2016 Year End - Update

What a year 2016 was.  So many musicians and public figures have passed and with a new President being sworn in in less than a month who knows what will happen next.  On the health front, 2016 was maintenance mode for me.  I guess it defined the new normal and I'm now learning how to deal with the after effects of chemo.  Unfortunately, my Triple A has demanded attention so I'll be facing the new challenges that are presented.

I had a CAT scan performed today at Holy Family.  There has been a threat of bad weather, so I'm glad it was scheduled early.  Happily there were not too many 'patients' waiting and I was taken before I had a chance to read the first page of my newspaper.

Being escorted to the imaging room, I was asked my name and date of birth while the medical technician reviewed my chart.  "So we are looking at the abdominal aneurysm today", she said? Answering to the affirmative, I was asked, "Have you had this done before?" and "Have you had any adverse reactions to the dye?"  "Yes, I'm a repeat customer and No, I've had no problems in the past," I said.

As I positioned myself on the very narrow scanning bed, I was asked which arm I preferred.  Given my node removal on my left, I said, "You only have one choice, my right."  She began to tie off my circulation and started thumping at my veins.  [Last week's blood draw resulted in some bruising, so I'm sure the vein was not in the best shape.]  She announced that there would be a pinch.  Ouch!

She asked, "Does that hurt?"  I said it felt like it was in the meat.  She quickly removed the needle and began looking for another area to poke.  I had mentioned the blood draw last week and she indicated she could see where the hole was.

It seemed to take quite a bit of time and lots of 'thumping', but she decided to 'go in' at my wrist.  She needed to remove my patient ID bracelet.  She 'got in' and asked, "Does that hurt?".  I said, "It's just very uncomfortable."  I was told that I would feel warmth as the IV fluid entered my body.  I did.

She brought my arms above my head and had them resting on the pillow.  She said, "I'm going to take some images without the dye.  You'll hear a voice telling you to breath in and hold your breath, then exhale."  She left the room and after a few passes, she returned.  "OK, I'm going to give you the dye.  You'll feel hot", she said before leaving once again.  I could definitely feel the heat spread through my body.  It was an oddly disturbing feeling.  But it didn't last too long and the machine shuttled me in and out until I heard her say, "We're done."

Returning to the room she removed the needle and tightly wrapped my wrist with a flexible bandage.  She wished me a happy new year and instructed me to drink plenty of water to flush out the dye.

Now the waiting game.  More to come.

Happy New Year!

pre-Winter Solstice Update

12/21  marks the last day of Fall and tomorrow (12/22) , the first full day of Winter: The Winter Solstice.  I'm looking forward to gaining a few more moments of daylight as the days progress.  Unfortunately, the Winter brings my least favorite weather: snow; cold; ice; and host of other meteorological 'joys' that demand immediate attention. As has been the case, time will fly by and we'll be changing the clocks ahead.  Until then: wait and see.

I had my follow-up visit with Dr. Pare for my abdominal aortic aneurysm (Triple A).  Six months ago I was given good news that my malady had no changes in size.  Unfortunately, I did not receive the same prognosis after today's ultra sound.

Dr. Pare said, "Last time your aneurysm was about 4.8 to 4.9 cm. Since then it is now measuring 5 to 5.1 cm.  I don't want to alarm you, but we are now at the point were we need more information.  I will order a CAT scan at Holy Family to have a better view.  Based on that, we can make a determination on the next step.  I believe that a relatively non-invasive stent can be placed at the site.  Let's see what the CAT scan shows. We'll make an appointment today for sometime in January."  He asked if I had heart troubles, pains, shortness of breath, to which I responded no.  I did say that there is a history of heart disease in my family. After wishing me happy holidays, I was told to button up and see his assistant on the way out.

I walked by the assistant's office when I heard my name being called. I went in and she (didn't get her name - she had an accent) told me that I would need blood work and insurance authorization before scheduling.  In addition, I would need a follow-up with Dr. Pare after the scan.  She will call me over the next few days once the insurance company gives approval.  However, she said that I could go anytime for blood work.  While I was in Methuen, I decided to head to Holy Family to get the blood done.

All of my blood work had been done at the Dana Farber Cancer Care unit, so I went there first, but I was directed to the main hospital.  Upon entering the lobby, I was greeted by a woman who looked at my work order and directed me to the lower level.  I found room G-21 and immediately recalled that I was there during the reconstruction of the Dana Farber lab.  I entered, spoke with the reception and was told to wait to be called.  They weren't busy, but I waited almost a half hour.  It was lunch time.

A woman walked by and asked if I was there for blood work. [Well dah!!!] Answering yes, she then invited me into her lair.  She went right to work and drew blood with a minimal amount of discomfort.  Merry Christmas, she said as I left.

So now it's a waiting game.  Depending on the results and prognosis following the CAT scan, if I do need a procedure, I will contact St. Elizabeth's in Brighton.  I originally went there, but was told to 'take care of the cancer first'.  I got the baseline images for the Triple A, at Dr Pare's only out of convenience.  If there was no change (as was the case up until today), I would continue to have it monitored locally.  Now let's see what the CAT scan shows.

Not the Christmas gift I was hoping for.  More to come.

Mammogram anyone?

Arrived at Holy Family's Breast Cancer Care unit for my (I guess it will be) annual mammogram.  It was quite busy in the waiting room, but I needed to complete some paperwork so the wait seemed lessened by the time it took me to complete the task.  While answering the questions or placing N/A for answers ( - When was your last period?), I sensed some hubbub about a machine and/or computers not working.  Lovely.

After almost a 45 minute wait, I was called in.  I followed the technician to an imaging room and was asked to remove my shirt(s).  After the obligatory questions to determine if I am the correct patient and that the proper procedure will be performed there was some question as to which side was going to be imaged.  I was under the impression that both sides would be done. However, the order stated that just the left breast would be done.  There seemed to be some confusion as to which left - mine or hers.

[Recollection of the Three Stooges - "Walla Walla" episode came to mind. The Stooges needed to open a wall on the left. Of course depending on how you were facing both sides could be considered the 'left'. They ended up opening both sides.]

She left the room to get clarification.  While waiting bare-chested, I began to get chilled since the AC was keeping the electronics cool.  Not too long after, she returned and said it was my left (non-cancerous) breast. It makes sense now considering the right one was removed and there was now no breast tissue that could be considered cancerous.  While waiting there chilled, she was having trouble with the machine.  Feeling sorry for me, she asked that I place my shirt over my shoulders.  After some fussing with the machine and related PC she determined that it was not operational.  I was escorted to another room and was instructed to stand in front of the imaging machine.  After some very uncomfortable squeezing and pinching, I was done.

She asked that I wait in yet another room, while the doctor/technician reviewed the images to ensure that they were 'good enough'.  Thank heavens they were.  I was given the green light to get dressed and be on my way. Glad that's done.

More to come.

[Post Script: I received a letter a few days after this mammogram indicating that no cancer was found/detected.]

Icing on the cake?

I had my 6 month follow-up with Dr. Chatson today.  All staff members had mentioned that they couldn't believe it's been that long since my last visit.

After my vitals check, Dr. Chatson's assistant, Jude was making some chit-chat as she recorded my results.  She had mentioned that Kelley, the Physician's Assistant had recently departed the practice.  A new P.A. is now on board, but I did not meet her - yet. Jude left me and indicated that Dr. Chatson would be right in.

And it was true, he came right in.  After exchanging pleasantries he asked me to remove my shirt(s). As I was disrobing, he said, "I was looking at your chart notes and we were going to see if the new nipple needed to be reduced or if any other 'sculpting' was needed." Upon seeing my bare chest he exclaimed, "This looks very good.  I'm happy with the shaping (sculpting) and the nipple had receded (somewhat).  So there's no need for a reduction."  I was happy to hear this, since I was not looking forward to any more cutting and healing. He then asked me to re-dress. While I was dressing he explained the next step - tattooing. 

