Tomorrow will be the first week of chemo #2. I must admit that Dr. Mehta was on the money when he said that I would be fatigued. From last Saturday and continuing until today I've been so fatigued that I can barely do a thing except watch TV. I have managed to do some laundry and household chores, but not without having to stop and rest. Under normal circumstances I would be bouncing off the walls if I weren't doing something. I always have a running 'to do' list, but I'm selective (to the point of doing what's really necessary) in accomplishing anything on the list. Just typing this entry takes energy. My typing skills are suffering and each sentence needs a correction of my misspellings and typos. I've re-read some of my recounting of my first round of chemo and am hopeful that I'll begin to regain energy over time.
As for side effects, other than the fatigue, I'm not really hungry. I do have cravings from time to time and I'll try to satisfy those when I can. I was really wanting shrimp with cocktail sauce the other day. I recall having purchased some cooked and frozen shrimp and retrieved it from the freezer. Of course it needs to thaw. I was bummed to see that it had freezer burn. Not wanting to risk getting ill, I threw it all out. [My trash is going to be extra odoriferous this week.] Still hankering for shrimp, I ventured out to a local Market Basket only to find that all they had was the frozen variety - not the 'eat it now' kind. I resorted to imitation crab, but still have not opened the package. Really not the same.
I'm still experiencing that odd numbness of my forefinger and thumb and I've had to 'banana-up' to combat the charlie horses that have returned. I'm regular, but passing stools is painful. I hope that subsides and/or doesn't worsen. I've had gas pains too. [Not on my list of side effects.] I haven't had nausea, but thoughts of certain foods lessen my appetite. I've lost that 'water weight' again and an additional pound to boot. I've drunk so much flavored water that I'm beginning to turn from that too. I'm resorting to more milk.
I've had no problem sleeping and am keeping to a consistent schedule of sleeping and rising. Weather has been trending warmer with higher humidity, so I'm sure that is also affecting me. Tomorrow is supposed to be cooler and dryer. I'm looking forward to that and hopes that I have higher energy levels.
Things could be much worse. So I continue to do the little things and binge watch. [Almost done with Game of Thrones - five seasons. I'm storing up episodes of season two of True Detective and a few other premium channel series that seem interesting.]
More to come. Thanks for reading.
Wednesday, July 8, 2015
Saturday, July 4, 2015
Fourth of July - update
First off - Happy Independence Day!
Yesterday was the first full day of this second round of chemo. Surprisingly, I didn't have the lingering headache (yet) and my energy level seemed to be 'ok'. I rationalized and put off any mundane chores to another day (since I have time due to retirement). However, I have noticed some (apparent) side effects that I may have had a little of last time. Most notably, my sleep patterns are disrupted. Although I have periods of fatigue and take cat naps (very annoying when I'm watching something and have to 'rewind'), I haven't been able to get a good night's sleep.
Yesterday I was hoping to attend a party in Gloucester, so I tried to conserve all my energy so I could attend. It was a nice ride and a friend drove. We picked up another friend on the way. The weather was beautiful and there was virtually no traffic. We found a place to park with a little walking required, but exercise is good and the weather was very conducive.
The party (billed as an Extravaganza and it truly was) was well attended; had a band; was catered; had a fully stocked open/self service bar (drats no alcohol allowed for me - and I wasn't even the driver) and guests were also bringing in trays of home-made entrees and goodies. There were plenty of tents and seats for everyone who wanted to chow down. The buffet table was being constantly restocked so there wasn't a need for anything except for second and third helpings. Very relaxing.
By 6:15, most revelers were moving seats to the front of the house which was the perfect viewing spot for the parade that passed directly in front. One of the party hosts, who knows every one, entertained us by greeting each parade unit and sometimes marched in front or along side them waving old glory. Lots of sights, sounds and laughs. An excellent time (thanks to the Carls).
After the parade guest retreated to the food once again and of course the bar. For me it was a good time to leave and I'm glad my friends agreed. Traffic wasn't too bad but as we approach home we could see various municipal firework displays which could only mean that traffic would follow. Luckily I was able to convince the driver to take some back roads which allowed us to escape the bottle necks, but made the trip a bit longer.
I got home at 9:45 and decided to watch some TV. I wanted to drink water before bed so I could flush the chemo out (as directed). It was tough. I kept dozing off. Finally, I gave in and went to bed. I did not sleep well. Kept waking up to sounds of illegal fireworks and the occasional rowdy drive-by with unnecessary yelling. Well maybe necessary - it wast the 4th.
