Merry Christmas and Happy New Year!
The years appear to fly by faster and faster with each coming new year. It's already Winter and we've had a few storms already. A Nor' Easter is predicted for Christmas Day. Let's hope it's not as bad as they say....ya right.
December had three visits to doctors. The first, with Dr. Moore coincided with my yearly mammogram at the Holy Family Breast Cancer Care Unit. Seems like just yesterday I was there, fortunately for me this time I knew what to do, and not to do, so my discomfort level was manageable. Luckily for me the doctor arranged to be on premise for my follow-up. The wait for the imaging wasn't too long and Dr. Moore saw me prior to the mammogram and 'copped a feel'. After his sign of approval he said he would come in and discuss the results of the imaging.
The mammogram went quickly. This time there was no mechanical malfunctions or computer issues. The technician indicated that things appeared normal, but the doctor would discuss the results. I waited for a longer period of time and watched many woman brought into the imaging room and eventually walk out. I was concerned that I may have been forgotten. The nurse noticed I was still waiting and I overheard her mention my name to the doctor. He soon came in and said the results were normal and provided some paperwork for the front office to schedule next year's mammogram and follow. I thanked him and proceeded to the front office. Unfortunately, I was told that I had to contact Dr. Moore's office to schedule that. Odd!
On the way out I decided to update my insurance information at the Dana Farber Unit while I was there. I then drove to Dr. Moore's office in North Andover and was able to make the appointment for next December. I was also able to update my insurance information now that I'm Medicare.
The next week I had my 6 month check up with Dr. Mehta at the Dana Farber Community Cancer Care Unit at Holy Family. As usual it was quite busy, but there wasn't a very long wait. After having my vitals taken and recorded, the medical professional reviewed my chart for changes and updates. After completion, she said the doctor will be with you shortly.
After about ten minutes, Dr. Mehta arrived and seemed quite pleased with my overall health. He commented how I looked well and rested. I asked, "Now how much money did you say you wanted to borrow?" Then added, "retirement agrees with me and I highly recommend it." He said that he has too many years to go before thinking about retirement.
Dr. Mehta could see that I had a mammogram the previous week. He requested that I remove my shirt and he performed a very thorough examination of both breasts and arm pits. I'm talking deep tissue examination. He exclaimed, "Great." Then asked that I re-dress. He gave me a prescription of Tamoxifen for another year and asked that I come see him in June. I'll be back for the Summer Solstice.
Last week I had a follow-up visit with my primary care physician, Dr. Rees. He wanted to ensure that things continue to be stable following my endo-vascular repair (EVAR) of my aneurysm as well as my general health and well-being. While there I received my (second booster) shot for pneumonia. He indicated that I will receive another at our next visit. He looked at my chart and said I had a physical scheduled for January, but because Medicare doesn't cover that cost he advised that I cancel it. [Not liking Medicare.] He said he would see me next year.
A few days later I received a written confirmation that my mammogram was normal.
I'm hopeful that there will be no more issues worth reporting so I will conclude this blog at year's end.
Thanks to all for reading and for your continued support!
Sunday, December 24, 2017
Monday, November 6, 2017
Fall 2017 Update
Dealing with coffee restrictions (due to a required fast) and the residual effect of the "Fall Back' of time, I was able to make it to UMass Medical in Worcester for my follow-up with Dr. Schanzer with no issues. I had been concerned with commuting traffic, but was lucky to have not had any major delays.
Today's visit included an ultrasound and follow-up with the doctor. I was the first patient of the day and the attendant was feeling the effects of the time change too. The clock in the lab had not been changed and I was thanked for bringing it to her attention. After my lying on the table and pulling away my shirt and lowering my pants, I was happy to have 'warm' goop applied to my abdomen. I've had previous ultra sounds where I was shocked by that 'cold' feeling. Pleasantly surprised today.
While attendant did her thing, I was watching the monitor and I believe I saw the Lock Ness monster...or maybe not. I was deprived of caffeine and I was very zombie-like. But she was capturing many images and making notations on each. I was happy to hear that she said she would review the results at the conclusion.
After a spell, the continuous pressure began to bother me, but gladly she said we were finished. She wiped me up and asked that I sit up to review the pictures. I'm glad she explained things because it all looked like a mess to me. The good news is that the graft has not moved and there was no leakage. Blood was flowing normally too. [I guess despite the lack of coffee.]
From my online chart:
"Duplex ultrasonography of the patient's endovascular aneurysm repair was performed in our vascular laboratory today. They were unable to visualize the proximal fixation zone, however the aneurysm continued to measure 5.6 cm in diameter with no residual flow seen in the aneurysm sac and no obvious evidence of endoleak. These images were personally reviewed."
When I met with Dr. Schanzer he reiterated the fact that the graft was stable with no leakage. He did say that the aneurysm (sac size) has not grown and is not being supplied with blood (thus no leakage). I asked how long it would take for the sack to get smaller. He said, 'Everyone is different. Some have the sac retract over time, others have scar tissue that keeps the sac the same size. But your sac has not grown and there is no supply of blood. The repair was a success and the threat of 'burst' has been eliminated. However, it is something you will need to have monitored for the rest of your life. I'll have you scheduled for a follow-up in March, then each year after.'
I did have a question about one of the findings listed from my CT Scan. The report indicated that I had a Hiatus Hernia. He indicated that this is not within the expertise of a vascular surgeon, but if I had not symptoms: pain; heartburn; back pain; and/or vomiting, then I shouldn't be concerned. This basically what Dr. Rees said. I'll let sleeping dogs lie.
More to come!
Today's visit included an ultrasound and follow-up with the doctor. I was the first patient of the day and the attendant was feeling the effects of the time change too. The clock in the lab had not been changed and I was thanked for bringing it to her attention. After my lying on the table and pulling away my shirt and lowering my pants, I was happy to have 'warm' goop applied to my abdomen. I've had previous ultra sounds where I was shocked by that 'cold' feeling. Pleasantly surprised today.
While attendant did her thing, I was watching the monitor and I believe I saw the Lock Ness monster...or maybe not. I was deprived of caffeine and I was very zombie-like. But she was capturing many images and making notations on each. I was happy to hear that she said she would review the results at the conclusion.
After a spell, the continuous pressure began to bother me, but gladly she said we were finished. She wiped me up and asked that I sit up to review the pictures. I'm glad she explained things because it all looked like a mess to me. The good news is that the graft has not moved and there was no leakage. Blood was flowing normally too. [I guess despite the lack of coffee.]
From my online chart:
"Duplex ultrasonography of the patient's endovascular aneurysm repair was performed in our vascular laboratory today. They were unable to visualize the proximal fixation zone, however the aneurysm continued to measure 5.6 cm in diameter with no residual flow seen in the aneurysm sac and no obvious evidence of endoleak. These images were personally reviewed."
When I met with Dr. Schanzer he reiterated the fact that the graft was stable with no leakage. He did say that the aneurysm (sac size) has not grown and is not being supplied with blood (thus no leakage). I asked how long it would take for the sack to get smaller. He said, 'Everyone is different. Some have the sac retract over time, others have scar tissue that keeps the sac the same size. But your sac has not grown and there is no supply of blood. The repair was a success and the threat of 'burst' has been eliminated. However, it is something you will need to have monitored for the rest of your life. I'll have you scheduled for a follow-up in March, then each year after.'
I did have a question about one of the findings listed from my CT Scan. The report indicated that I had a Hiatus Hernia. He indicated that this is not within the expertise of a vascular surgeon, but if I had not symptoms: pain; heartburn; back pain; and/or vomiting, then I shouldn't be concerned. This basically what Dr. Rees said. I'll let sleeping dogs lie.
Continuing Side Effects
I'm still learning to deal with the long term effects of chemotherapy. Sometimes I'm unsure if it's that or my aging...or both. But I continue to soldier on despite this.- Neuropathy - Luckily I'm still able to walk daily. It doesn't appear that this condition has worsened, but I must be extremely careful of my footing and must ensure that I have protection for my feet. I had a blister develop on my big toe, but I never felt it. I was wearing 'the wrong kind of socks' that day and the weave caused too much friction. Just another thing to be mindful of. I can still stand on my toes and heals. [The Page family will understand this.] I'm still having that weird issue with my thumb and forefinger. I try the best I can to work around this. Sometimes, just changing to another guitar helps. Other times, I just need a break. Like I said - odd.
- Light-headed-ness - Between the hypertension meds and the Tamoxifen I have to be extremely careful standing up after sitting for an extended period. Although I've had a few close calls, I haven't 'blacked-out', but I have seen stars. Just another thing to be aware of.