He said, "Tattooing is a half hour procedure performed under local anesthetic where I will attempt to get the aureola and nipple color as close to the other."  He asked that I schedule something after January.  He wished me a Merry Christmas and a Happy New Year and said he'd see me early next year.

On my way out the receptionist was already looking for a time for my tattooing and finally settled on February 22nd. So this next step will be very cosmetic, much like icing on the cake. 

More to come.

And the beat goes on....

La dee dah dee dee; la dee dah dee dah

Had our first 'shovel-able' snow yesterday.  Was supposed to be a dusting then turn to rain.  Wrong!  How about 3+ inches of heavy wet snow?  It is what it is - or was, for that matter.

Today I had my 6 month check-up with Dr. Mehta at Dana Farber, Methuen.  After check-in and vitals check, I was greeted by a smiling Dr. Mehta.  Right away he got to business asking me how I was doing and how my side effects were progressing.

I told him that the neuropathy of my feet appeared to be getting 'worse' on my left foot. So much so that I was not walking correctly and may have injured my heel (somehow).  Since this had just happened a few days ago, I've been refraining from my daily walks.  As a result, my muscle spasms have increased.  The odd neuropathy in my finger thumb continues to exhibit a cycle on its own [that I'm trying to figure out - with no luck.]

Dr. Mehta said, "The neuropathy is a result of the chemo and not a side effect of Tamoxifen (which was not my understanding)."  He continued, "Tamoxifen does not 'go after' new cells like the chemo.  It goes after a specific type of receptor cell.  In your case, the estrogen receptor."  He asked if I had seen a neurologist.  To which I answered, no.  He then indicated that he would refer me to Dr. Ross.

Dr. Mehta asked that I remove my shirt(s) so he could examine me.  Upon completion of my partial disrobe, he said, "Wow, he did a great job on the reconstruction.  It looks completely normal."  That was nice to hear especially since I have an appointment with Dr. Chatson tomorrow morning.  I'm hoping he has the same reaction.

As Dr. Mehta was examining me and feeling for 'lumps', I had mentioned that I had seen Dr. Moore last week and requested that I have a mammogram (also scheduled for tomorrow).  I told him Dr. Moore performed a similar exam and said he found nothing unusual.  Dr. Mehta then said, "I'm going to say the same thing."  He then asked about any other side effects specifically hot flashes.  I admitted that I have had few episodes but they were few and far between.  He said that if they become too numerous, I could take ginseng. [Interesting.]

He said that he would see me in six months and he would also refer me to Dr. Ross.  I re-dressed and proceeded to check out.  While I was checking out the healthcare associate was on the phone with Dr. Ross's office registering me as a new patient.  Shortly after she asked if February 2nd was OK.  I said, yes.

So the beat goes on.   More to come.

Annual Follow-up with Dr. Moore

The end of the year seems to accelerate faster and faster.  It's hard to believe it's already been a year since I last saw Dr. Moore.

I had my annual follow-up today and was examined for anomalies in my breasts and arm pits.  Last month after having a very bad cold, my lymph glands were swollen and tender.  But thankfully (as I found from my internet research), they were 'doing their job' and draining.  I had noticed last week that I was no longer having those symptoms.  I did tell the doctor that my heightened awareness of my body's changes always makes me think that the cancer is returning.  Well he didn't find anything 'unusual'.  However, he asked when I last had a mammogram.  I believe that was when the lump was first discovered (a year ago March).

Doctor Moore requested that I have a mammogram and scheduled it for next week at the Breast Care Center of Holy Family in Methuen.  He wanted both breasts done so he can have a base line.  He also wants me to have one next year before my follow-up so he can compare the two for changes.

I had mentioned that there wasn't much 'meat' on my left (reconstructed) breast.  He said, "There's still tissue".  [I'm sure I'll have an interesting report following the mammogram.]

So next week will be busy with two doctor visits (Mehta and Chatson) and a mammogram.

More to come.

November - Check-in

Well the scary season is over (Halloween and the election).  Unlike costumes that are put away until next year, it will be extremely difficult for everyone to stow away our political costumes and come together for a common cause.  The coming days/months will demonstrate how well we will do.  Optimism persists despite the prevalent feelings we share.

The Fall foliage appears to be holding on (literally).  There are so many trees still with leaves.  There are some vibrant colors still to be seen, but the majority is on the muted spectrum of the color chart.  It's still a pleasant daily walk that I religiously take, but I am anxious to see what kind of weather New England will get this next season.  One day at a time!

On the health front I only have a few updates to share.  Mostly side effect changes, but I'm concerned with some developments.

Side Effects

• Neuropathy - I'm still trying to figure out why my finger/thumb numbness has cycles and what those triggers might be.  Although not debilitating, it still makes certain actions difficult: picking up small things; turning the page of the newspaper/magazine; buttoning those small collar buttons and a host of other 'things'.  The neuropathy in my feet appear to be getting worse.  Before it was always the balls of my feet.  Now my middle toes on my left foot are losing feeling.  I can still move my toes and it doesn't yet affect my walking but I don't like the fact that it's spreading.  
• Muscle cramps - Even though I'm getting in about 20-25 miles of walking per week, I'm still plagued with charlie horses while sleeping.  There's no rhyme or reason when they happen, but it's not fun.  Last August (while playing guitar outside in high humidity), I had terrible cramps in my forearm and heel of my right hand.  I attributed this to dehydration, but last week the same thing happened.  Unlike a charlie hose in the calf where you can stand up to relieve the 'knot', it took me some time to figure out which position was best for my arm/hand to alleviate the pain.  The longer you wait the more intense and crippling the pain becomes.  Very disturbing.
• Hot flashes - Although a listed possible side effect of Tamoxifen, I haven't had too many episodes, however over the last month I've seen an increase.  [I have a new appreciation of women going through the change now.]

New aches and pains

Having a heightened sense of my body's workings, I'm tuned in to any new aches/pains. The fall I took last August affected my right shoulder but that seems to be slowly improving.  My range of motion for normal things seems okay, but out of the ordinary movements sometime are associated with a sharp pain and/or weakness.  I'm still having difficulty sleeping on that side and I generally wake up in the night with some pain in that shoulder.  But, I turn over and fall back to sleep.  Unfortunately, I've been waking with numbness in my right hand, which goes away with some movement.  My chiropractor said that I may be pinching a nerve and he has given me some exercises to increase range of motion in my shoulder.

Not sure if my body is compensating for one pain and causing another.  In mid October, I caught a nasty head and chest cold that seemed to be lingering (coughing).  At the height of the cold, my entire body ached (like the flu), but slowly began to recover.  However, I've been having some errant pains in both arm pits.  But the odd part is that I can't pinpoint where the pain is.  Self examinations don't yield any results.  So I'm not sure if it's muscular or not.  [My biggest fear is lymph nodes.  Although I'm on Tamoxifen, there is a 7-9% change of cancer - again.] 

I have a follow-up appointment with Dr Moore in a few weeks and both doctors Mehta and Chatson early next month.  Let's hope that everything is OK.

More to come.

Mid-October shout out

It's almost peak foliage in my neck of the woods.  I absolutely love this time of year because it's generally nice weather in the day and cool temps at night which is conducive to good sleeping.  Of course this is also my favorite month because Halloween is the last act.  I've attended a few Halloween parties already, but I'm saving this year's creation for Halloween weekend.  I truly hope that the weather cooperates so my pilgrimage to Mecca (Salem) will be agreeable to my costume.  If it's too cold, then I may have to resort to a 'repeat' costume.  Fingers crossed!

The Muse continues to keep my creativity flowing.  I have so many songs in the works, I have to keep a spreadsheet to keep track of their progress.  [Not complaining].  I have noticed that I'm writing more about "us" and less about "me".  Given the wave of senseless acts violence and the craziness of social media, my message is changing in my music.  I suppose my compendium of work will show all sides to my story and message.