I got up at 2 AM because I was so restless. Yes, I fell asleep for a bit in the chair and then decided to go back to bed. Still tossing and turning, I think I finally got a few hours of uninterrupted sleep.
Unlike the weather predictions, the 4th wasn't sunny, but overcast with a chance of showers. I suppose it's just as well. I thought that I may mow the lawn, but my energy level is too low. I may not even run the washing machine. I'm feeling pretty blah and bloated. Last time I attributed the bloating to the prednisone, but I'm well off that. I know I ate last night, but I don't think that would equate to almost a five pound weight gain. I am after all, forcing more water than I generally drink and I feel puffy. However, my ankles are OK. If I were retaining water there, it would trigger a condition that needs medical attention. So I'll give it time and maybe over the next few days I'll pass this water weight through. (hopefully). I hate seeing those numbers on the scale.
The tingling in my thumb and forefinger is a bit more prevalent. (Weirdest thing - just annoying.) I'm slowly losing more hair elsewhere on my body - slowly but surely. I really don't have much of an appetite or willingness to anything today. I guess it's going to be one of those days that I become a lump and hope for a better day tomorrow.
Well at least I celebrated last night.
More to come.
Yesterday was the first full day of this second round of chemo. Surprisingly, I didn't have the lingering headache (yet) and my energy level seemed to be 'ok'. I rationalized and put off any mundane chores to another day (since I have time due to retirement). However, I have noticed some (apparent) side effects that I may have had a little of last time. Most notably, my sleep patterns are disrupted. Although I have periods of fatigue and take cat naps (very annoying when I'm watching something and have to 'rewind'), I haven't been able to get a good night's sleep.
Yesterday I was hoping to attend a party in Gloucester, so I tried to conserve all my energy so I could attend. It was a nice ride and a friend drove. We picked up another friend on the way. The weather was beautiful and there was virtually no traffic. We found a place to park with a little walking required, but exercise is good and the weather was very conducive.
The party (billed as an Extravaganza and it truly was) was well attended; had a band; was catered; had a fully stocked open/self service bar (drats no alcohol allowed for me - and I wasn't even the driver) and guests were also bringing in trays of home-made entrees and goodies. There were plenty of tents and seats for everyone who wanted to chow down. The buffet table was being constantly restocked so there wasn't a need for anything except for second and third helpings. Very relaxing.
By 6:15, most revelers were moving seats to the front of the house which was the perfect viewing spot for the parade that passed directly in front. One of the party hosts, who knows every one, entertained us by greeting each parade unit and sometimes marched in front or along side them waving old glory. Lots of sights, sounds and laughs. An excellent time (thanks to the Carls).
After the parade guest retreated to the food once again and of course the bar. For me it was a good time to leave and I'm glad my friends agreed. Traffic wasn't too bad but as we approach home we could see various municipal firework displays which could only mean that traffic would follow. Luckily I was able to convince the driver to take some back roads which allowed us to escape the bottle necks, but made the trip a bit longer.
I got home at 9:45 and decided to watch some TV. I wanted to drink water before bed so I could flush the chemo out (as directed). It was tough. I kept dozing off. Finally, I gave in and went to bed. I did not sleep well. Kept waking up to sounds of illegal fireworks and the occasional rowdy drive-by with unnecessary yelling. Well maybe necessary - it wast the 4th.
I got up at 2 AM because I was so restless. Yes, I fell asleep for a bit in the chair and then decided to go back to bed. Still tossing and turning, I think I finally got a few hours of uninterrupted sleep.
Unlike the weather predictions, the 4th wasn't sunny, but overcast with a chance of showers. I suppose it's just as well. I thought that I may mow the lawn, but my energy level is too low. I may not even run the washing machine. I'm feeling pretty blah and bloated. Last time I attributed the bloating to the prednisone, but I'm well off that. I know I ate last night, but I don't think that would equate to almost a five pound weight gain. I am after all, forcing more water than I generally drink and I feel puffy. However, my ankles are OK. If I were retaining water there, it would trigger a condition that needs medical attention. So I'll give it time and maybe over the next few days I'll pass this water weight through. (hopefully). I hate seeing those numbers on the scale.
The tingling in my thumb and forefinger is a bit more prevalent. (Weirdest thing - just annoying.) I'm slowly losing more hair elsewhere on my body - slowly but surely. I really don't have much of an appetite or willingness to anything today. I guess it's going to be one of those days that I become a lump and hope for a better day tomorrow.
