everything out of my wallet (actually found a few gift cards that I had forgotten about), but no Medicare Card.  The attendant said, "Don't worry, I can find the number."  But I was discombobulated because I am very careful returning things like credit cads, license, etc to my wallet.  I even have an elastic band that I put on my hand until the items are replaced. I was running through my memories trying to determine when the last time I had it out.  Very disconcerting.

After I provided my specimen sample, I returned to the waiting room and once again started looking through my wallet.  However, my name was called.

After providing verbal verification of my vitals, I was brought to an all too familiar examination room and told, '"You know the drill.  Dr Previte will be right with you." So I dropped trow and assumed the position all the while trying to determine where I was last when the card was asked.

Dr Previte arrived and after some pleasantries and a run-down of prior procedures, he said let's take a look.

This time the monitor was working so I could see what he was seeing.  He moved the implement around (a bit uncomfortable).  He said things are looking good.  He pointed out the two diverticulum and once again I could see the ureter doing its thing. He said, "Things are looking good.  Let me look around once more to make sure I didn't miss anything."  Finally,  he exclaimed that I was clear.

He returned to his notes and started 'talking out' my treatment time table.  So, according to his notes, I am due for a next round of BCG in April, probably in-office cystoscopy in July, then ...another round of BCG in October and another cystoscopy in November.  According to his records that will bring me up to my 3 year treatment.  Provided all goes well, I'll be relegated on an annual 'look see'.

Now in my head, I thought this upcoming round of BCG would be my last.  Guess not.

While writing this I got a call indicating that my next round (of three) will begin April 9th with the next cystoscopy scheduled for July 31st.

I ordered a replacement Medicare card online.  We'll see how long it takes to arrive.

More to come!

 

 

It's The Time Of The Season

Happy Spring! 

Clocks have changed and we get glimpses of Spring weather every now and then.  However, today seems less Spring with a chill in the air and a Wintry mix.  Even a coating of snow is predicted before turning to all rain.

Not knowing what the weather would do to the commute, I got up a bit earlier and headed out to UMass, Worcester at 6:15AM to arrive at 8AM for my annual Abdominal Aortic Aneurysm ultra sound and follow up.  Having fasted since last night and not allowed to have coffee, my brain was just as cloudy and dark as the early morning.  Although the weather held off, the traffic was heavy, but moving with no issues.  I made good time and arrived at the parking garage at 7:15.  I took my sweet time and walked up three flights to the waiting area of the Ambulatory Unit/Vascular Surgery.

Being early, the normally bustling medical center was pretty much a ghost town with a few staff members rushing to get to their respective stations.  By the time I arrived at check in, I seemed to be the first patient to arrive.  Check in was uneventful and I was directed to wait to be called.  It didn't take too long before Caitlyn called my name.  After grilling me for my personal information, I was directed to lift my shirt and lay on the examination table.  She was quick.  (I was really appreciating the warmed gel used to guide the implement for the ultrasound).  With no audible gasps or sudden stopping (that translates to an 'Oh oh, found something), she exclaimed that we were done.  I was directed back to the waiting area.

It didn't take too long before another medical professional (didn't get the name) called me in for weighing, measuring and taking my vitals.  I must have had the white coat syndrome because my blood pressure was elevated. She said it was 147.  Yes that is high, since my daily readings are in the vicinity of 103-110.  She didn't seem too concerned.  She finished up and reviewed some information in my chart, then said Shauneen will be right in.

The Nurse Practitioner, Shauneen did arrive within minutes.  She said, "Things look good, but..."  She searched for a piece of paper and began sketching  an Aorta.  She drew in the stint and just below (she referred to as the ileus), she said there was some enlarging (both legs).  She said this was observed last year and it doesn't appear to have gotten larger, so "It's OK for now, but we will have to monitor it", she said.

Now I Googled ileus and didn't go down the rabbit hole.  But some of the things listed (as far as symptoms) I don't have.  So she said it's OK for now.  So I guess it's just something else to keep an eye on.  She said she'll see me in a year.  So there's no urgency, apparently.

So I have an appointment for next March.

Other Things In The Works

Last week I had my 6 month check in with my primary care doctor.  My cholesterol numbers are stellar and other health things appear in good order.  He did want me to have my booster for Tdap (Diphtheria, Tetanus and Whooping Cough) which I scheduled for today at Walgreens.

I had had two appointments scheduled and canceled for my annual mammogram due to the reorganization/change from Stewart to Lawrence General.  I called today and got an appointment for 3/31 in the evening.  I had been concerned because my oncologist wanted to have the results ready for review for my next appointment 4/2.  So that's in motion.

While I was at my 6 month, when asked if I had any question, I asked for guidance on a bump on my neck.  My dermatologist said it wasn't cancerous and thought it might be a cyst.  Dr Reese looked at it and said he could have it removed if it bothered me.  Actually there's no pain and it was only during scarf season that I even noticed it.  He said since there's no pain, you can leave it alone or make an appointment to have it removed.  "I think I'll wait", I said.

I also mentioned that my toe nails are too thick to cut and are now ingrown. He referred me to a podiatrist, Dr Greenblott.  So I have an appointment next week. 

More to come!

No Coal In My Stocking This Year

Great News!

Had a scheduled cystoscopy today.  Uneventful commute and relatively easy check in.  The wait wasn't too long.  After the obligatory specimen sample, I was called, grilled and lead to a familiar examination room.  After housekeeping issues, I prepared myself for Dr Previte.

I didn't wait too long before he arrived and reviewed his notes (as a recap).  He said my Cat Scan showed no surprises (normal), my specimen was free of blood cells and all things were looking up.  As he prepared his instruments we chatted about the Reading Symphony Orchestra's New World Symphony performance I attended early in November.  Dr Previte, who is second chair violinist, indicated that he will be on musical sabbatical during the Winter, but will return in the Spring.

During this conversation, there was some discomfort as I sensed intrusion and movement of his scope.  He proclaimed, "Your bladder is clear'.  He reiterated that he needed to keep an eye on my diverticulum (original spot of cancer).  A few moments later he said, "That's clear.  The BCG worked".

He removed the apparatus and went back to his notes.  He did say that I had another round of BCG to bring me up to 3 years of treatment.  He said it will be in April and a follow up cystoscopy probably in June.

In my mind I thought that this was the last round, but it is what it is. Unfortunately it will put a damper on my plans to visit the U.K. in the Spring.

As Dr Previte finished up, he extended his hand and shook it while saying Merry Christmas. I returned the seasonal dialogue and readied myself.

Sunny day with relatively mild temps greeted me as I returned to my car.  No coal in my stocking.

More to come!