On the health front there is no too much to report. However, there have been some developments that I'll describe below.

Head and chest cold - I guess it's going around, but I managed to catch that nasty head and chest cold. For the most of last week, I've been filling my barrel with used tissue.  Between the constant nose running, post nasal drip and death rattle chest congestion, I've been miserable. At one point, my voice was so low (from coughing) that I decided to right a song where I would be singing in that register (Johnny Cash/Barry White reference).  Not sure how I'll hit those low notes when I'm back to normal.  We'll see.

Side Effects

• Neuropathy - I still cannot figure out the cycle of my neuropathy.  I go through spells (flare-ups) where my finger/thumb numbness is off the chart.  Then slowly it dissipates.  A real mystery.  My feet seem to be getting a little worse, but luckily not (yet) debilitation.  However, if I stand too long without moving, I do sense nerve pain.  [Just something else to monitor].
• Mussel cramps/spams - Although I continue to walk about 30-35 miles a week, I still get rudely awakened from a sound sleep with a charlie horse.  I'm still looking for home remedies and am open to suggestions.  It seems everything I've been told or have researched is not working.  In addition, I've begun developing cramps/spasms in my arms and hands.  Not sure if it's because I've had long sessions playing guitar or keyboard, but this is relatively new.  And still another thing to monitor.

Something new

In mid-August I slipped and fell (hard) on my left side.  My left knee was affected as well as my shoulder and arm.  The knee worked itself out (probably because of my walking schedule).  However, my shoulder has been extremely tight and my range of motion was (initially) very limited.  I've been doing some range of motion exercises and normal movement has returned.  But, a few weeks ago (after our first drenching rain), my lawn needed mowing.  I had all I could do to pull start the mower.  No strength and quite painful.  Following that episode I attempted to 'find' the area of pain and cannot locate any specific area.  In doing my self examination, I'm still not familiar with my 'new' upper body resulting from my reconstruction.  Fat graphs feel lumpy to me (not painful) but disconcerting since I'm not sure if they are fat lumps or the beginnings of cancer.  After all, I still have a 7-9% chance of getting breast cancer again.  So my heightened awareness of my body's aches and pains always takes me to the question: Is it back?  Welcome to the new normal!

Thanks for reading.  More to come.

Happy Halloween everyone.

Mid - September update

A bit late with this month's update.  Still enjoying the weather (missing the rain), but there seems to be plenty to do. On the health front, I had a few doctor appointments and each resulted in a satisfactory prognosis.

Dermatology
On September 1st, I had a follow-up with Dr Gruber. A few months ago during a screening for skin cancer, he found a pre-cancerous 'condition' on my ear lobe.  He 'froze it' and wanted to see how that was doing.  The good news is that it appears to have healed properly. Other good news is, other than age spots (he calls them wisdom spots), my skin is good.  However there were two areas that he's watching.  He did measure and record one dark spot on my arm that will be monitored.  He wants to see me next year.

Post-cataract follow-up
On September 2nd, I had my yearly check-up with my eye doctor (outside of Mass Eye and Ear).  Good news is my eye sight is 20/20, but my right eye could use some 'cheaters' when reading - if I need them.  Fortunately, my left eye is good and I'm having no problems reading -yet. My cataract in that eye is slow growing, so eventually this will all change, but for now - I'm good.

Dental
I had my 6 month check up with the dentist and was given a clean bill of health.

It's truly liberating to be able to have these check-ups and not have an anvil of bad news be the result. I'm still taking my walks as a prevention for blood clots (side effect of Tamoxifen). I average about 35 miles a week.  When I miss a day (due to weather or scheduling) I really feel like I'm slacking off. This is a good thing.  Walking is great exercise with many benefits.  I'll have to see what Mother Nature hands us in a few months and how I'm going to get my walking in.

"When I'm 64"
Way back in 1967, the Beatles released Sergeant Pepper's Lonely Hearts Band. One whimsical tune was on that album.  It's really hard to believe that "When I'm 64" has personal relevance.  September 22nd will be my 64th birthday.

"Will you still need me. Will you still feed me,when I'm 64."

More to come!

Mid - August check-in

The summer is just zipping by.  As of late we've been in a rather hot and humid spell with some respite from time to time, but no real (significant) rainfall.  This is disconcerting and just makes everyone very leery of what type of Fall and Winter we will be having.  In the interim, I'm enjoying the weather - when and wherever it's conducive for fun and relaxation.

I ventured back to my blogs published last year at this time and found that my last chemo was administered on August 11th.  The subsequent entries chronicled the effects of this and much like other blog entries, time has softened the memories.  I completely forgot about my hiccuping episodes. I still find the recuperative powers of the human body to be amazing.  I'm still battling with some the long term effects of the chemo, but I'm hopeful these too will dissipate and become vague memories...someday

Last Friday, I had another post-op check-in with Dr. Song.  My eyes and brain are getting used to my new lens.  The floaters may still be there, but I'm not noticing them.  I'm still having some residual halo effect in certain types of overhead lighting situations.  Dr. Song said that it's possible that there is some condensation between the lens and the 'capsule'.  [I recall reading that this sometimes occurs.]  He wants to monitor this and if it worsens then he indicated that there's a 'quick' procedure with the laser to correct this.

As I have each time I'm at his office, I was given a complete eye examination.  My left (non-procedure) eye is 20/20 and my right (with new lens) is 20/20 for distance but not as good for close up.  I recall his saying that this would happen.  But luckily for me, my left eye is still good enough for reading so there's no issue.  However, as the cataract grows in my left eye, I will need reading glasses.  Dr. Song mentioned that when the time comes for cataract surgery on the left eye, a new lens can be inserted, but it would be for close up.  The brain takes these images and makes them work.  Something he called 'mono vision'.

I was provided with a prescription for reading glasses, but he mentioned that I may want to try some over the counter 'cheaters' since the magnification was about 2%.  I have an appointment with my regular ophthalmologist in September, so I'll see how that turns out.  Dr. Song wants to see me next May.

More to come.

Mid-July check-in

No medical news to report.  It's vacation mode where ever you look.  Prior to these last few days, the weather has been gorgeous:  Not too hot and not humid. Well in true New England form, we are now dealing with tropical humidity - but no rain.  This is concerning.

I've been re-reading my blogs from last year at this time.  Those memories are still fresh in my mind, but I'm so glad they are all behind me.  Last summer, I was content (well forced) to remain inside while I did my four sessions of chemo.  This summer, I'm making an effort to get out and enjoy - when situations arise or of my own making.  It's mind boggling to think that it's already the middle of July and the virtual middle of summer.  Time goes so fast.

Just a few updates on my condition and dealings with side effects;

• Neuropathy - I'm still dealing with that weirdness in my finger and thumb.  Sometimes it appears to dissipate, but comes back again.  There's no pain, but there's a strange sensation when I play guitar.  I've joined a card group (we play 45's on Mondays) and I noticed a real problem with shuffling and dealing the cards.  I've been having so many mis-deals due to giving too many cards that it was suggested that I deal one card at a time.  So far so good, but the shuffling is still a challenge.  I still have neuropathy on the balls of my feet and it appears to be spreading to my big toe.  This doesn't prevent my standing or ability to take my daily walks.  But it does feel weird when my feet are under the sheets and I can't feel the material. 
• Charlie Horse(s) - I'm still plagued with these horrendous muscle spasms despite my walking some 20-25 miles a week.  I'm always trying to vary my sitting, standing and walking periods hoping this will help.  Bananas seem to ripen too fast (or not fast enough), so I'm leaning more to dark green vegetables.Last week I had a spasm in my back and had to lie on the floor.  Not sure if that was related.  Like everything I'll have to monitor.
• Cataract - I'm finally adjusting to my new lens.  As the doctor said, the brain is adjusting.  So my vision seems to be fine.  I am still seeing some anomalies when it gets dark, but my brains seems to be getting used to those too.  I have noticed that my new lens (which is great for distance) is not that great for reading.  Luckily, my left eye is still good, so I may wait until reading is more difficult before getting cheaters or real reading glasses.
• Chemo Brain - Still dealing with the occasional grasping of the right word or trying to recall certain information.  For example, I came across a picture of some co-workers at a regional meeting.  Picture was taken in 1994.  I could name everyone, but I had trouble remembering the last names of two.  Luckily one name came to me within a few hours, but the other alluded me for a few days.  It wasn't until I was telling someone about this lapse when all of a sudden the name came to me.  I know for most people, they may not even remember most of the names, not to mention the last names, but for me - it's a big deal.  I'm fortunate that these are minor lapses and not important things like, finding my way home or various account passwords.  Not THAT would be concerning.