Well at least I celebrated last night.
More to come.
Thursday, July 2, 2015
Chemo # 2
Last evening I had a call that my 'ride' to and from the hospital wouldn't happen due to unforeseen circumstances. Many have said that they would help if needed and I did a quick inventory (in my head) and decided to call my sister Donna. Unfortunately she had a commitment that couldn't be changed, but offered up (her husband, John) my brother-in-law. Reporting back later it appeared that he too had a commitment. We did have a back up plan in the event I couldn't find any one - I would drive myself and we'd figure out a way to get my car back after I was picked up. That was a strong plan, but luckily a call to a nearby friend yielded the plan placed into action. His father [Ed], 'snow-birds it' during the winter months and summers up here. 'He doesn't have anything planned, so he'll take you and pick you up." Excellent!
Ed arrived a few minutes early and I arrived at the Dana Farber Cancer unit - Methuen, ahead of my appointment. It seemed to be a good time as there were very few patients waiting and no one ahead of me at the reception. Other than the 'slow computers', the check in was uneventful and I soon sporting my wristband. "Have a seat and you'll be called", she said.
I sat and checked some email and texts and was called into the examination room for a check of my vitals. Yup, I was alive. "Dr Mehta will be right with you", I was told.
Dr Mehta arrived and noticed my bald head and said he 'liked the look' [while grinning]. While reviewing my notes he said that my labs came back normal [had a blood test yesterday]. He said that my bone marrow did well for the first round of chemo and I did not need a booster. However, he did caution me that I may not be as fortunate this round and may experience more fatigue. He added that he wanted to see me on July 14th. [I made a reference to Bastille Day and I didn't get the impression that he got the connection. To that I say: Let him eat cake.]
He continued and asked for an update on my charlie horse, thrush and numbness. "Bananas seem to be the cure for the charlie horse", I said. I explained that the numbness in my feet seems to have dissipated, but my thumb and forefinger still are 'weird'. The thrush did turn into a sore throat which I treated with asprin. It finally cleared up.
Dr. Mehta then said let me check you out. He looked into my mouth and after a few 'aaahs' he said the thrush is gone. [Yay]. He listened to my chest and heart and said all was good. I did add that my vein was still tender to the touch and asked if it made sense to use another vein so it could heal. He said there were four veins to choose from and it shouldn't be a problem. [Yay] So I ventured off to the Chemo room.
It was standing room only in the chemo room. Much like visiting a restaurant during the lunch or dinner rush there was a line waiting for vacated seats. Timing is everything because two were leaving and I was able to snag my previous chair (number 7). Not that I gamble or am superstitious - well maybe a little superstitious. I was thinking lucky sevens.
Elizabeth wasn't on duty and I overheard the nurses telling other patients that she had the weekend off to go to her beach house. Good for her, but I was thinking bad for me. So much for lucky sevens.
My executioner...errr, nurse for the day stopped by and asked my name and date of birth. She went to her computer and entered some information, left the room and then returned with a heaping helping of fluids. She said that she needed to 'set me up' [poke me with the IV feed] and asked if I had a preference (arm). I told her that some lymph nodes were removed from my left arm. She said, "Then the decision is already made." I added that the vein previously used needed more time to heal and Dr. Mehta said that we should use another. She said that she was going to use (while pointing) "this one". Perfect.
She got her 'works' out and proceeded set up the IV. I never liked to watch this part, so I averted my eyes and hoped for just a pinch. Many times in the past I was always given the warning, "You'll feel a pinch". No warning, but a declaration that she has bifocals and always looks over them. Not one to have corrective lenses, I didn't get what that meant. However, I soon had visions of Mr Magoo as I felt the need go into my arm's 'meat'. I looked and saw her pulling it out and pushing it in, then finally pulled out as she took gauze and pressed the freshly spilled blood. I asked, "What happened here?" She said, "I blew it. I went through the vein and backed out and messed it up." I said, 'So do we need to pick a different vein?" I was told that she was able to go past the first attempt site and use the same vein. "Ok, you are in charge." Jokingly she said, "Yes, never argue with the person with the needle in the their hands." She had better success this time. Maybe she opened her eyes while looking over the bifocals.