- Raspy/Hoarse throat - Although I've stopped Atorvastatin because of this unwelcome side effect, Tamoxifen also has this listed as a possible side effect. There are certain notes in my range that I have to approach differently for the correct pitch to come out. This does keep me playing the piano and doing vocal exercises. So there's an up side.
- Charlie Horse - I guess it's the new normal. I have them just about every night. The good news is I can tell when it's beginning so I can move my legs into a position which prevents or lessens the spasm. I'm becoming an expert. I rarely have to jump out of bed and stand. I'm able to maneuver to a position while being horizontal. Still not fun.
- Hot Flashes - Ya, they are still here, but not as numerous.
More to come!
Wednesday, August 30, 2017
Summer's Almost Gone
I guess it's a good sign that I haven't had to provide updates to my blog. Summer has come and is now on the way out - unfortunately. But we knew that would happen.
Since my last update, I had a follow-up with my primary care provider, Dr. Rees. All systems are normal and nothing out of the ordinary to report. Yay!
Since I had my follow-up CT scan after my EVR (aneurysm repair), I did receive notification through my portal that the results indicated a hiatus hernia and a dissented gall bladder with no stones. I've been concerned as to what that really meant and if I needed to do anything (or not do anything) proactively.
When asked of Dr. Rees, he smiled and said, "When I do tests and results come back, I will indicate the seriousness of the findings. You don't need to be concerned with the findings unless you are having symptoms". I asked what symptoms I should be aware of. He said, "Both conditions if symptomatic, would result in chest pain or discomfort. Have you experienced that"? I said, no. He said, "Then don't worry."
I expressed concern over re-starting my daily exercises (sit-ups, stretching and bends). When allowed to resume in April, I experienced a painful abdomen. So I stopped. Dr. Rees said, " It's OK to resume, but take it slowly. It's possible that your pain was caused by the normal course of exercising a muscle. Nothing to be concerned with and no correlation to those two conditions."
So I'm resuming my exercises in addition to my continuance of my daily walks averaging about 30 miles a week.
Since my last update, I had a follow-up with my primary care provider, Dr. Rees. All systems are normal and nothing out of the ordinary to report. Yay!
Since I had my follow-up CT scan after my EVR (aneurysm repair), I did receive notification through my portal that the results indicated a hiatus hernia and a dissented gall bladder with no stones. I've been concerned as to what that really meant and if I needed to do anything (or not do anything) proactively.
When asked of Dr. Rees, he smiled and said, "When I do tests and results come back, I will indicate the seriousness of the findings. You don't need to be concerned with the findings unless you are having symptoms". I asked what symptoms I should be aware of. He said, "Both conditions if symptomatic, would result in chest pain or discomfort. Have you experienced that"? I said, no. He said, "Then don't worry."
I expressed concern over re-starting my daily exercises (sit-ups, stretching and bends). When allowed to resume in April, I experienced a painful abdomen. So I stopped. Dr. Rees said, " It's OK to resume, but take it slowly. It's possible that your pain was caused by the normal course of exercising a muscle. Nothing to be concerned with and no correlation to those two conditions."
So I'm resuming my exercises in addition to my continuance of my daily walks averaging about 30 miles a week.
Continued side effects
- Charlie horse - unfortunately these continue but mostly when I'm sleeping. A very rude awakening (literally) when I have to address these.
- Hot Flashes - although they have abated, I still get them from time to time.
- Neuropathy - conditions haven't worsened for my feet, but I do have spells where my feet feel like they are burning, especially after a very long walk. I'm still experiencing numbness in my finger and thumb, but there is still no rhyme or reason how and when this happens.
Wednesday, June 14, 2017
Mid - June Updates
Well finally...finally we are having summer-like weather. It's been so cold prior to our heat wave of the last few days. We are reminded that this is New England and weather patterns are quirky at best. The weather has changed and today is absolutely beautiful. Let's hope the nice weather sticks around for a spell.
Last week I had a follow-up nurse visit at my primary care. Dr. Rees had asked me to 'drop in' for a lipid test. Since my visit with him and as a follow-up to my Triple A repair, he was in agreement with me that I didn't need the cholesterol drug - Atorvastatin prescribed by Dr. Schanzer. So I had stopped taking it last month. Dr. Rees wanted to see what my 'numbers' looked like after a month off the drug. Good news. They are stellar. YAY - something is going right.
Today I had my 6 month follow-up with Dr. Mehta at Dana Farber, Holy Family in Methuen. I was barely finished with my check in when I was called in. After the nurse took my vitals, Dr Mehta quickly arrived. He asked me how things were going. I had mentioned that since my last visit, I had my Triple A repaired but had a tough time recovering. Also, I had a visit with Dr. Ross (Neurologist). I was told there was nothing he could do for my neuropathy. Dr. Mehta said, "I thought that may be the case, but wanted you to see him to rule out a cause by something other than chemotherapy." Dr. Mehta said again, "We discussed the risks at the time of our discussions on type of chemo." I said that it's more of nuisance, but I'm able to enjoy life despite the neuropathy in my feet.
He asked if I had been taking Tamoxifen. I said, yes. He asked about the side effects - hot flashes and I said they seemed to have abated since the late winter months. He said, "That was the expectation. You shouldn't get anymore." I did mention about the weird neuropathy in my thumb and finger and that there's no rhyme or reason for the cycles. I said, "Today is a bad day. I have noticed, but it may be circumstantial, but it seems to worsen around the full moon." He had no comment to add.
He had me remove my shirt and commented on the results of the reconstruction surgery. "This came out great. No one would even know", he said. He proceeded to check for lumps and masses. I had mentioned that I do self-examinations, but am perplexed with the lumps I find as a result of the reconstruction. Also, as nerves regenerate, there is sometimes pain in the area, but my first thoughts have been: Is it coming back? He told me that I'm fine, at a low risk and not to be concerned with numbers/percentages. I had mentioned that I did have some level of anxiety prior to today's appointment. He said, "I would too, but you are good. We'll see you in 6 months."
More to come!
Last week I had a follow-up nurse visit at my primary care. Dr. Rees had asked me to 'drop in' for a lipid test. Since my visit with him and as a follow-up to my Triple A repair, he was in agreement with me that I didn't need the cholesterol drug - Atorvastatin prescribed by Dr. Schanzer. So I had stopped taking it last month. Dr. Rees wanted to see what my 'numbers' looked like after a month off the drug. Good news. They are stellar. YAY - something is going right.
Today I had my 6 month follow-up with Dr. Mehta at Dana Farber, Holy Family in Methuen. I was barely finished with my check in when I was called in. After the nurse took my vitals, Dr Mehta quickly arrived. He asked me how things were going. I had mentioned that since my last visit, I had my Triple A repaired but had a tough time recovering. Also, I had a visit with Dr. Ross (Neurologist). I was told there was nothing he could do for my neuropathy. Dr. Mehta said, "I thought that may be the case, but wanted you to see him to rule out a cause by something other than chemotherapy." Dr. Mehta said again, "We discussed the risks at the time of our discussions on type of chemo." I said that it's more of nuisance, but I'm able to enjoy life despite the neuropathy in my feet.
He asked if I had been taking Tamoxifen. I said, yes. He asked about the side effects - hot flashes and I said they seemed to have abated since the late winter months. He said, "That was the expectation. You shouldn't get anymore." I did mention about the weird neuropathy in my thumb and finger and that there's no rhyme or reason for the cycles. I said, "Today is a bad day. I have noticed, but it may be circumstantial, but it seems to worsen around the full moon." He had no comment to add.
He had me remove my shirt and commented on the results of the reconstruction surgery. "This came out great. No one would even know", he said. He proceeded to check for lumps and masses. I had mentioned that I do self-examinations, but am perplexed with the lumps I find as a result of the reconstruction. Also, as nerves regenerate, there is sometimes pain in the area, but my first thoughts have been: Is it coming back? He told me that I'm fine, at a low risk and not to be concerned with numbers/percentages. I had mentioned that I did have some level of anxiety prior to today's appointment. He said, "I would too, but you are good. We'll see you in 6 months."
More to come!
Friday, May 12, 2017
Dr. Song follow-up and other 'lovely' updates
It's been a year since I had my cataract laser surgery and my In-Ocular-Lens (I.O.L.) implant. Today, I had my 'yearly' check -up with Dr. Song at the Waltham location for the Massachusetts Eye and Ear.