Other than age related things, I'm doing well.  Enjoy the summer!

More to come.

Summer Solstice Scoop

Happy Summer!

As my literary alliteration suggests, I had a 6 month follow-up with Dr. Pare, my vascular surgeon who has been monitoring my Abdominal Aeortic Aneurysm (Triple A). I have to be honest, I was a bit nervous and anxious to hear the results of today's ultrasound.

It was very busy in the office, but I hardly waited 5 minutes before being called.  I was instructed to follow the medical professional to an all too familiar room with the ultrasound 'thing'.  I was told, "Dr. Pare will be right with you."

Shortly after, Dr. Pare arrived and greeted me with an handshake and an inquiry on 'how I was doing'.  I had mentioned that since our last visit, I had had cataract surgery.   He asked how that went, and I responded, "It went well." Apparently my multiple reconstruction surgeries seemed to be missing from my report, but as I lay down, he noticed  my "Cesarean scars" and asked, "What happened here?" I then brought him up to speed.

Dr. Pare 'fired up' the ultrasound and began 'looking around'.  Each time he stopped to spend more time in an area I was waiting for a verbal queue or tell-tale utterance that would indicate an unwanted report.  It seemed to last an eternity.  Finally, he said, "I have good news.  No change.  Let's take another look in December.  Have a great summer."

Fantastic news!

Follow-up with Dr. Song and other sundries

Still chilly in New England, but happily - no snow.

I had my Shingles shot last Friday and like most inoculations I get, I ended up getting the 'possible' side effects.  Besides the soreness of the injection site, I was experiencing a general BLAH-si-ness and my energy level has been low.  By Monday, I felt like I had the flu and slept almost 12 hours.  After the needed rest, I began to feel a bit better, although my appetite has also been adversely affected.

Possibly from the extended sleeping cycle on Monday, I woke up [wide awake] at 2 AM  on Wednesday morning.  After some unsuccessful fighting to go back to sleep, I got up and watched TV until sunrise.  By then I was up for the day.  I've had disruptive sleep patterns all week.  So I also assumed that this deprivation was also the cause of the sudden appearance of floaters and visual anomalies in my right eye (the eye on which I had surgery).

My eye drop regimen ended Thursday, so I was thinking that the 'withdrawal' might have something to do with it.  I was more aware of my floaters and could see some 'light' in my temporal region - even with my eye closed.  As the week progressed the 'light' was less pronounced, but the floaters persisted as well as some aching.

Arriving in Waltham today for my follow-up, I spilled my guts about my recent turn of events regarding my eye. [Sometimes I feel like I'm being overly sensitive, but I do want to go on record.]  This reporting just triggered a barrage of testing.  I was there almost two and a half hours.  By the time I saw Dr. Song and his review of the test results, he then gave me additional tests.  He did say that the lens position was 'good' and he did not see anything out of the ordinary.  He did say I definitely had floaters.

I had asked if these go away.  Dr Song said, "Floaters are a result of condensation in the aqueous 'jelly'.  The floaters are fairly common and the brain learns to ignore them.  However, if they worsen, it could cause a retinal tear."  [Lovely].  He couldn't really explain the cracks of light I could see but said, " If you get a burst of bright light, you'll need to come in."For the interim, he wants me to monitor and return in two months.  [Nothing is ever easy.]

On a different front, I'm sad to report that my (unexplained) neuropathy in my forefinger and thumb has returned.  Gladly it doesn't interfere with ability to play guitar or keyboards, but it is difficult picking up small things, coins, loose coffee bean, etc. and buttoning certain types of buttons becomes almost impossible to do.  I've learned to let my right hand do that before putting on that type of garment. You do what you have to do.

More to come!

[By the way - tomorrow marks my one year anniversary of Chemo One]

"June is bustin' out all over"

By golly it's June.  And Mother Nature did not disappoint as she served up a splendiferous day to mark the first day of this month.  As I flipped the calendar page I could see many doctor appointments scheduled.  These check-ins and follow-ups also serve as vivid reminders of what I had undergone last year.  Looking back, by this time last year I had already been under the knife three times and was about to begin my regimen of chemotherapy.  Looking ahead, it's all behind me and I survived!

I've reached the clean-up and stabilization phase.

• Cataract surgery was successful and (hopefully) I just have one more follow-up with Dr. Song.  
• Dr. Gruber administered a spray of liquid nitrogen to treat a pre-cancerous area of my ear lobe and I have a follow-up scheduled for this month. 
• In a visit with Dr. Chatson today, he indicated that things were coming along nicely and wants to see me in December.  
• Also visited Dr. Mehta who 'felt me up' for possible cancerous lumps and found none.  I will also be seeing him in December. He filled my Tamoxifen prescription for another year and instructed me to perform self examinations for lumps.
• Towards the end of this month, I am also scheduled to see Dr. Pare to see the status of my Triple A (Aneurysm).  It would be great to hear that there has been no change. But it is what it is. 

I'll be getting an inoculation for Shingles soon and will have the second shot (2 of 2) for Pneumonia. Hoping to avoid both of these maladies and having to write about these in the blog, other than providing a report of - task complete.

In the interim, I'm enjoying life, retirement and music.  I'm happy to report that the lingering (non-explained) neuropathy in my forefinger and thumb has almost completely dissipated. I'm still feeling (not feeling) the neuropathy in the balls of both feet.  But as I reported earlier, it does not impede my ability to walk or stand. I do experience chemo brain, still.  It happens at the oddest times and it's very disconcerting to me.  Luckily it's sporadic and for the most part just when trying to find the right word or remember some piece of information, like someone's name. But for the most part my memory is in tact.  I suppose my feet of clay are showing (LOL).

More to come!

Follow-up with Dr. Song

I was happy to have had a later morning appointment for my second follow-up with Dr. Song at Mass Eye and Ear in Waltham. My drive was a piece of cake compared to my rush hour drive on Friday the 13th (of all days).  However, traffic wasn't too heavy and was moving nicely.  I made it in plenty of time to spare.

After checking in, I noticed many patients waiting.  Figuring I had time to kill, I picked up a hard cover book of eye anomalies - very graphic.  It had before and after pictures of everything from an eye sty to evisceration.  I guess anything to show that 'you' don't have it so bad.  Well it was my choice to look at it, but it really was kind of gross for a waiting room.

The technician, Steve called my name and I followed him into the first of three examination rooms.  In the first he took some pictures of both eyes, gave me eye drops then waltzed me over to another room where more pictures/measurements were taken.  Headed back to the first room, I was given a complete eye exam where I found that my new eye had 20/15 vision - wow.  And even more surprising, my other eye had improved from 20/30 to 20/20.  [The body has miraculous powers of recovery.]  After being given drops for dilation, I was asked to return to the waiting room.

About 15 minutes later, I was called and was escorted to room number number two for more pictures and measurements.  After completing this, I was once again told to return to the waiting room.  By this time the crowd had thinned out.  I had already been there more than an hour at this point.  Shortly after, I was called to visit Dr. Song in room number three.