I two bags of fluids dripped into me then she said it's time for the chemo. That red Kool-ade measures high on my fright meter. And once again there were two huge syringes of it that had to be 'pushed' into me. We chit chatted a bit about Prince Edward Island (where her family is from) and other vacation destinations in the US. All interesting and really helped pass the time. I only looked down three times. Finally she said, "It's time for the Cyclophosphamide." Although it was clear in color, it scares just as much as the Adriamycin (Kool-ade). About an hour after the start of that last bag, I was told I could leave. [Yay]
I called for my ride home and wished various healthcare workers a safe and happy 4th.
Home now (obviously) and trying to drink plenty of fluids so I can flush that poison out. Just feeling kind of 'fuzzy brained and generally blahhh'
More to come.
Ed arrived a few minutes early and I arrived at the Dana Farber Cancer unit - Methuen, ahead of my appointment. It seemed to be a good time as there were very few patients waiting and no one ahead of me at the reception. Other than the 'slow computers', the check in was uneventful and I soon sporting my wristband. "Have a seat and you'll be called", she said.
I sat and checked some email and texts and was called into the examination room for a check of my vitals. Yup, I was alive. "Dr Mehta will be right with you", I was told.
Dr Mehta arrived and noticed my bald head and said he 'liked the look' [while grinning]. While reviewing my notes he said that my labs came back normal [had a blood test yesterday]. He said that my bone marrow did well for the first round of chemo and I did not need a booster. However, he did caution me that I may not be as fortunate this round and may experience more fatigue. He added that he wanted to see me on July 14th. [I made a reference to Bastille Day and I didn't get the impression that he got the connection. To that I say: Let him eat cake.]
He continued and asked for an update on my charlie horse, thrush and numbness. "Bananas seem to be the cure for the charlie horse", I said. I explained that the numbness in my feet seems to have dissipated, but my thumb and forefinger still are 'weird'. The thrush did turn into a sore throat which I treated with asprin. It finally cleared up.
Dr. Mehta then said let me check you out. He looked into my mouth and after a few 'aaahs' he said the thrush is gone. [Yay]. He listened to my chest and heart and said all was good. I did add that my vein was still tender to the touch and asked if it made sense to use another vein so it could heal. He said there were four veins to choose from and it shouldn't be a problem. [Yay] So I ventured off to the Chemo room.
It was standing room only in the chemo room. Much like visiting a restaurant during the lunch or dinner rush there was a line waiting for vacated seats. Timing is everything because two were leaving and I was able to snag my previous chair (number 7). Not that I gamble or am superstitious - well maybe a little superstitious. I was thinking lucky sevens.
Elizabeth wasn't on duty and I overheard the nurses telling other patients that she had the weekend off to go to her beach house. Good for her, but I was thinking bad for me. So much for lucky sevens.
My executioner...errr, nurse for the day stopped by and asked my name and date of birth. She went to her computer and entered some information, left the room and then returned with a heaping helping of fluids. She said that she needed to 'set me up' [poke me with the IV feed] and asked if I had a preference (arm). I told her that some lymph nodes were removed from my left arm. She said, "Then the decision is already made." I added that the vein previously used needed more time to heal and Dr. Mehta said that we should use another. She said that she was going to use (while pointing) "this one". Perfect.
She got her 'works' out and proceeded set up the IV. I never liked to watch this part, so I averted my eyes and hoped for just a pinch. Many times in the past I was always given the warning, "You'll feel a pinch". No warning, but a declaration that she has bifocals and always looks over them. Not one to have corrective lenses, I didn't get what that meant. However, I soon had visions of Mr Magoo as I felt the need go into my arm's 'meat'. I looked and saw her pulling it out and pushing it in, then finally pulled out as she took gauze and pressed the freshly spilled blood. I asked, "What happened here?" She said, "I blew it. I went through the vein and backed out and messed it up." I said, 'So do we need to pick a different vein?" I was told that she was able to go past the first attempt site and use the same vein. "Ok, you are in charge." Jokingly she said, "Yes, never argue with the person with the needle in the their hands." She had better success this time. Maybe she opened her eyes while looking over the bifocals.
I two bags of fluids dripped into me then she said it's time for the chemo. That red Kool-ade measures high on my fright meter. And once again there were two huge syringes of it that had to be 'pushed' into me. We chit chatted a bit about Prince Edward Island (where her family is from) and other vacation destinations in the US. All interesting and really helped pass the time. I only looked down three times. Finally she said, "It's time for the Cyclophosphamide." Although it was clear in color, it scares just as much as the Adriamycin (Kool-ade). About an hour after the start of that last bag, I was told I could leave. [Yay]
I called for my ride home and wished various healthcare workers a safe and happy 4th.