Traffic cooperated today and I arrived a half hour early to a packed waiting room. It didn't seem to take too long before I was called in for my eye test(s) and dilation. My vision continues to be very good in both eyes and I do not need corrective lenses. My cataract in my left eye hasn't changed much since my last screening (about 6 months ago). Everything checked out OK. I was asked to return to waiting room so the dilation drops could take effect.
About 15 minutes later Dr. Song called me into his examination room. He had mentioned that he was reviewing my chart/history and seemed surprised about my recent Triple A repair. He asked how things were going (for my eyes). I had mentioned that the only 'issue' I had was the halo effect I experience when I go into an area that has heavy fluorescent lighting and/or bright (LED) overheads. I mentioned that my brain assimilates after a period and I'm no longer aware of the anomaly. He reminded me that this is caused by moisture buildup between the lens and the tissue at the bottom of the 'capsule'. "This can be easily corrected," he said. "We can monitor this and if it gets worse or becomes bothersome, we can discuss performing the procedure". I agreed. He then to check my eyes. The good news is: Everything looks good and I will need to see him next year. [Yay]
I left his office and visited the receptionist for next year's appointment information. Leaving the office the sun decided to make a rare appearance and I was glad to have remembered to bring my sun glasses in with me. Between the bright sun and the dilated eyes, I'd be squinting without the glasses.
The ride home was uneventful.
It must be a law or protocol to inform the patient of the results of any type of imaging performed. Last December, I was notified that there was no cancer detected in my mammogram. Well I did get the results of the CT scan I had done at UMass Medical on May 1st.
Primarily, the results were favorable for the final placement of the stent (repair of the Triple A) and there was no endo-leak. However, there was a notation that the aneurysm was now a bit larger (6 cm.). I recall my research and Dr. Schanzer's saying that the 'sac' will begin to shrink over time. He did say that the risk of rupture (at the site) has been almost eliminated. There is no blood supply or leak that could cause this. This news is just a bit disconcerting to me. But they are the professionals and I'm scheduled to see him in December. I'm optimistic that things will be better. [Fingers crossed]
There were also two entries that surprised me. Apparently I have a Hiatus Hernia (not Hiatal) and a distended gall bladder without stones.
The report also indicated that a copy would go to my PCP. So I have some questions to ask Dr. Rees when I see him in August. As Rosanne Rosannadanna used to say: It's always something!
More to come.
Traffic cooperated today and I arrived a half hour early to a packed waiting room. It didn't seem to take too long before I was called in for my eye test(s) and dilation. My vision continues to be very good in both eyes and I do not need corrective lenses. My cataract in my left eye hasn't changed much since my last screening (about 6 months ago). Everything checked out OK. I was asked to return to waiting room so the dilation drops could take effect.
About 15 minutes later Dr. Song called me into his examination room. He had mentioned that he was reviewing my chart/history and seemed surprised about my recent Triple A repair. He asked how things were going (for my eyes). I had mentioned that the only 'issue' I had was the halo effect I experience when I go into an area that has heavy fluorescent lighting and/or bright (LED) overheads. I mentioned that my brain assimilates after a period and I'm no longer aware of the anomaly. He reminded me that this is caused by moisture buildup between the lens and the tissue at the bottom of the 'capsule'. "This can be easily corrected," he said. "We can monitor this and if it gets worse or becomes bothersome, we can discuss performing the procedure". I agreed. He then to check my eyes. The good news is: Everything looks good and I will need to see him next year. [Yay]
I left his office and visited the receptionist for next year's appointment information. Leaving the office the sun decided to make a rare appearance and I was glad to have remembered to bring my sun glasses in with me. Between the bright sun and the dilated eyes, I'd be squinting without the glasses.
The ride home was uneventful.
Other medical updates
It must be a law or protocol to inform the patient of the results of any type of imaging performed. Last December, I was notified that there was no cancer detected in my mammogram. Well I did get the results of the CT scan I had done at UMass Medical on May 1st.
Primarily, the results were favorable for the final placement of the stent (repair of the Triple A) and there was no endo-leak. However, there was a notation that the aneurysm was now a bit larger (6 cm.). I recall my research and Dr. Schanzer's saying that the 'sac' will begin to shrink over time. He did say that the risk of rupture (at the site) has been almost eliminated. There is no blood supply or leak that could cause this. This news is just a bit disconcerting to me. But they are the professionals and I'm scheduled to see him in December. I'm optimistic that things will be better. [Fingers crossed]
There were also two entries that surprised me. Apparently I have a Hiatus Hernia (not Hiatal) and a distended gall bladder without stones.
- I did some research on the hernia. The Hiatus is the end of the esophagus as it 'starts' the stomach. This condition can be caused by acid re flux (GERD) [Which I have]; straining; excessive coughing; sneezing, and some others. There are no symptoms until it gets bad. For many there are no real problems. But with my luck....
- The distended gall bladder research indicated that the cause could be a blockage of the bile duct (generally a stone) or another serious type of illness - my cancer?? Once again the symptoms mimic other maladies (heart attack being one) and manifest as the condition worsens. Treatment is exercise and proper diet or removal of the gall bladder. I currently get a good amount of exercise (walking) and I'm good about making healthy choices when it comes to eating. [Thank you, Weight Watchers] So I'll have to 'be aware' of this.
The report also indicated that a copy would go to my PCP. So I have some questions to ask Dr. Rees when I see him in August. As Rosanne Rosannadanna used to say: It's always something!
More to come.
Sunday, May 7, 2017
Follow-up with PCP - Dr. Rees
According to my instructions on my discharge paperwork that I received from UMass Medical, I had scheduled a follow-up visit with my primary care provider (PCP) - Dr. Rees. He now works part-time and I was unexpectedly surprised when he showed his face. He now 'Winters" in Florida and comes back to work in the Spring. I have history with him, so his presence made me feel that much better.
Everything is run off computers these days, so with laptop in hand, he entered the examination room. After greeting, he said that he was reading the 'file' and he has seen that I have been through a lot since our last face-to-face (August). But he expressed satisfaction in knowing it is all in the past (as I am).
He checked my vitals and reviewed my medication list and recent test results. "Things look good," he said. He asked if I had any questions or needed to talk about any 'new business'. I took the opportunity to state my case for not needing Atorvastatin. I likened it to an honor student being forced to attend summer school. My cholesterol numbers have been stellar - without medication, so having to take this was like a slap in the face. Dr. Rees agreed with me.
He said, "Just because there are pills, doesn't mean that we have to take them all. Atorvastatin is not a blood thinner and although it also used to treat heart disease, you don't have heart disease. I would stop taking it." Fine with me. He asked that I come in for a lipid (cholesterol blood test) in about a month to ensure that my numbers are at their historical levels.
I'm glad to be off Atorvastatin, but I'm sure it will take a bit before I notice any side effects diminishing. It should be interesting to see if my runny nose and hoarseness goes away...and anything else I've gotten used to.
Energy levels are improving and I'm almost to the point of wellness just prior to the procedure. I was able to work in the yard today and mow the lawn. It was a struggle toward the end, but I made it.
More to come.
Everything is run off computers these days, so with laptop in hand, he entered the examination room. After greeting, he said that he was reading the 'file' and he has seen that I have been through a lot since our last face-to-face (August). But he expressed satisfaction in knowing it is all in the past (as I am).
He checked my vitals and reviewed my medication list and recent test results. "Things look good," he said. He asked if I had any questions or needed to talk about any 'new business'. I took the opportunity to state my case for not needing Atorvastatin. I likened it to an honor student being forced to attend summer school. My cholesterol numbers have been stellar - without medication, so having to take this was like a slap in the face. Dr. Rees agreed with me.
He said, "Just because there are pills, doesn't mean that we have to take them all. Atorvastatin is not a blood thinner and although it also used to treat heart disease, you don't have heart disease. I would stop taking it." Fine with me. He asked that I come in for a lipid (cholesterol blood test) in about a month to ensure that my numbers are at their historical levels.
I'm glad to be off Atorvastatin, but I'm sure it will take a bit before I notice any side effects diminishing. It should be interesting to see if my runny nose and hoarseness goes away...and anything else I've gotten used to.
Energy levels are improving and I'm almost to the point of wellness just prior to the procedure. I was able to work in the yard today and mow the lawn. It was a struggle toward the end, but I made it.
More to come.
Monday, May 1, 2017
It's May! (Sure doesn't feel it)
Happy May 1st everyone. I guess the warm (summer-like) weather we had a few days ago just couldn't stick around long enough to greet the new month. This is New England and more rain is predicted. Drought, be gone!