Dr. Song was reviewing my test results and updating my record. After exchanging pleasantries, he asked how I was doing and what was the status of my post-op side effects.  Gladly, all had abated.  He set up the mechanism that allowed him to see inside and around my eye.  He was very pleased with the results.  "Your eye is healing nicely", he said.  "You can resume normal activities and discontinue the nightly eye guard."  He added that I could discontinue one of the eye meds and reduce the prednisone.  "I'll see you in three weeks", he said as he shook my hand.

I made sure to have a late morning appointment when I booked it with the receptionist. 

Things were looking up - no pun intended.  More to come.

Cataract Surgery - Post-Op - Follow-up

For a 'side sleeper' as myself, being restricted from sleeping on one of my sides is not conducive to a good night's sleep.  In addition, having an eye guard taped to my face made sleeping almost impossible.

At 4:30 AM the alarm went off.  It was dark and I was disheartened when I tried to 'see' with my new lens.  Nothing.  My good eye now open, I could see, but nothing out of my other.  As I got to more light, I could eventually see, but it was disconcerting to experience this first thing.

After instilling my regimen of eye drops, I had some badly needed coffee, but had to resort to reading an ePaper on my phone since my news carrier didn't arrive until sunrise.  I was able to read using both eyes, but my new lens was still a bit blurry.  However, even that was better than looking through (or trying to see through) my cataract.

My ride arrived around 6:30 and we trekked into Waltham.  Being Friday the 13th, I was leery of route 128.  Murphy's Law prevailed and a truck had careened off the road on the opposite side and all the rubber-necking caused Southbound traffic to stall for a good number of miles. [I don't miss the commute - AT ALL.] 

We finally made it by 7:55 and was the first patient to arrive.  A technician, Ellen called me into the examination room.  She checked my vision and proclaimed that I had eagle vision - 20/20.  Wow!!!  I was able to whip through all the lines on the chart except the very last.  [I believe she said that if I did see that,  I would be 20/10.]

I had asked about my inability to see in the dark and a sporadic 'halo effect'.  Ellen indicated that some of the meds used on me caused my pupil to be restricted, thus reducing the amount of light to the retina. [I did check later and found this to be true when I looked at both eyes.]  As for the halo, she said that it goes away after time and as the eye heals.

I was discharged to the waiting room until Dr. Song called me in.  He looked at my eye through his machine and seemed very pleased with the results.  I asked him to confirm (or deny) that I had sutures.  He chuckled and said, "No sutures."  I told him that I couldn't tell what was going on, but my imagination was running rampant.  After a very big smile, he said, "You did very well and your cooperation made it easier." [How could I not cooperate?  I'll take the praise when I can.]

I have a follow-up next week, but he said that I still have restrictions for a week: I have to wear the eye guard at night; no sleeping on my right side (bummer); no lifting anything over 10 pounds; and no bending below my waist.

When I had asked about the halo effect, he indicated that it goes away as the lens becomes seated.  He did say that in about 5% of the procedures, the lens moves and another surgery is necessary.  [This was disconcerting especially since 3% of all breast cancers are in males.  So I'm not a fan of those types of percentages.]

We decided to take a different route home and in true Friday the 13th form, traffic was terrible and it took more than an hour to get home. [Yup, don't miss the commute.]

More to come.

Cataract Surgery

It was a beautiful day Thursday.

I arrived early at SurgiSite Boston, Waltham and was checked in quickly.  [Thank you Leslie, for driving.] I was escorted by Gabe to the 'prep' area that looked much like the chemotherapy unit I got to know all too well last summer.  There were a number of reclining chairs and many health professionals milling about and attending to the patients. My assigned seat was way at the end.  Gabe gave me a hair net cap and fastened a surgical gown over my clothes.  I was instructed to sit and another person (un-named), attached electrodes and blood pressure cuff.  Yet another person draped a warm blanket over my legs as Lisa introduced herself and began her ritual of asking me a litany of questions: did I take my meds today; did I eat; etc., she entered the information into their computer system.

Just as she was finishing, Steve, the anesthesiologist stopped by and explained the procedures I would be having and what kind of sedative (and how much) I would be given.  Although I was probably told this, Steve described the two procedures.  First, I would be bought into a room where a laser would break apart my cataract and incisions would be made on my eye. Second, I would be brought into the operating room where the broken cataract lens would be removed.  Dr. Song would then place my corrective lens in place.  It sounded clear cut.

Being early, I had to wait nearly an hour before being wheeled in.  So I apologized and asked to use the rest room.  Steve told me that I couldn't because the fluids where needed to be retained by my body - then he laughed and said he was joking.  He unchained me and allowed me to take care of things.

After returning and waiting for my turn, I noticed a steady stream of patients being wheeled in as others were wheeled out and given a debriefing with instructions for care.  Very methodically organized.

Finally it was my turn.  I was wheeled into the first room and a few professionals got me onto a very narrow 'bed' with a special spot for my head.  My head was strapped into place so I could not move.  [Good thing].

Dr. Song arrived and asked, "Which eye we were working on today?"  [Common practice these days.] He explained what would be happening and what to expect.  "You'll see a lot of lights and shapes.  You may feel some pressure", he said. A suctioned guard (of sorts) was then placed in my eye socket and I was positioned under the arm of the machine. I was instructed to "look at the blinking light."  Yes, there were many types of lights, shapes and odd sounds, but the most disturbing is when the suction device lost its suction.  There wasn't panic, but I sensed that it was not supposed to happen and everything came to an abrupt stop.  I heard some medical jargon being exchanged, then I was told that the suction was lost so I was going "back under" so the procedure could be finished.  At the conclusion the doctor said, "I think we got it all."  [You think??  Really??]

I was wheeled into the operating room where Jean introduced himself.  Other medical professionals where quickly preparing me as a nurse and Dr. Song entered.  A hood-like apparatus covered my head was attached to my eye socket with some adhesive.  The only opening in the hood was just for the eye.  Yes, the Clockwork Orange implements came out and my eye was propped open. They quickly got to work.  I was unsure how long this would last, since the laser took about 5 minutes - even with the start/stop/resume.  Unfortunately for me, I needed to visit the restroom again and all I could think about was how badly I needed to go. Of course the steady stream of eye drops (thoughts of waterboarding came to mind) didn't help ease my full bladder.  I just wanted it to be done.

Other than my bladder discomfort, there wasn't any pain or discomfort from the procedure.  There was a few times when I felt pressure, but not really seeing what was happening (and probably the effects of the sedative), I was having all these thoughts of what - might be happening.  Did they mess up and have to cut through the cornea? Did the lens not unfurl as desired?  Did they have to use bobby pins to move the lens into place?  Did they have to use dissolving sutures?  Of course none of these transpired. [I asked Dr Song at my follow-up.]

After Dr. Song announced that we were done, I was detached from my tether and wheeled back to the prep/recovery area.  I had asked if I could visit the restroom.  The professional said, "You'll be leaving in about 10 minutes."   I said I really had to go.  Thank heavens.  I can't imagine where all these fluids came from.

After returning to my assigned chair, Ellen provided a debrief and instructions on what I could and could not do.  I was provided with an eye guard that I needed to keep on (except when instilling eye drops), and sleep with.  I couldn't sleep on my right side; lift anything more than 10 pounds; bend below my waist or drive a car. I was given a genuine imitation leather bag with some polarized sunglasses and an extra guard with adhesive tape.  Gabe stopped by and escorted me to the main waiting room.

There was a good window of opportunity so traffic wasn't too bad and we made decent time getting home.  I parked my butt on the couch and watched some Netflix.  My vision was still blurry, but by bed time, I could see the TV and actually read through that eye.  Awesome!