Home now (obviously) and trying to drink plenty of fluids so I can flush that poison out. Just feeling kind of 'fuzzy brained and generally blahhh'
More to come.
Wednesday, June 24, 2015
Follow-up with Dr. Chatson
After the bad weather and extreme humidity of the last few days, today was beautiful. It was all clear skis with warm dry air. This happened to coincide with my having a 'good day' which is always welcomed.
I had an appointment with Dr. Chatson to determine if I was healing properly. After checking in, it wasn't long before I was called from the waiting room for a check of my vitals. Great blood pressure readings, normal pulse and temperature. The nurse said, "The doctor will be right with you."
Shortly after, Dr Chatson came into the examination room and asked how I was doing and tolerating the chemo. "Tolerating is a good word," I said then proceeded to talk about my good and bad days as well as the general experience. He said, "The chemo is cumulative so it's expected that this round would be tolerable." [I'm beginning to have disdain for the word 'cumulative' - right now it's in the same category as 'it depends'.]
Shifting gears, he said, "Ok, take off your shirt so I can see how you are healing." Now there's a very clear distinction between the viewer and the artist. All things considered, I thought I was healing well and I am. However, the artist was very quiet as he held his gaze on his future 'work'.
He pressed certain areas and asked that I hold my arms a certain way as he inspected. He then said, "Let's look in the mirror together and I describe what I see and what I will do."
Looking at my (healthy) right side, he said he would 'liposuction' various areas (while pointing) to make that side more symmetric. He said he may have to cut and remove some internal mass. He said, "I would cut just below the aureola and remove mass/structures. [I should have asked if I would be needing my favorite drain.] As we shared the view he motioned to the concave breast and said he would take fat cells from (motioning to) my stomach area. He said he didn't want to use any of the fat from the surgical area.
Earlier I recall his saying that this would require two surgeries, but neither as massive as the mastectomy. [Thank heavens.]
We talked about timing and he reaffirmed that it would have to be after the chemo and recovery period. He said that chemo does things to the body and that the recovery period will allow me to reach my stabilized body mass. So he asked that I come back at the end of August.
I told him that I had a concern with insurance coverage seeing that this would be happening up to six months after receiving the first approval. He understood and said that he would create another case. To do this he would need some new pictures of the 'defect'. He left to get his camera and returned for my photo shoot. After about a dozen shots, he said, "That will do it."
He told me he would submit the case and let me know of the results. In the interim, he said, "Good luck with the rest of your chemo treatments."
I scheduled an appointment for the last Wednesday in August.
More to come on this front.
I had an appointment with Dr. Chatson to determine if I was healing properly. After checking in, it wasn't long before I was called from the waiting room for a check of my vitals. Great blood pressure readings, normal pulse and temperature. The nurse said, "The doctor will be right with you."
Shortly after, Dr Chatson came into the examination room and asked how I was doing and tolerating the chemo. "Tolerating is a good word," I said then proceeded to talk about my good and bad days as well as the general experience. He said, "The chemo is cumulative so it's expected that this round would be tolerable." [I'm beginning to have disdain for the word 'cumulative' - right now it's in the same category as 'it depends'.]
Shifting gears, he said, "Ok, take off your shirt so I can see how you are healing." Now there's a very clear distinction between the viewer and the artist. All things considered, I thought I was healing well and I am. However, the artist was very quiet as he held his gaze on his future 'work'.
He pressed certain areas and asked that I hold my arms a certain way as he inspected. He then said, "Let's look in the mirror together and I describe what I see and what I will do."
Looking at my (healthy) right side, he said he would 'liposuction' various areas (while pointing) to make that side more symmetric. He said he may have to cut and remove some internal mass. He said, "I would cut just below the aureola and remove mass/structures. [I should have asked if I would be needing my favorite drain.] As we shared the view he motioned to the concave breast and said he would take fat cells from (motioning to) my stomach area. He said he didn't want to use any of the fat from the surgical area.
Earlier I recall his saying that this would require two surgeries, but neither as massive as the mastectomy. [Thank heavens.]
We talked about timing and he reaffirmed that it would have to be after the chemo and recovery period. He said that chemo does things to the body and that the recovery period will allow me to reach my stabilized body mass. So he asked that I come back at the end of August.