I had my (little more than a) month follow-up since my Triple A repair (EVAR). I fasted four hours prior to a CT scan. But basically, when the exam is scheduled for 11:30, I had been fasting since night before. I can handle the lack of food intake, but I'm in a perpetual fog without my coffee.
Checking in at Radiology at 11, I was given my mandatory SAT to complete. Seems they are always giving me something to complete that requires my looking up answers. For example, how old ma was when she passed. I get my calculator app fired up and subtract 2001 from 1923 (year of death/year of birth). I'm good at remembering the dates, but not so much on the number of years alive. Same for dad. I finished and waited...and waited. Finally at 12:15 PM, I complained. I did have a follow-up visit with Dr. Schanzer at 1PM and I was concerned.
Don't know if it was happenstance or the squeaky wheel syndrome, but I was called in with a few minutes of my returning to my seat. I was guided down a long corridor and was instructed to enter the imaging room. There were two attendants and they were furiously working to get everything in order. I was told to lie down and pull my pants down to my knees. I was covered with a blanket while one attendant prepared my vein for the IV. Before I knew it, the saline was coursing through my veins and both technicians left the room to view me from the control room. They took about four passes. [They must have a recorded female voice that they use to provide instructions: "Take a deep breath and hold. Now exhale and breathe regularly." I saw no woman in sight.]
I heard one attendant say, "Here comes the warm feeling". At that point I could feel the "contrast" (nuclear dye??) enter my body and diffuse through my veins. It was warm, but not painful. My hot flashes seem stronger. I took a few more rides in and out of the tube and was told that we were done. I looked at the clock and the whole thing took about 15 minutes. [Do shoulder shrug here.]
I left and thankfully, there was a kiosk right outside radiology and they had Starbucks. [High Test]. I ordered a small back and a blueberry muffin. Not cheap, but convenience has its price. The coffee was wicked hot, but after a significant amount of blowing, I was able to caffeinated myself. I felt my brain waking up. [Almost heaven].
I had 15 minutes to get across the street and up to the third floor for Dr. Schanzer. Walking while sipping I got there in 5 minutes. I checked in and got another round of SAT paperwork to complete, but I was called before I finished. Angela said she'd help me out. She took my vitals and we stopped into my examination room. She looked at the paperwork and asked the questions and entered the information to their computer system. I was asked to strip down to my undershorts and was given a johnnie to cover my lap. "Dr. Schanzer will be with you shortly", Angela said.
It seemed to be about 20 minutes of waiting before a colleague of Dr. Schanzer's arrived. Apparently, Dr. Schanzer was delayed in the operating room. She [can't remember her name] said that she reviewed the CT scan results and everything looked good. She indicated that there was no leak, but they were going to monitor an artery (to the lumbar region) that will correct itself over time. She said that I'll have a follow-up ultrasound in 6 months. She said I could wait for Dr. Schanzer, but I didn't have to if I didn't want to wait any longer. I indicated that I was here, so I'll wait.
Not long after, Dr. Schanzer knocked on the door and entered. After apologizing for the wait, he reiterated what his colleague had told me. He did explain that the artery they are watching is not leaking. There is no blood source. The body makes this correction over time. [I recall some of my early research indicated that this condition is fairly common. The body is smart and will re-route veins and arteries when one is (some are) no longer functioning. There is also redundancy so there are many arteries/veins to take up the extra slack to ensure delivery of blood.]
Dr. Schanzer said I have no restrictions and he will see me in 6 months. He shook my hand and I left to schedule the follow-up.
Yet another health issue can be closed (almost). I no longer have to worry about a rupture at the most inopportune time. Only if the sun were out today. There's always tomorrow and the day after.....
More to come!
I had my (little more than a) month follow-up since my Triple A repair (EVAR). I fasted four hours prior to a CT scan. But basically, when the exam is scheduled for 11:30, I had been fasting since night before. I can handle the lack of food intake, but I'm in a perpetual fog without my coffee.
Checking in at Radiology at 11, I was given my mandatory SAT to complete. Seems they are always giving me something to complete that requires my looking up answers. For example, how old ma was when she passed. I get my calculator app fired up and subtract 2001 from 1923 (year of death/year of birth). I'm good at remembering the dates, but not so much on the number of years alive. Same for dad. I finished and waited...and waited. Finally at 12:15 PM, I complained. I did have a follow-up visit with Dr. Schanzer at 1PM and I was concerned.
Don't know if it was happenstance or the squeaky wheel syndrome, but I was called in with a few minutes of my returning to my seat. I was guided down a long corridor and was instructed to enter the imaging room. There were two attendants and they were furiously working to get everything in order. I was told to lie down and pull my pants down to my knees. I was covered with a blanket while one attendant prepared my vein for the IV. Before I knew it, the saline was coursing through my veins and both technicians left the room to view me from the control room. They took about four passes. [They must have a recorded female voice that they use to provide instructions: "Take a deep breath and hold. Now exhale and breathe regularly." I saw no woman in sight.]
I heard one attendant say, "Here comes the warm feeling". At that point I could feel the "contrast" (nuclear dye??) enter my body and diffuse through my veins. It was warm, but not painful. My hot flashes seem stronger. I took a few more rides in and out of the tube and was told that we were done. I looked at the clock and the whole thing took about 15 minutes. [Do shoulder shrug here.]
I left and thankfully, there was a kiosk right outside radiology and they had Starbucks. [High Test]. I ordered a small back and a blueberry muffin. Not cheap, but convenience has its price. The coffee was wicked hot, but after a significant amount of blowing, I was able to caffeinated myself. I felt my brain waking up. [Almost heaven].
I had 15 minutes to get across the street and up to the third floor for Dr. Schanzer. Walking while sipping I got there in 5 minutes. I checked in and got another round of SAT paperwork to complete, but I was called before I finished. Angela said she'd help me out. She took my vitals and we stopped into my examination room. She looked at the paperwork and asked the questions and entered the information to their computer system. I was asked to strip down to my undershorts and was given a johnnie to cover my lap. "Dr. Schanzer will be with you shortly", Angela said.
It seemed to be about 20 minutes of waiting before a colleague of Dr. Schanzer's arrived. Apparently, Dr. Schanzer was delayed in the operating room. She [can't remember her name] said that she reviewed the CT scan results and everything looked good. She indicated that there was no leak, but they were going to monitor an artery (to the lumbar region) that will correct itself over time. She said that I'll have a follow-up ultrasound in 6 months. She said I could wait for Dr. Schanzer, but I didn't have to if I didn't want to wait any longer. I indicated that I was here, so I'll wait.
Not long after, Dr. Schanzer knocked on the door and entered. After apologizing for the wait, he reiterated what his colleague had told me. He did explain that the artery they are watching is not leaking. There is no blood source. The body makes this correction over time. [I recall some of my early research indicated that this condition is fairly common. The body is smart and will re-route veins and arteries when one is (some are) no longer functioning. There is also redundancy so there are many arteries/veins to take up the extra slack to ensure delivery of blood.]
Dr. Schanzer said I have no restrictions and he will see me in 6 months. He shook my hand and I left to schedule the follow-up.
Yet another health issue can be closed (almost). I no longer have to worry about a rupture at the most inopportune time. Only if the sun were out today. There's always tomorrow and the day after.....
More to come!
Wednesday, April 19, 2017
I'm ready for my close up, Mr Demille
Had my post tattoo follow up with Dr. Chatson today. My tattoo was inked mid February, so he wanted me to come in, 'in a few months' to see how the finished product came out. It's amazing what multiple plastic surgeries can do and a tattoo. Other than some scars (that will fade with time), everything looks great.
He seemed please with the results also. He rushed to get his camera. Dr. Chatson had been taking pictures of the before, during and after phases of my reconstruction. I'll be in his 'book' he shows to perspective patients. Of course there is no face shot, just that of 'the work'.
After he took a few shots some head on, some angled, he shook my hand and said it was a pleasure getting to know me. He wished me luck and said there was no need to see him again unless there is a change that concerns me.
It's been almost two years since my first surgery (mastectomy). It's been quite the journey, but time has sped by. I can now close the chapter on my reconstruction.
Some of my side effects seem to have abated.
I have a CT scan and a follow-up visit with Dr. Schanzer on May 1st. An update on this will be forthcoming.
More to come!
He seemed please with the results also. He rushed to get his camera. Dr. Chatson had been taking pictures of the before, during and after phases of my reconstruction. I'll be in his 'book' he shows to perspective patients. Of course there is no face shot, just that of 'the work'.
After he took a few shots some head on, some angled, he shook my hand and said it was a pleasure getting to know me. He wished me luck and said there was no need to see him again unless there is a change that concerns me.