Unfortunately, I had to refrain from sleeping on my right side and as a result got little sleep.  Of course my follow-up appointment was the next day at 8:15 AM.  So getting up much earlier and having to deal with morning rush hour traffic wasn't something I was looking forward to.

More to come.

Catarct Pre-op and Skin Cancer Screening - Updates

We finally have some gorgeous weather.  Loving it!

Everything is aligned for tomorrow's cataract surgery in Waltham.  After numerous calls with SurgiSite Boston and Mass Eye and Ear, all approvals have been provided as well as my health insurance coverage, co-payment and other financials settled.  My sister Leslie is accompanying me and has graciously agreed to do the driving.  I've been on a regimen of pre-surgery medication that must be applied (eye drops) four times daily.  After surgery I will be complementing those with a steroid.  Not sure how long I'll need to be doing these, but I'll find out tomorrow.

Just the waiting game right now. I'm a bit apprehensive about my being 'conscious' during the procedure.  I have visions of "Clockwork Orange". It is what it is.

A few weeks ago I had come across an article in the local paper where a free skin cancer screening was being offered at Holy Family in Methuen.  Being keenly aware of my body's changes I had some concerns with a number of anomalies.  There was no time like the present to have these checked out.  Although I dread a medical professional uttering, "You have cancer", to me again early detection is key and it's free. [Effie would be proud.]

I finally found the area where folks where waiting for the screening.  I was given some paperwork to complete (mostly a questionnaire).  Not long afterward, I was escorted to an examination room where I was asked if I wanted a cursory examination, or a full blown one.  Given this was free, I said, "I'll take the full blown exam".   I was told that I would need to strip down to my underwear.  No problem.

I had just begun to disrobe when Dr. David Gruber came in and introduced himself.  He asked which areas I was concerned about as he was quickly 'eyeing me'.  I pointed to two areas where the skin was thickening, but he said, "Those are wisdom marks and they are not a concern".  [I guess that's a more sensitive term to describe old age spots, but hearing no concern - was good.]  He said, "Those areas were seborrheic keratosis, not cancerous."  I pointed out some other areas and was told that they were not concerning, but there was a spot on my ear (that was crusty) where sun damage had created a pre-cancerous condition.  He said there's nothing to concern myself immediately and it's not an area where they biopsy.  He said it treated by freezing those (actimic keratosis) cells.

I was truly relieved to hear that some of the areas I thought potentially harmful to my health - were nothing but 'wisdom' marks and the one area of concern is at a stage where it's treatable without all the lovely trappings of a cancer treatment.

I looked up Dr. Gruber and he's covered on my health plan.  So I'll be scheduling an appointment after my cataract surgery and follow-ups have been completed.

Beautiful day and beautiful news.  More to come.

Errant Suture

OMG!  May already.  Time just zips by.

Happy Cinco de Mayo [tomorrow] everyone! I sure hope the sun decides to return.  This cold, raw weather is really tough on the old bones.  The long term forecast seems to be stalled on the current weather pattern.  Oh well, no snow ;-)

I had a follow up visit with Dr. Chatson today.  I guess I was the first appointment.  The waiting room was empty and they told me to come right in.  Jude took my vitals and prepared me for the doctor's arrival.  Within a few minutes, the doctor and his assistant arrived.  He looked at the site and indicated that he wanted to 'pick away' at some of the remaining scabbing to see if any sutures were hiding.  An errant suture would delay the normal healing.  Sure enough, he found one and quickly (and almost painlessly) pulled it free.  The Physician's Assistant had me hold a mirror so I could see the site as the doctor examined.  He said, "Things are coming along nicely."

I was told to come back for another follow-up visit in a month.  (June before you know it.)

On another medical front, I was online and on the phone with Partners (Boston SurgiSite for my eye surgery next week) ensuring that there would be no 'issues' for insurance coverage and to determine my co-pay.  Jasmine was very helpful and confirmed that I was all set.  Now I just need confirmation from Mass Eye and Ear for the time.  All my paperwork says that they will contact me a few days before the procedure.  I'm all set with a ride to and from (thanks, Leslie). So it's a waiting game for final plans.

Health-wise, I'm doing OK.  Still have some 'bad days' but mostly good days. I'm still coping with the my side effects of chemo, but nothing is stopping me from living and enjoying life.  I've been very busy musically and I have re-joined the band I had to leave last year.  It's nice to be back in action.

More to come.

End of the Month Update

I'm a few days away from my one year anniversary of my first (of many) breast cancer surgeries.  Time does fly.  It feels like yesterday, but also so long ago.  So glad to have all that behind me now.

Last Wednesday I had a follow-up with Dr. Chatson.  I had been applying the recommended ointment religiously according to instructions. It still looks somewhat scabby (and angry), but the threat of infection has passed. I have yet another follow-up in May. It's definitely coming along.

Today I had a pre-op examination in order to gain medical clearance for my cataract surgery in a few weeks.  I had a new nurse today.  Her name was Blanca.  While preparing for the doctor's examination, she indicated that I had not had my pneumonia shot.  I know I had often thought that it was a good idea to get one since many suffer (and die) from pneumonia as age creeps up.  I was told that the immunization consisted of two shots.  The first, pneumococcal conjugate PCV 13 was administered today. The second, (sounded like) pneu-mox will be administered during my physical next February.  Apparently, there has to be a at least a 6 month period before the second shot.  [In a conversation with the doctor, I learned that anytime after the six months and up to a year, the second shot can be administered.]

So agreeing to the first shot, Blanca said, "Your arm may hurt after."  I've had many shots, boosters, injections, etc., so I was aware of the 'sometime' after effects.  But as she pushed the needle, I almost saw stars.  She wasn't kidding.  It felt like she was in the meat and my arm was not happy.  Holy Cow.

When Dr. Rees arrived for my examination, I had asked about the pain.  He said, "Now?" "The pain is generally after.  I didn't see her administer the shot", he said.  "I'll have make sure she's not so aggressive."   Ya think?

I'm not a baby, but this still hurts.  It's not warm to the touch and it doesn't look swollen, but ouch.

At the conclusion of the exam, the doctor wished me luck and said, "Oh, you have a new nipple.  It looks good.  Where did they get the tissue to make it?"  I lowered my boxers and showed him my 'caesarean' scars and he said, "It's amazing what they can do."

More to come.

More stitches removed

Beautiful sunshine today.  The last few days have been kind of dreary.  That kind of weather really isn't conducive to one who has been restricted to shallow baths.  There's only so much magic you can do to your hair - especially when it needs to be cut. I'm too embarrassed to have the stylist work on it until I have a chance to do some deep shampooing.  Maybe today?

I had my follow up appointment with Dr Chatson to have the remainder of my stitches removed.  Upon removal of the bandages, I was given a hand held mirror so I could see his pointing out the scabbing I had.  He cautioned me that this could cause some scarring.  [Really? It looks like I had a C-Section and I'm worried about a little scarring on the nipple?]  I guess he just wants to be transparent and forthcoming.  Time will tell.

Because of the scabbing, he was also concerned with infection, so I'm to apply an over-the-counter ointment twice daily and keep a dry bandage over the affected area.  But, he did say I could shower.  YAY!

I have a follow up next week.  Please, please, no infections.

More to come.

April 2016 - Update

Mother Nature is definitely holding a grudge. So far we've had two snow storms.  First being more wind than snow, but the second dropped almost four inches.  And it's been very cold, more like late February/March weather.  I'm glad I had the foresight to keep my winter gear handy (shovels, boots, heavy coat, etc.).  Allegedly things will warm up sometime next week, but they are already talking about more nuisance snow this weekend.  It is what it is.