I told him that I had a concern with insurance coverage seeing that this would be happening up to six months after receiving the first approval. He understood and said that he would create another case. To do this he would need some new pictures of the 'defect'. He left to get his camera and returned for my photo shoot. After about a dozen shots, he said, "That will do it."
He told me he would submit the case and let me know of the results. In the interim, he said, "Good luck with the rest of your chemo treatments."
I scheduled an appointment for the last Wednesday in August.
More to come on this front.
Good days and bad days
Although my blood test results were 'normal' that might equate to being the 'acceptable average'. I'm not certain if normal is 'my normal'. That said, I can only attest to my having good days and bad days.
On good days, I seem to have energy and feel generally 'good'. I wake early. Have coffee. Create my 'list' and seem to be able to accomplish any task I begin and am able to finish my 'list' of things to do. If the sun is out and the air is dry I tend to thrive and all is right with the world.
Conversely, on bad days I can't seem to get into gear or get out of my own way. I feel lethargic, have low energy levels and talk myself out of doing or delaying any task unless it's critical or urgent. I feel out of sorts and tend to take many cat naps while channel surfing. On rainy days, this is exacerbated. I may have a day or two of these 'bad' days in a row and apparently for no known reason begin to feel good. I'm still trying to figure my new bio-rhythms and determine what the triggers are for feeling good and feeling bad.
Given I'm at the end of my first chemo cycle, I've noted lingering symptoms/side effects including: muscle spasms (charlie horse) which seems to be somewhat better since I've begun eating a banana a day; numbness in my thumb and forefinger; numbness in the balls of my feet (although diminishing); soreness in the area where the chemo was delivered (vein) by IV; occasional but ongoing sniffles; thrush of the throat (mitigated with baking soda and water rinse). In addition I've noted some new issues that may be a side effect: split skin in my oral cavity (not visible but noticeable when I have something acidic like vinegar); acne (in the strangest places).
I am making the most of my good and bad days though. I have picked up my guitar a few times (first time since February). I lost my callouses, so I'm driven to get those back. I researched home network storage (NAS) and will be setting that up so I can cancel some of my cloud storage for pay services. When energy is low, I binge watch series on Netflix or On Demand. I'm currently on season two of Game of Thrones. [I highly recommend this series if you haven't seen it.]
Day one of my retirement starts a week from today - July 1. Wow!
On good days, I seem to have energy and feel generally 'good'. I wake early. Have coffee. Create my 'list' and seem to be able to accomplish any task I begin and am able to finish my 'list' of things to do. If the sun is out and the air is dry I tend to thrive and all is right with the world.
Conversely, on bad days I can't seem to get into gear or get out of my own way. I feel lethargic, have low energy levels and talk myself out of doing or delaying any task unless it's critical or urgent. I feel out of sorts and tend to take many cat naps while channel surfing. On rainy days, this is exacerbated. I may have a day or two of these 'bad' days in a row and apparently for no known reason begin to feel good. I'm still trying to figure my new bio-rhythms and determine what the triggers are for feeling good and feeling bad.
Given I'm at the end of my first chemo cycle, I've noted lingering symptoms/side effects including: muscle spasms (charlie horse) which seems to be somewhat better since I've begun eating a banana a day; numbness in my thumb and forefinger; numbness in the balls of my feet (although diminishing); soreness in the area where the chemo was delivered (vein) by IV; occasional but ongoing sniffles; thrush of the throat (mitigated with baking soda and water rinse). In addition I've noted some new issues that may be a side effect: split skin in my oral cavity (not visible but noticeable when I have something acidic like vinegar); acne (in the strangest places).
I am making the most of my good and bad days though. I have picked up my guitar a few times (first time since February). I lost my callouses, so I'm driven to get those back. I researched home network storage (NAS) and will be setting that up so I can cancel some of my cloud storage for pay services. When energy is low, I binge watch series on Netflix or On Demand. I'm currently on season two of Game of Thrones. [I highly recommend this series if you haven't seen it.]
Day one of my retirement starts a week from today - July 1. Wow!
Thursday, June 18, 2015
One week check-up with Dr. Mehta
Arrived today for my appointment at Dana Farber, Methuen. Clearly I'm becoming a regular. I'm even becoming familiar with other patients' comings and goings. At the reception/check-in all I needed to say was I was here for my appointment with Dr. Mehta. She didn't even ask my name, but did ask my date of birth and a few other security questions. My wrist bracelet was pre-printed and was soon on my wrist. I had mentioned that I needed labs and was told that I would be called shortly for my blood drawer.