It's been almost two years since my first surgery (mastectomy). It's been quite the journey, but time has sped by. I can now close the chapter on my reconstruction.
Other medical updates:
After two weeks of a hellish recovery from my Triple A procedure, I have begun to return to some form of normalcy in week three. My energy level has been tough to maintain, but I have been able to walk (almost daily) for about 3 miles. Some days I make it past 4 miles.Some of my side effects seem to have abated.
- My back pain and flank pain has improved greatly although it's still there. I believe being mobile helps lessen this.
- I am beginning to return to normal sleep patterns. I'm now sleeping about 7-8 hours a night versus the 15 I had experienced during the first two weeks.
- Still unexplained, my neuropathy in my thumb and finger flared up but is now calming down. So strange. I did pick up my guitar last Saturday for the first time. A little rusty, but I've been playing more often. I need to get back to playing piano and singing.
- I've notice my voice is very tight (and out of shape). The hoarseness I had seems to have abated, so I think it's time to start vocal exercises.
- I haven't resumed my daily in-house exercises yet although I should be doing that too.
I have a CT scan and a follow-up visit with Dr. Schanzer on May 1st. An update on this will be forthcoming.
More to come!
Tuesday, April 11, 2017
Two week follow-up
Trekked into UMass Medical, Worcester with my sister, who on this National Siblings Day was kind enough to drive me (again). I had been restricted from diving since the procedure and although I could have driven myself, it would be just my rotten luck that something would happen when I wasn't supposed to be operating. Thanks, Les!
The weather was wonderful. We wanted the windows open, but the wind made it difficult to converse. So we resorted to cracking the window when it got a bit stuffy. I told her it was reminiscent of my daily hot flashes (from Tamoxifen). Nice ride, great company and good conversation.
We didn't get lost this time, nor depended on the GPS to lead us to a road closure. We got the 'perfect' parking spot and made it right when I had planned to be there. Prior to boarding the elevator to the 3rd floor we each visited our respective restrooms. [Insert inappropriate Bathroom Bill humor here.] I was truly surprised for a healthcare facility, the there were no paper towels or hot air hand dryers. Don't you just hate it when you follow all the directions and wash thoroughly with lots of soap and water and then find yourself going from dispenser to dispenser in search of that towel. And it wasn't even April Fools Day. Pant legs took the excess moisture.
Arriving on the third floor, it wasn't long before an attendant took my information and copay when she gave me a clipboard for my SAT's and asked me to sit. I had only completed the first two sheets before a nurse called my name and directed me into the inner sanctum. Traversing myriad hallways, I landed in an examination room and had my vitals taken. The nurse helped me with the SAT paperwork and asked that I strip down below my waist and place a johnnie over my lap.
Shortly after Shauneen Valliere, NP entered, announced herself and extended her hand. I was glad mine was dry. She asked how I was doing and I told her my difficulties with the recovery process. She indicated that much of my trouble was a result of all the meds, anesthesia, and antibiotics I was given over a short time. She said, "Although outwardly. it looks like not much has happened, inside that's not the case. The body needs time to adjust and get back on schedule."
I discussed some of the side effects that have persisted and she seemed a bit perplexed with the pain that I had been having in my back and flank. She said, "We don't have the most comfortable beds and you're spending so much time (lately) on your back, the pain could be from those. Other patients had reported that side effects of the statin cause pain the large muscles (like the leg and thigh), but your pain could be something else." As Dr Schanzer said, and she echoed, "Give it some time.'
Shauneen then looked at the surgical sight and mentioned the bruising. It had been worse. She then said she was going to press and to let her know if there was any pain. She pressed harder and harder as if she was hoping there would be pain, but there was none. She seemed pleased. She told me that I would be contacted to schedule a 3D ultrasound and CT scan to ensure that 'things landed where they were supposed to', and to check for endo-leaks. She said early detection was critical. After a few months, I would need another ultrasound, then yearly monitoring- for the rest of my life. [This was no surprise to me.]
I was given the green light to drive again, encouraged to resume my walking regimen (I had walked more than 6 miles over the last three days). I asked about resumption of my exercising and she said, "Start slow." At that, she wished me good luck and said, "You need no paperwork so you are free to go."
I met Leslie and we were on our merry way. Arriving home I 'drove' to the grocery market and shopped and upon returning took a 4 mile walk in the summer-like weather.
So finally, I'm seeing the improvement that had eluded me.
More to come.
The weather was wonderful. We wanted the windows open, but the wind made it difficult to converse. So we resorted to cracking the window when it got a bit stuffy. I told her it was reminiscent of my daily hot flashes (from Tamoxifen). Nice ride, great company and good conversation.
We didn't get lost this time, nor depended on the GPS to lead us to a road closure. We got the 'perfect' parking spot and made it right when I had planned to be there. Prior to boarding the elevator to the 3rd floor we each visited our respective restrooms. [Insert inappropriate Bathroom Bill humor here.] I was truly surprised for a healthcare facility, the there were no paper towels or hot air hand dryers. Don't you just hate it when you follow all the directions and wash thoroughly with lots of soap and water and then find yourself going from dispenser to dispenser in search of that towel. And it wasn't even April Fools Day. Pant legs took the excess moisture.
Arriving on the third floor, it wasn't long before an attendant took my information and copay when she gave me a clipboard for my SAT's and asked me to sit. I had only completed the first two sheets before a nurse called my name and directed me into the inner sanctum. Traversing myriad hallways, I landed in an examination room and had my vitals taken. The nurse helped me with the SAT paperwork and asked that I strip down below my waist and place a johnnie over my lap.
Shortly after Shauneen Valliere, NP entered, announced herself and extended her hand. I was glad mine was dry. She asked how I was doing and I told her my difficulties with the recovery process. She indicated that much of my trouble was a result of all the meds, anesthesia, and antibiotics I was given over a short time. She said, "Although outwardly. it looks like not much has happened, inside that's not the case. The body needs time to adjust and get back on schedule."
I discussed some of the side effects that have persisted and she seemed a bit perplexed with the pain that I had been having in my back and flank. She said, "We don't have the most comfortable beds and you're spending so much time (lately) on your back, the pain could be from those. Other patients had reported that side effects of the statin cause pain the large muscles (like the leg and thigh), but your pain could be something else." As Dr Schanzer said, and she echoed, "Give it some time.'
Shauneen then looked at the surgical sight and mentioned the bruising. It had been worse. She then said she was going to press and to let her know if there was any pain. She pressed harder and harder as if she was hoping there would be pain, but there was none. She seemed pleased. She told me that I would be contacted to schedule a 3D ultrasound and CT scan to ensure that 'things landed where they were supposed to', and to check for endo-leaks. She said early detection was critical. After a few months, I would need another ultrasound, then yearly monitoring- for the rest of my life. [This was no surprise to me.]
I was given the green light to drive again, encouraged to resume my walking regimen (I had walked more than 6 miles over the last three days). I asked about resumption of my exercising and she said, "Start slow." At that, she wished me good luck and said, "You need no paperwork so you are free to go."
I met Leslie and we were on our merry way. Arriving home I 'drove' to the grocery market and shopped and upon returning took a 4 mile walk in the summer-like weather.
So finally, I'm seeing the improvement that had eluded me.
More to come.
Thursday, April 6, 2017
Week One of recuperation
Believe it or not, it's April. Thank you Mother Nature for providing a not so funny April Fool's day storm. Luckily for me, I didn't (and couldn't) be part of the clean-up, but true friends were there for me to dig me out and rake the roof. Greatly appreciated!
We had a glimpse of Spring on Opening Day although I was not able to participate except enviously enjoying the sun and warmth through my windows. This was short lived and we are back in the cold wet rainy pattern. Can it be long before we are complaining about the heat and humidity?
This latest battle for health has been my toughest yet. I thought round 4 of chemo was bad, but that was a walk in the park compared to my last week in hell. Kicking off with extreme tiredness; no appetite; no sense of taste; constipation; general discomfort and malaise I gradually regained some sense of taste and was able to have some sustenance. An angel of mercy dropped off some protein drinks, Pro-biotic Yogurt and other easy to eat munchies. Initially all I wanted to (and could only) do was sleep. When I was tired of sleeping, I slept some more. I had zero energy. Each time I stood up I could see my vision dissolve to black, then recover. This was a side effect of my hypertension meds, but exacerbated by my lack of energy and body fuel (food). Oddly enough, there was only minor discomfort at the surgical sites, but my back and flank could find no happy spot that would relive the pain. I was fearful to take OxyContin because of those side effects (constipation) so Tylenol was substituted and it seemed to help - somewhat. I did resort to MiraLax and after day four I had my first (very small) movement. I've had subsequent voids, but each produced low output. Granted I wasn't eating much.