Since my last visit (post op) with Dr. Chatson, I've been relegated to taking shallow baths until my sutures come out.  I didn't know I had so many.  During my follow-up today, I was thinking all sutures would be removed and I could take that desired (and much needed) hot shower,  But I was proven wrong when the layers of (sutured) bandages once removed, revealed....wait for it.....more sutures.  While I was 'exposed' and waiting for the doctor to examine the surgical site(s), I was able to take a few selfies for the collection.  Things look angry, but are really starting to 'shape up' (pun intended).

Dr. Chatson said, "I want to caution you.  You may see asymmetry, but that is by design."  He continued, "the site is still swollen and generally the 'size' is reduced by 40%, so the new nipple/aureola currently appear larger than your other."  He said he was pleased with the progress and promised to remove the remaining sutures next week.  "Unfortunately", he said, "You are still restricted from getting the area wet, meaning no showers for another week." 

Not what I was hoping to hear, but next week will arrive too soon.  Plus, I've become an expert (of sorts) at taking shallow baths. Luckily for for me too, my hair has grown back wavy (versus straight).  This makes my hair act like I have a perm and it 'kind of' keeps its shape once combed back.  Prior to this, my straight hair would separate when it became oily and would drive me crazy as it hung down against my forehead.  Not a problem now.

I can tell that things are healing since I'm able to sleep on both sides.  The simple pleasures are the best.  I've been increasing the length of my daily walks, but am not able to do my exercises.  Those muscle groups will be really tight when given the green light.

I look forward to my first hot shower.  More to come.

Three days - post surgery

I'm optimistically hopeful that Monday's reconstruction surgery was my last.  Oddly enough, the point of pain was not my breast, but the incision on my lower abdomen where skin was harvested.  Of course this is part of the body that was designed for bending, but having a nine inch sutured wound right at waste level is not conducive to any type of bending.

The Orchard Surgical was easy to find and very efficient.  The sign on the building says they are affiliated with Holy Family.  I was well attended by many staff members.  My last memory prior to the surgery was the anesthesiologist saying, "You'll feel  a little weird as the anesthesia kicks in".

Waking up in recovery was all too familiar.  The nurse was pushing the pain meds, but I needed to become more alert to assess my pain tolerance.  I did give in eventually and took a Percocet.  The nurse indicated that it would take about 15 minutes until I felt the effects.  By that time they had returned my belongings and helped me sit up and dress.  Yes, I was very sore.

My ride arrived and I was able to get into the front seat of the low-to-the-ground car very slowly and with much wincing.  Every bump and pot hole hit resonated within my body bringing much discomfort.  Getting home I just wanted to sit still and hopefully doze off.  Having fasted from the previous night, I was famished and decided to have a muffin.  I was quickly reminded that anesthesia has its own set of side effects: sore throat (from the breathing tubes).  It felt like I was swallowing chunks of cement even with the help of fluids.

I watched a number of programs I had on my DVR and took a few cat naps.  When I decided it was time for bed, I was contemplating  if I should take another Percocet.  I did, and I'm glad.  I ended up taking another around 3 AM.  I just couldn't get comfortable and watched the clock hourly. 

On Tuesday, I was in rough shape.  Extremely sore and really uncomfortable.  I was still having discomfort swallowing, but I could tolerate certain foods.  I was wearing a compression bandage around my waist and it was digging into my skin.  I was able to remove it and reapply over my tee shirt.  So most of the day, I just sat and watched TV.  Once seated, I seemed to get into a painless position, so I stayed there.  I slept a bit better Tuesday night as I was able to turn on to my right side.  Of course there was no place to rest my left arm, so I needed to shift that throughout the night because the circulation was cut off and pins and needle ensued.

Wednesday was better.  After my coffee, I was able to get things moving.  I was able to take a short walk (two miles), before my follow-up appointment with Dr. Chatson.  At the doctor's office, the physicians attendant removed my bandages and prepared me for viewing. At this time I saw the results of the surgery and the cause for my discomfort.  I took some 'selfies' for the archives and later review.  The abdomen surgical site was gruesome.  The breast (nipple/aureola) still had bandages which appeared to be sutured to me.  Weird.

Dr. Chatson arrived and quickly looked at the results.  He was pleased and also explained that bandages (that were sutured to me) cannot get wet.  So, no showers for me in the near future.  He did say that I can get every other part of my body wet.  [This will still be a challenge if I'm to keep the bandages dry.]  So I'll be soaking my bottom in the tub and carefully try to wash the parts allowed. Where there's a will (or a foul smell), there's a way.

I have two follow-up appointments scheduled with the next one having the bandage removed and approval for a shower.  He wants me to keep the compression bandage on until Monday and remove only when too uncomfortable. I did take it off last night before bed and it seemed to help.

More to come.

Upcoming surgeries

Happy Easter!

I can say it now that Winter has past:  We made it through OK.  Of course, Mother Nature had to remind us on the first day of Spring that she still 'has it', by dumping nearly six inches of heavy wet snow on us.  Amazingly, most of it melted by that afternoon and over the next few days there was nearly a trace to be seen.  Good riddance, I say!

These past few weeks have been busy medically speaking.  Apparently the trend is to utilize surgical centers for my upcoming procedures.  This may be/could be easier for the medical staff to perform their miracles at these locations versus a hospital, but I'm finding it does have its drawbacks.  Each surgical center requires a round of 'healthiness tests' and a sign off/approval to proceed from my primary care physician.  Of course the clincher is that these tests must be done within a 30 days window of the procedure.  You know, neither the reconstruction surgery nor the cataract surgery is scheduled within 30 days of each other.  [For good reason - I need to recuperate enough to withstand the next cutting.] So I'm becoming a regular at my primary care and my co-pays continue to mount.

It is what it is.

On Wednesday I had my pre-op with Dr. Chatson.  He reviewed my test results.  [I passed.] He once again reviewed what he set out to accomplish during this (hopefully) last surgery.  All is ready for early next week.  He gave me more meds to take post-op and a list of 'don't do's', which includes not bathing for a few days.  Needless to say my social calendar is empty next week.  I don't have the 'luxury' of having a baldie this time so I'm sure I'll be fiddling with oily hair in a few days.  If that's my only worry, I'm golden.

On Friday I had a pre-op with Dr. Song.  This time it was in Waltham.  Because I'm getting the Premier Package (cataract and astigmatism correction), I needed additional tests to measure my lens 'capsule' and determine the 'health' of my cornea and other structures.  I was deemed to be a good candidate for this procedure.  However, since the insurance only covers the cataract surgery and not the elective (astigmatism correction), I will be having a 'yuge' out of pocket expense.  Once again - it is what it is.  Plus, I'm worth it ;-)

Like Dr. Chatson, Dr. Song gave me a number of prescriptions to take before, during and after the procedure.  I also have two follow-up appointments at the Waltham location.  I was quickly reminded how much I hate commuting and especially driving 128.  It took me 2 hours to get home last night.  Horrible.

More to come.

March 2016 - Updates

It's March and my least favorite season is winding down.  Although we could still be hit with an abundance of that white stuff, I'm thankful that the past few months have yielded manageable amounts.  As I write this post I'm cognizant of various anniversaries of my challenge.  I've already hit the year milestone of when I was diagnosed and soon will be reminded of the various procedures leading to my numerous surgeries.  But that is in the past [YAY].

Since my last post there has been somewhat of a lull.  Later this month, more information will be forthcoming as I will be undergoing the knife for hopefully my last reconstructive surgery. Until that transpires here are some updates on a variety of topics.

Continuing and [possibly] new side effects

Neuropathy

• Listed as a side effect for both chemo and Tamoxifen, my oncologist still insists neuropathy is 'generally' manifested on both sides of the body.  I still experience flare-ups of numbness in my forefinger and thumb on my left hand.  Most of the time I can work through these episodes, but there have been times, when playing guitar, that I have had to stop and 'shake my hands' to promote circulation to my 'sleeping' thumb.  For now this appears to work and I'm grateful that the right hand doesn't exhibit the same symptoms, since I would no longer be able to hold a guitar pick.  The numbness for the forefinger is situated in a spot that doesn't interfere with my fingering [for the most part].  