I hadn't waited too long when a nurse (Connie) called for Richard P. [Not just Richard? Maybe there were more than one Richard in the waiting room.]
Connie walked me to an adjacent room where she said, "Oh, I took your blood last week." And before I knew it the pinch and blood draw was done. Back to the waiting room.
About ten minutes later another nurse called out Richard and both myself and the guy next to me sat at attention. The nurse then said Richard P. [Two Richards confirmed.] I followed her to the examination room and had a weighed in. I was back to my 'normal' weight having lost that 10 pounds of water retention due to the prednisone. Temp and blood pressure were good too. "Dr. Mehta is finishing up with another patient and will be with you shortly." No problem, I'll wait, I said.
Almost 15 minutes later, Dr Mehta arrived and asked, "How are things going?" I said, "On the plus side, I had no symptoms of nausea or vomiting. Had an appetite, was regular, and was sleeping alright." However, I did mention that I have been getting easily fatigued. Regular activities could wipe me out for the day leading me to sitting and resting in my chair. I had tried to determine my limits, but often found that it was too much. Some days were better than others too.
I had mentioned that I re-read the possible side effects/symptoms and had experienced a numbness in my thumb and forefinger of my left hand. In addition, the balls of my feet felt numb and tingly. Nothing that would limit my walking or standing and not to the point of any pain, but I was concerned. I had also experienced some tightness in my chest last weekend, but that had passed after I was able to belch (from drinking a ginger-ale). I was also experiencing 'charlie horses' in both my calves mostly when I was sleeping. And finally told him of a strange nagging pain on my left side near my large intestine.
Dr. Mehta said that neuropathy is symmetric and he has never heard of it manifesting on one side. He mentioned again that the chemo is cumulative and he didn't expect any of those types of side effects during this initial dose. He also added that he didn't expect them at all. [Sure hope he's right.]
As for the nagging pain or the 'charlie horse' he didn't seem too concerned. He said the blood test didn't show a decrease in potassium, but advised that I eat bananas.
He said that my blood test result came back 'normal levels'. So I said, "Then I've reached Nadir already?" Dr. Mehta said, "the dosage was the correct amount for your body to fight." So I asked, "My fatigue is a result of my body fighting the chemo and creating white and red blood cells and platelets?" He said, "most likely."
He listened to my breathing, heart beat and looked into my mouth. He did notice a little rush in my throat which he instructed me to gargle with warm water and baking soda.
He then told me that I should be ready for my next chemo on July 2. He wants my labs done on the first of July so the results can be used to determine the next dose. "Happy 4th of July to me," I said. Dr Mehta said I should be fine and go on to enjoy living. [Good advice]
Remembering one thing, I said, "Speaking of chemo. I noticed that the vein used for the last dose was a bit red and sore to the touch." He asked if there was any spillage. I said no. He looked and pressed the area (a little uncomfortable), but said, "That's healed." [OK. I hope in two weeks it will look and feel even better.]
So this 62 year old body is a fighter. I'm hopeful to regain strength and stamina going forward.
More to come.
I hadn't waited too long when a nurse (Connie) called for Richard P. [Not just Richard? Maybe there were more than one Richard in the waiting room.]
Connie walked me to an adjacent room where she said, "Oh, I took your blood last week." And before I knew it the pinch and blood draw was done. Back to the waiting room.
About ten minutes later another nurse called out Richard and both myself and the guy next to me sat at attention. The nurse then said Richard P. [Two Richards confirmed.] I followed her to the examination room and had a weighed in. I was back to my 'normal' weight having lost that 10 pounds of water retention due to the prednisone. Temp and blood pressure were good too. "Dr. Mehta is finishing up with another patient and will be with you shortly." No problem, I'll wait, I said.
Almost 15 minutes later, Dr Mehta arrived and asked, "How are things going?" I said, "On the plus side, I had no symptoms of nausea or vomiting. Had an appetite, was regular, and was sleeping alright." However, I did mention that I have been getting easily fatigued. Regular activities could wipe me out for the day leading me to sitting and resting in my chair. I had tried to determine my limits, but often found that it was too much. Some days were better than others too.
I had mentioned that I re-read the possible side effects/symptoms and had experienced a numbness in my thumb and forefinger of my left hand. In addition, the balls of my feet felt numb and tingly. Nothing that would limit my walking or standing and not to the point of any pain, but I was concerned. I had also experienced some tightness in my chest last weekend, but that had passed after I was able to belch (from drinking a ginger-ale). I was also experiencing 'charlie horses' in both my calves mostly when I was sleeping. And finally told him of a strange nagging pain on my left side near my large intestine.