As the days progressed, my improvements failed to be realized. However my appetite was improving and I expanded my diet to oatmeal, roll-up sandwiches, cheese snacks (I know it's binding.) By the weekend I had cravings for foods and gravitated toward those, whether they were healthy choices or not. I had already lost seven pounds so eating a candy bar was probably OK. By the weekend I was craving pizza. Another not so health choice, but it was hot and gooey and I was craving it. I really did nothing other than sleep, munch, watch some TV and surf the net.
I've been really concerned with the new meds prescribed. My biggest concern was Atorvastatin. It's generally given to treat high cholesterol, but fortunately for me my 'numbers' have been traditionally desirable without medication, so having to take this drug equates to a slap in the face. I did discuss this with my doctor and agreed to 'try it for awhile'. The paperwork I received from the pharmacy did say that it prevents heart attacks and strokes. But there must be other drugs that do this without the side effects.
Side effects are different for each person, but for me they are as follows:
Other than those listed above, my next biggest challenge was state of mind. Having gone through many health battles, keeping positive and finding inner strength has been nearly impossible.
[Post Script: **Clarification - I had many find my statements rash and alarming. Some personally reached out to me. After my explaining the background and reasoning, each had a better idea as to what I meant and were supportive.
Simply put, I will no longer pursue any musical activity that would require a significant physical commitment. I can no longer fulfill the roadie/musician role. I'm no longer 25 and the personal physical toll of a load in, set up, performance, breakdown and load out are no longer viable. I can/will pursue situations where there is a minimal amount of physical exertion. I apologize for needlessly alarming my family friends and readers.]
We had a glimpse of Spring on Opening Day although I was not able to participate except enviously enjoying the sun and warmth through my windows. This was short lived and we are back in the cold wet rainy pattern. Can it be long before we are complaining about the heat and humidity?
This latest battle for health has been my toughest yet. I thought round 4 of chemo was bad, but that was a walk in the park compared to my last week in hell. Kicking off with extreme tiredness; no appetite; no sense of taste; constipation; general discomfort and malaise I gradually regained some sense of taste and was able to have some sustenance. An angel of mercy dropped off some protein drinks, Pro-biotic Yogurt and other easy to eat munchies. Initially all I wanted to (and could only) do was sleep. When I was tired of sleeping, I slept some more. I had zero energy. Each time I stood up I could see my vision dissolve to black, then recover. This was a side effect of my hypertension meds, but exacerbated by my lack of energy and body fuel (food). Oddly enough, there was only minor discomfort at the surgical sites, but my back and flank could find no happy spot that would relive the pain. I was fearful to take OxyContin because of those side effects (constipation) so Tylenol was substituted and it seemed to help - somewhat. I did resort to MiraLax and after day four I had my first (very small) movement. I've had subsequent voids, but each produced low output. Granted I wasn't eating much.
As the days progressed, my improvements failed to be realized. However my appetite was improving and I expanded my diet to oatmeal, roll-up sandwiches, cheese snacks (I know it's binding.) By the weekend I had cravings for foods and gravitated toward those, whether they were healthy choices or not. I had already lost seven pounds so eating a candy bar was probably OK. By the weekend I was craving pizza. Another not so health choice, but it was hot and gooey and I was craving it. I really did nothing other than sleep, munch, watch some TV and surf the net.
I've been really concerned with the new meds prescribed. My biggest concern was Atorvastatin. It's generally given to treat high cholesterol, but fortunately for me my 'numbers' have been traditionally desirable without medication, so having to take this drug equates to a slap in the face. I did discuss this with my doctor and agreed to 'try it for awhile'. The paperwork I received from the pharmacy did say that it prevents heart attacks and strokes. But there must be other drugs that do this without the side effects.
Side effects are different for each person, but for me they are as follows:
- Burping/gas - This is the only drug I take at 9PM. I'm not sure if I'm in a horizontal position while it 'does its thing', but I feel discomfort from gas. There's quite a bit of flatus while in bed or when standing from bed. Although most has been gas, I have experienced burping to some extent.
- Sniffles/runny nose - A nuisance side effect. Thank heavens for pocket Kleenex packets
- Unusual tiredness - This is a tough one to call, but as time goes on and I get more and more sustenance, one would think I'd have more energy. For the most part this is true, but I'm still sleeping 12-15 hours a day (Including a two hour nap).
- Boring pain in the back and flank - this is the most worrisome side effect. I'm prevented from finding comfort when sitting and can stand no longer than 15 minutes before having to sit and rest. Prior to the procedure I had these pains, but to a much lesser degree. Tylenol helps somewhat, but I hate throwing medicine at a pain caused by medicine. This discomfort has cased my entire spine to feel 'stiff' and achy. I'm hopeful that some other type of med can be used since this is the most debilitating.
- Headache - A nuisance side effect. Sometimes dissipates when I take Tylenol.
- Constipation - I just can't seem to escape this one.
Other than those listed above, my next biggest challenge was state of mind. Having gone through many health battles, keeping positive and finding inner strength has been nearly impossible.
I’m
not certain how or why, but something happened as a result of my
procedure last month. I’m not the same person. Or maybe, I’ve come to
realize the person who I have become since my numerous health issues.
One could argue that I’m still in recovery and these thoughts and
feelings may pass or resolve somehow, but I don’t think they can. This has brought me to a great pause and self assessment. I tried to turn these dark feelings into lyrics and was frightened by what came out of me. I've found that I've come to the door of deep depression and had turned the handle. I did not pass. This is probably because I've had so much support from family and friends. I will get through this, but I will be different on the other side. After much deep deliberation, I have decided to retire from the performance aspect of music.** I resigned my position in Fitch's Brew and will assist in a transition. Not knowing what I still can do musically since the worsening of my neuropathy, I'm trending to downsizing and having fewer long term commitments.
More to come.
[Post Script: **Clarification - I had many find my statements rash and alarming. Some personally reached out to me. After my explaining the background and reasoning, each had a better idea as to what I meant and were supportive.
Simply put, I will no longer pursue any musical activity that would require a significant physical commitment. I can no longer fulfill the roadie/musician role. I'm no longer 25 and the personal physical toll of a load in, set up, performance, breakdown and load out are no longer viable. I can/will pursue situations where there is a minimal amount of physical exertion. I apologize for needlessly alarming my family friends and readers.]
Friday, March 31, 2017
Day two at home
Feeling pretty miserable. I can't seem to get comfortable or keep in a good position for too long. I still have no appetite and anything I force feed myself seems particularly bland. Black coffee seems to go down alright, but the wanted side effects aren't happening. I did take MiraLax, but that has failed to yield results. I know there was a great concern about straining, so I'm waiting for the obvious biological sign that it's time.
While preparing my self for my first shower, I stumbled upon the Dramamine patch behind my ear and one errant electrode still stuck to my side. Since I've removed that electrode, I haven't had any further upper back pain and chest pain. Could I have been sleeping on this for an extended time and once off of it the pain begins? Seems to be the only reasonable explanation. [ I've heard of similar bouts of pain when woman wear a wire bra for an extended period of time.]
My throat soreness has cleared up and my urethra pain is gone. I was told to monitor the temperature of my extremities, but the nephropathy in my feet negates any sensation of cold toes. So I'm wearing socks, even to bed. I'm sure my lack of proper sustenance isn't helping my body to generate heat. I've lost 5 pounds. I just want to go. Of course the mind travels to a dark place and wonders if my colon has been paralyzed. For someone who has been extremely regular all his life, this is a great departure from schedules. I'm not in the best state of mind right now.
On the positive side, I've had no reason to take any pain meds. I know the constipation is a result of meds I received in the hospital after the procedure. Plus there is very little food in my stomach, but I have no appetite or taste. [Looking back at older blogs I can see a similar pattern.]
[Post Script: My sister Leslie said that a symphony has 4 movements. I'm happy to report that I just caught the last movement (BM). Hallelujah!]
I have lined up someone to do my shoveling (and hopefully rake the roof) if this storm materializes into the snow-magedon hyped predictions.
Happy April Fools Day. More to come.
While preparing my self for my first shower, I stumbled upon the Dramamine patch behind my ear and one errant electrode still stuck to my side. Since I've removed that electrode, I haven't had any further upper back pain and chest pain. Could I have been sleeping on this for an extended time and once off of it the pain begins? Seems to be the only reasonable explanation. [ I've heard of similar bouts of pain when woman wear a wire bra for an extended period of time.]