• I still experience nuisance neuropathy in the balls of both feet and middle toes.  It's not debilitating and doesn't impede my ability to stand/walk.  However, I'm bothered by this as I begin to fall asleep.  It seems like my feet have fallen asleep and I begin to move them around.  This is probably because I can't sense/feel the sheets against my feet and this causes my brain to send warning signals to 'move those feet' before the pins and needles kick in.  I never get pins and needles regardless.

Chemo brain

I'm thankful that I have most of my faculties when it comes to remembering songs/music I've played/learned decades ago.  I'm not quite certain if the fingers are the ones remembering (muscle memory).  But I'm thankful nonetheless.  I can also remember lyrics and arrangements with very little delay or problem.  However, I do have 'moments' still where I get stuck on the right word to use while conversing or writing.  This causes me pause as I quickly find a replacement word and simultaneously wonder why I'm having the difficulty.  Some would call this a senior moment, but I certainly feel it's related to the chemotherapy.

Cataracts 

I will be undergoing cataract surgery in mid April at the Massachusetts Eye and Ear Infirmary.I've been told by so many that this is a piece of cake.  However, given my luck, I'm cautiously optimistic. Dr Song tells me that 'sometimes' the inserted lens 'moves' and/or becomes clouded with gas.  If this happens, he will need to 'go in' again.  So you can see my concern. 

Cracking teeth

I find it odd that I've had three cracked teeth.  Each has happened at different times and apparently for different reasons, but one developed and abscess resulting in an abstraction.  One was cracked to the root, but the dentist is trying to save it, so it's just a matter of time for that.  A few weeks ago, I cracked a front tooth (bottom row).  I will be getting that fixed in April.  I can't help to think this too is related to chemo.

Muscle spasms

Despite the daily walking and vitamin intake, I'm still bothered by charlie horses in my calves.  This happens while sleeping and is/can be very painful.  I researched and found that quinine (tonic water) is listed as a homeopathic remedy.  I'll keep you posted.

On the bright side...

Creativity spell continues

I've been pleasantly surprised by this continuance of musical creativity.  Since September, I've written 25 songs.  I've practiced and performed 20 thus far and I continue to craft the remaining.  I have a glut of random musical ideas and snippets of lyrics.  I've been fortunate to have found a few outlets to 'try these out' on listeners.  I've been frequenting open mic sessions and have been pleased by the feedback I have received on my original compositions.  I've also been drumming up business (and followers) by playing at intimate gatherings (house parties).  I've worked on three 'sets' consisting of both my originals and cover tunes [to break it up].  I'm still dedicated to improving my piano chops and regaining some of my 'lost' soprano vocal notes that have been missing for decades.  I've regained three semi-tones on my top end.  Two more to go ;-)

I've been playing pick-up gigs and have found enjoyment in that.  I've been approached a few times by former band members to re-join them since my leaving last year.  I'm still pondering that decision since I'm not out the woods just yet (medically speaking).

More to come!

February 2016 - Updates

Well Winter has arrived.

We've been fortunate by not having anything major prior to the Groundhog's appearance.  Punxsutawney Phil's prediction of 'Spring: Right around the corner' seems a bit hollow after four rounds of shoveling today's Nor'Easter.  At least the snow is fluffier than last Friday's storm that claimed about a half dozen limbs from my pine tree.  Ya, I hate Winter.

I have two health updates to report.  I'll speak to today's visit with Dr Christian Song at Mass Eye and Ear Infirmary, Stoneham.

Scheduling an appointment in February during rush hour traffic caused some angst.  Weather reports were saying snow in the morning and getting heavier as the day progressed.  I kept waking last night wondering (and worrying) how I would get there on time and in one piece.  I woke up earlier than I wanted, but looking out the window I saw no snow.  I had heard that the Governor directed non-essential employees to stay home.  So, no snow and less traffic were conducive to a fairly stress-free ride to Stoneham.

I arrived and checked in.  I didn't have to wait too long before Amy called me in for some initial tests.  I ended up getting the whole barrage of eye tests/charts/lenses.  I was given eye drops to dilate my eyes and was also tested for glaucoma.  Very efficient.

Dr Song called me in and he reviewed my test results and also examined my eyes.  He confirmed that I had 'a significant' cataract in my right eye and said I would 'benefit' from the corrective surgery.  He did say that I also had an astigmatism in that eye and I would probably need glasses.  I asked if this could be corrected with the cataract surgery.  He said, "Yes, but the insurance won't pay for that portion."  [Odd that insurance will cover eye doctors and corrective lenses, but not the 'fix']

At this point I told the doctor that I would prefer to have both taken care of at the same time and that I'll pay for the out-of-pocket costs.  He said that he preferred to do that portion of the procedure with a laser.  However, that would need to be be done in Waltham (versus Boston). [I'd prefer to drive to Waltham anyway.]

Dr Song said that he would want to see me once again, in Waltham for some 'measurements' for my new 'torque' lens.  The surgery probably won't happen until June.  I expressed concern that the cataract in my left eye may worsen by that time.  I was happy to learn that my left eye has a 'slow' forming cataract unlike my right. [Never knew there were different types.]

So, I'll be hearing from his assistant Alyce soon.

I had a call from Dr Chatson's office confirming my next reconstruction surgery.  The next procedure (nipple reconstruction and lipo on some areas to eliminate concavity) will take place at the end of March at Orchard Surgical Center in Salem NH.  It should take a few hours.

I've been instructed to see my primary care physician some pre-op tests which have been scheduled a few weeks before the procedure.

It's been a year since I told Dr Rees about the lump in my breast.  Hard to believe.  So much has happened - and will continue.  "What a long strange trip it's been."

More to come.

January 2016 follow-up with Dr. Chatson.

It's hard to believe how fast the holidays flew by.  Here it is Little Christmas (The Epiphany) already. The primary purpose of today's appointment with Dr. Chatson was to ensure my healing was going according to plans.

I am healing properly, but to be expected (and explained in an earlier appointment), there were 'areas' requiring additional attention.  Specifically, there was a slight bulge near the reconstruction and an even slighter concavity on the reduction side.  Both could not be seen after the surgery due to the swelling, but since 99% of the swelling had dissipated, these areas were obvious to the trained eye.

Dr. Chatson said that he would address both areas during my next surgery (tentatively mid March) by using liposuction for the excess and grafting for the concavity.  He had mentioned that he may want to use a surgical center n Salem NH if it is available.  During this procedure he would also complete the reconstruction by grafting a 'divot' (for the new nipple) that will be harvested from my stomach area (near the waist line).  He was pleased with the overall progress.

I did have a few questions.  The first was about an area of my scar (at my waist line).  There was a stubborn area that wasn't healing properly. I had noticed that it appeared to be some suture material that didn't dissolve properly.  He looked at it and said, "That may be the case" and he would take care of this today.

The other question had to do with my ongoing self examination.  Prior to my surgeries, I knew my body well.  However, there are new scars, grafts, etc., that have a different 'feel'.  I asked how could I tell if I have developed any new lumps. Shortly after my surgery (when things were healing), I felt masses beneath my skin. I was wondering if that will ever change and how I would ensure that I did proper monitoring.

I pointed out the areas in question.  He said that the masses were normal (as a result of the procedures), and they would not go away.  But he did say that I raised  valid point.  "Because of your type of cancer, you may need to have a yearly follow-up for the checking of any new lumps", he said.

He directed me to the examination table. After applying some topical Novocaine I could sense his 'digging'.  He said that he did remove some 'debris' and it should heal properly.

He wants to check on availability of the surgical center and hospital for the next surgery.  Once confirmed, I will be contacted for a pre-op appointment. I did ask if I was going to have a drain, to which he said, no.   [Thank heavens.]

More to come