Dr. Mehta said that neuropathy is symmetric and he has never heard of it manifesting on one side. He mentioned again that the chemo is cumulative and he didn't expect any of those types of side effects during this initial dose. He also added that he didn't expect them at all. [Sure hope he's right.]
As for the nagging pain or the 'charlie horse' he didn't seem too concerned. He said the blood test didn't show a decrease in potassium, but advised that I eat bananas.
He said that my blood test result came back 'normal levels'. So I said, "Then I've reached Nadir already?" Dr. Mehta said, "the dosage was the correct amount for your body to fight." So I asked, "My fatigue is a result of my body fighting the chemo and creating white and red blood cells and platelets?" He said, "most likely."
He listened to my breathing, heart beat and looked into my mouth. He did notice a little rush in my throat which he instructed me to gargle with warm water and baking soda.
He then told me that I should be ready for my next chemo on July 2. He wants my labs done on the first of July so the results can be used to determine the next dose. "Happy 4th of July to me," I said. Dr Mehta said I should be fine and go on to enjoy living. [Good advice]
Remembering one thing, I said, "Speaking of chemo. I noticed that the vein used for the last dose was a bit red and sore to the touch." He asked if there was any spillage. I said no. He looked and pressed the area (a little uncomfortable), but said, "That's healed." [OK. I hope in two weeks it will look and feel even better.]
So this 62 year old body is a fighter. I'm hopeful to regain strength and stamina going forward.
More to come.
Sunday, June 14, 2015
Day three status update
Since Thursday's chemo treatment I've been keenly in-tune with the changes taking place in my body. Not knowing what to expect next, I've been religious about taking my temperature three times daily, drinking plenty of fluids and noting all things general.
At this writing, I can say that the medication for anti-nausea administered Thursday has worked fantastically. I have had an appetite and have graduated from a very bland diet to an almost 'regular' diet. However, I'm not jumping off into the Szechuan or Mexican cuisine just yet - not that I have a hankering or anything.
According to my literature of possible side effects, I have been exhibiting some. I have had a lingering headache, slight sore throat and get easily listless with little effort exuded. Thankfully, I'm regular and have not had to open the Miralax or even the Kaopectate for that matter. But, I am generally feeling out of sorts. My sleep patterns are out of step, I seem to dropping things and feel achy from time to time. According to my instructions, I'm to brush my teeth (and tougue) four times a day as well as gargle so to ward off germs that could cause mouth sores.
One disturbing side effect is a general numbness to my left forefinger and thumb. Not deadening, but more tingly. My paperwork did have a section of side effects not found in clinical trials and neuropathy was listed. The remedy is to have the next dose customized as to not promote that (and other unwanted or untreatable side effects).
I was told on Thursday that the anti-nausea drugs in my system should be used up by my body today (Sunday). I'm not sure if I will need to resort to the two prescriptions I have on hand. I'll have to wait and see.
On the bright side, the weather has been really nice and conducive to taking it easy. So I'm going with the flow and doing just that.
More to come.
At this writing, I can say that the medication for anti-nausea administered Thursday has worked fantastically. I have had an appetite and have graduated from a very bland diet to an almost 'regular' diet. However, I'm not jumping off into the Szechuan or Mexican cuisine just yet - not that I have a hankering or anything.
According to my literature of possible side effects, I have been exhibiting some. I have had a lingering headache, slight sore throat and get easily listless with little effort exuded. Thankfully, I'm regular and have not had to open the Miralax or even the Kaopectate for that matter. But, I am generally feeling out of sorts. My sleep patterns are out of step, I seem to dropping things and feel achy from time to time. According to my instructions, I'm to brush my teeth (and tougue) four times a day as well as gargle so to ward off germs that could cause mouth sores.
One disturbing side effect is a general numbness to my left forefinger and thumb. Not deadening, but more tingly. My paperwork did have a section of side effects not found in clinical trials and neuropathy was listed. The remedy is to have the next dose customized as to not promote that (and other unwanted or untreatable side effects).
I was told on Thursday that the anti-nausea drugs in my system should be used up by my body today (Sunday). I'm not sure if I will need to resort to the two prescriptions I have on hand. I'll have to wait and see.
On the bright side, the weather has been really nice and conducive to taking it easy. So I'm going with the flow and doing just that.
More to come.
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