My throat soreness has cleared up and my urethra pain is gone. I was told to monitor the temperature of my extremities, but the nephropathy in my feet negates any sensation of cold toes. So I'm wearing socks, even to bed. I'm sure my lack of proper sustenance isn't helping my body to generate heat. I've lost 5 pounds. I just want to go. Of course the mind travels to a dark place and wonders if my colon has been paralyzed. For someone who has been extremely regular all his life, this is a great departure from schedules. I'm not in the best state of mind right now.
On the positive side, I've had no reason to take any pain meds. I know the constipation is a result of meds I received in the hospital after the procedure. Plus there is very little food in my stomach, but I have no appetite or taste. [Looking back at older blogs I can see a similar pattern.]
[Post Script: My sister Leslie said that a symphony has 4 movements. I'm happy to report that I just caught the last movement (BM). Hallelujah!]
I have lined up someone to do my shoveling (and hopefully rake the roof) if this storm materializes into the snow-magedon hyped predictions.
Happy April Fools Day. More to come.
Thursday, March 30, 2017
Going home
Through the night I was troubled by pain in my upper back and around my heart. Earlier that day Dr. Schanzer stopped by and said that I could go home. I
did mention these new pains and he said they are not related to the
procedure, but he did authorize the EKG and blood test. I guess I complained enough that they took an EKG and blood sample to rule out any form of heart attack. The doctor in charge reviewed the EKG and said it looked normal, but the blood test will have the final say.
Around 8AM they delivered a muffin, coffee and a fruit cup. The coffee tasted wonderful and the muffin was excellent. Fruit - not so much.
[Later that morning the blood tests came back as negative on heart attack].
I did notice that when I took a big breath, the the pain worsened. I had just mentioned the incentivizer, when a nurse arrived with one. I used this a number of times and the pain started to go away. I guess I'll never know what caused the pain. Maybe it was being in an uncomfortable bed for too long??
I spoke with Leslie on the phone and told he that by the time she would arrive, I'll be ready to leave.
In the meanwhile a nurse said they were going to give me lunch. Not know the specif timings of everything, I selected a few things from the menu. But really I wasn't hungry. What seemed like only minutes, Leslie arrived. I still had not met with the nurse to go over my discharge instructions, so I just chit-chatted with Leslie. Finally, nurse Donna stopped by and gave me some meds to take, then read me every page from the 8 or 9 page discharge paper work.
The high notes being:
The nurse covered all my meds and when to take them. Leslie was heard to say, 'That's a lot of medication'.
At this point, I felt weak, but was able to walk to the toilet a few times. So it was definitely time to leave. I was told that I would be escorted out on a wheelchair. Leslie was instructed to get the car and pull up the building. I was let off in the lobby. It was finally done.
Leslie was kind enough to take me to Walgreen's to pic up my meds. She even offered to go grocery shopping. I had enough at the house, but she did raise a good point that I was restricted from driving until April 10. That's quite a long time. She did offer to take me to the follow up appointment on 4/10. What a great little sister I have.
Finally home, I was only interested in sleeping. I thought I might take a 45 minute nap, but I slept through the alarm and finally got up at 5:30. I sat in a chair for a spell and fell right back to sleep. I woke up at 9PM. I decided to go to bed. I woke up just a few times, but slept until 9:30 AM today.
I still don't have much of an appetite, but I managed to eat some oatmeal. Still no bowl movement yet.
[Read the paper and found out we are getting 6 to 8 inches of snow. I guess it's something else to be anxious about].
More to come!
Around 8AM they delivered a muffin, coffee and a fruit cup. The coffee tasted wonderful and the muffin was excellent. Fruit - not so much.
[Later that morning the blood tests came back as negative on heart attack].
I did notice that when I took a big breath, the the pain worsened. I had just mentioned the incentivizer, when a nurse arrived with one. I used this a number of times and the pain started to go away. I guess I'll never know what caused the pain. Maybe it was being in an uncomfortable bed for too long??
I spoke with Leslie on the phone and told he that by the time she would arrive, I'll be ready to leave.
In the meanwhile a nurse said they were going to give me lunch. Not know the specif timings of everything, I selected a few things from the menu. But really I wasn't hungry. What seemed like only minutes, Leslie arrived. I still had not met with the nurse to go over my discharge instructions, so I just chit-chatted with Leslie. Finally, nurse Donna stopped by and gave me some meds to take, then read me every page from the 8 or 9 page discharge paper work.
The high notes being:
- I have a follow up appointment on April 10
- I'm restricted from lifting anything more than the weight of a gallon of milk
- I was given two more prescriptions of drugs that need to be filled
- I needed to buy some over the counter meds: Children's aspirin; Tylenol and a stool softener
- I was given a script for Oxycontin, but chose not to have it filled. I hate taking it because of the side effects. But if I really needed them, I still had some left over from another surgery/procedure.
The nurse covered all my meds and when to take them. Leslie was heard to say, 'That's a lot of medication'.
At this point, I felt weak, but was able to walk to the toilet a few times. So it was definitely time to leave. I was told that I would be escorted out on a wheelchair. Leslie was instructed to get the car and pull up the building. I was let off in the lobby. It was finally done.
Leslie was kind enough to take me to Walgreen's to pic up my meds. She even offered to go grocery shopping. I had enough at the house, but she did raise a good point that I was restricted from driving until April 10. That's quite a long time. She did offer to take me to the follow up appointment on 4/10. What a great little sister I have.
Finally home, I was only interested in sleeping. I thought I might take a 45 minute nap, but I slept through the alarm and finally got up at 5:30. I sat in a chair for a spell and fell right back to sleep. I woke up at 9PM. I decided to go to bed. I woke up just a few times, but slept until 9:30 AM today.
I still don't have much of an appetite, but I managed to eat some oatmeal. Still no bowl movement yet.
[Read the paper and found out we are getting 6 to 8 inches of snow. I guess it's something else to be anxious about].
More to come!
Coming to
After the procedure (which everyone said went very well) I was wheeled into convalescence. My first lucid memory was looking at the clock and seeing it was a bit after two. I believe I was wheeled into the OR around 11 AM. [My sister said that she got the call a bit after one PM indicating the procedure was completed successfully.] So that was relatively fast.
As I came through more, I was in very bad pain. It felt like my bladder was so full and not being able to urinate I was beside myself. The nurses said that I was urinating a lot, but 'feelings of discomfort' was a result of the catheter and the 'inflated bulb' in my bladder. Apparently, this tricked my bladder into urinating, but the Foley catheter was certainly nor my friend. I was given some meds to calm me down. After about 20 minutes the pain went from 10 to 2 on the pain scale. Eventually I was able to eat some graham crackers and have water. It's still fuzzy but some doctors who assisted Dr. Schanzer stopped by to tell me that the procedure was successful.
Around 3PM I was wheeled to a separate section in unit. I was well cared for, but just wanted to sleep. I was told that the catheter would be taken out. [YAY]
Someone had stopped by and said that I was going to have supper. I really wasn't hungry, but I did manage to eat everything offered. As the afternoon slipped by, I was quite intent to take cat naps and watch some TV. There were some movies I hadn't seen, so I took advantage.
Sometime that evening, a nurse stopped by to remove the catheter. OMG did that hurt. But eventually the pain related to the Foley went away, and now I had to deal with urethra pain when I passed urine. I was happy to be in control of my bodily fluids despite the discomfort. I filled a few bedpan urinals which was a good sign [I was told].
As the night progressed, the unit became quieter. I was able to take short naps. But always seemed to be awoken by someone coming in to check my vitals.
The day came to a close, but didn't manage to get any meaningful sleep as I had expected anyway. I was told that I would be discharged the next day.
More to come!
As I came through more, I was in very bad pain. It felt like my bladder was so full and not being able to urinate I was beside myself. The nurses said that I was urinating a lot, but 'feelings of discomfort' was a result of the catheter and the 'inflated bulb' in my bladder. Apparently, this tricked my bladder into urinating, but the Foley catheter was certainly nor my friend. I was given some meds to calm me down. After about 20 minutes the pain went from 10 to 2 on the pain scale. Eventually I was able to eat some graham crackers and have water. It's still fuzzy but some doctors who assisted Dr. Schanzer stopped by to tell me that the procedure was successful.
Around 3PM I was wheeled to a separate section in unit. I was well cared for, but just wanted to sleep. I was told that the catheter would be taken out. [YAY]
Someone had stopped by and said that I was going to have supper. I really wasn't hungry, but I did manage to eat everything offered. As the afternoon slipped by, I was quite intent to take cat naps and watch some TV. There were some movies I hadn't seen, so I took advantage.
Sometime that evening, a nurse stopped by to remove the catheter. OMG did that hurt. But eventually the pain related to the Foley went away, and now I had to deal with urethra pain when I passed urine. I was happy to be in control of my bodily fluids despite the discomfort. I filled a few bedpan urinals which was a good sign [I was told].
As the night progressed, the unit became quieter. I was able to take short naps. But always seemed to be awoken by someone coming in to check my vitals.
The day came to a close, but didn't manage to get any meaningful sleep as I had expected anyway. I was told that I would be discharged the next day.
More to come!
Day of the procedure
My sister Leslie had offered to take me in and bring me home. She arrived two minutes late (as she predicted). At lease there was some levity.
I gave her the key to the house and had her log into my computer to find the special file. I had her do everything since she might have to do this solo. She got in and logged into the document and quickly perused it before closing and logging off. We were back on schedule and got into here car where she couldn't find her keys. "I must have left them in your house", she said. Well good now we can see how you do getting into the house. No problems. She found here keys right next to the PC.
We got in the car and began the voyage to Worcester. We were doing well until I got us lost. I checked the GPS and found that we were not far from our destination. We made good time despite the travel wrinkle.
We arrived at the parking garage and quickly found a spot. We followed the signage to the surgical check in. By this time Leslie need to use the facilities. So while she did that I found out exactly where I needed to go. I went looking fro Leslie, and once I found here I said we need to go to elevator D to the second floor. We saw signs for elevators A, B and C, but couldn't find D. Tons of people walking around and we made eye contact with someone who works there. She was extremely pleasant and helpful. She almost walked us to the elevator. I've found this pleasant attitude to be the norm. Everyone is/has been really nice.
Reaching floor two, they were already expecting me. Someone had called there and said I was on the way. Leslie and I were directed to the waiting area were I was called not long after. Leslie was invited in and accompanied my. I met with many nurses and doctors while there. I was told that Dr. Schanzer prefers his patients to be clean (shaved). So I was informed that all hair below my nipples and above my knees had to go. It is what it is. I felt like a sheep being shorned at the rodeo. Eventually it was done. Leslie commented on who long it had taken. A few more doctors arrived and Dr. Schanzer being one of them. He marked me up with a felt tippped pen and instructed the nurse to give me an EKG. So after attaching may electrodes the test was quickly done and I guess I passed. One of the doctors had to attach three IV ports to my poor battered arm. Not my favorite part. At some point, Leslie was informed that she would have to leave. After a good luck kiss, she said she was on the way back to my house to siphon all my money out. Levity is always good under these conditions.
More professionals came and went, then finally I was informed that it was time. I was wheeled into the OR and and the anesthesiology team prepped me for my knock out. Can't remember anything from here until I woke up.
More to come!
I gave her the key to the house and had her log into my computer to find the special file. I had her do everything since she might have to do this solo. She got in and logged into the document and quickly perused it before closing and logging off. We were back on schedule and got into here car where she couldn't find her keys. "I must have left them in your house", she said. Well good now we can see how you do getting into the house. No problems. She found here keys right next to the PC.
We got in the car and began the voyage to Worcester. We were doing well until I got us lost. I checked the GPS and found that we were not far from our destination. We made good time despite the travel wrinkle.
We arrived at the parking garage and quickly found a spot. We followed the signage to the surgical check in. By this time Leslie need to use the facilities. So while she did that I found out exactly where I needed to go. I went looking fro Leslie, and once I found here I said we need to go to elevator D to the second floor. We saw signs for elevators A, B and C, but couldn't find D. Tons of people walking around and we made eye contact with someone who works there. She was extremely pleasant and helpful. She almost walked us to the elevator. I've found this pleasant attitude to be the norm. Everyone is/has been really nice.
Reaching floor two, they were already expecting me. Someone had called there and said I was on the way. Leslie and I were directed to the waiting area were I was called not long after. Leslie was invited in and accompanied my. I met with many nurses and doctors while there. I was told that Dr. Schanzer prefers his patients to be clean (shaved). So I was informed that all hair below my nipples and above my knees had to go. It is what it is. I felt like a sheep being shorned at the rodeo. Eventually it was done. Leslie commented on who long it had taken. A few more doctors arrived and Dr. Schanzer being one of them. He marked me up with a felt tippped pen and instructed the nurse to give me an EKG. So after attaching may electrodes the test was quickly done and I guess I passed. One of the doctors had to attach three IV ports to my poor battered arm. Not my favorite part. At some point, Leslie was informed that she would have to leave. After a good luck kiss, she said she was on the way back to my house to siphon all my money out. Levity is always good under these conditions.
More professionals came and went, then finally I was informed that it was time. I was wheeled into the OR and and the anesthesiology team prepped me for my knock out. Can't remember anything from here until I woke up.
More to come!
"We said our goodbyes, ah the night before" [The Beatles]
I had spent a number of days following my pre-op just putting my affairs in order. Not only was this an impetus to clean the house, it made me look at any and all documentation, policies, bank accounts, and email accounts I have. My father used to say, "If every I should leave you..." [From Camelot] when he wanted you to pay attention to those things someone other than he needed to know in the event of an untimely passing. I guess the apple doesn't fall far from the tree, for I created a folder on my PC with a password protected document meant for my sister's eyes. Here she would find just about everything that's needed to be known, "If ever I should leave you".
On Monday, I said goodbye to anyone I was dealing with; friends; family; and band members. Of course everyone said that I would be fine, but did appreciate my being candid about my health. I also made sure that any pending bills were paid. Was I over-worrying? Yes, but my mother always said you have to worry just enough.
I was given a check list that needed to be completed Monday night into Tuesday morning. I had special antiseptic sponges to shower with and a horrible tasting mouth rinse. I knew I had to be up and at 'em early, but once again, I got little sleep.
More to come!
On Monday, I said goodbye to anyone I was dealing with; friends; family; and band members. Of course everyone said that I would be fine, but did appreciate my being candid about my health. I also made sure that any pending bills were paid. Was I over-worrying? Yes, but my mother always said you have to worry just enough.
I was given a check list that needed to be completed Monday night into Tuesday morning. I had special antiseptic sponges to shower with and a horrible tasting mouth rinse. I knew I had to be up and at 'em early, but once again, I got little sleep.
More to come!
Saturday, March 25, 2017
Green light for the EVAR (EndoVAscularRepair)
The latest chapter of my challenge is becoming real. On Thursday, March 23, 2017, I was given the approval to "proceed to go" [for fans of Monopoly].
I had my pre-op appointment with the anesthesiologist for my Triple A (Abdominal Aortic Anuerysm) endo-vascular procedure schedule for early next week. My appointment was at the UMass Memorial campus in Worcester. I'm happy that the weather cooperated and the bright sunshine provided positivity and hope. UMass Medical is huge, really huge. But, thankfully I was able to find parking in a lot right outside of the building I was visiting. [Reasonable price too - $3].
Not knowing where exactly to go, I was guided by exceptional signage and arrived 25 minutes before my scheduled appointment. Everyone was extremely friendly. After being directed to the waiting room, I was called in to pre-register. Since I had already updated my patient portal, most of the work was done and it was merely checking to see if anything had changed. Within a few minutes I was given a patient bracelet and asked to return to the waiting area.
It wasn't long at all before my name was called. I was instructed to follow the nurse to the examination room section and quickly had my vitals checked. I was informed that I needed to provide a urine and blood sample. Easy enough, I had to 'go' anyway. The phlebotomist was great. Despite the condition of my veins in the only arm available for this (due to lymph removal in my left arm), she was able to fill a few viles with minimal discomfort. I told her that others have had much trouble taking blood in the past. She said, "I've been doing this for 25 years". Experience has its benefits.
Dan Smith, the Nurse Practitioner arrived with a few questionnaires and some paper work that I needed to sign. He was very thorough. I was surprised on what I needed to do prior to and following the procedure. I was given two antiseptic sponges that I needed to use in the shower the night before and morning of the procedure. In addition, he said that he would prescribed a special (mouth) rinse that I also needed to use on the same schedule. Both were designed to prevent infection and pneumonia. I was also informed that I had to use a lung 'incentivizer' to help stretch my lungs after the procedure. Apparently, lungs shrink under anesthesia, and this device helps 'stretch' them back. [I had never heard of this and was not given this devise for any other surgery that required anesthesia]. I had mentioned this and Dan told me that the type of procedure I was going to have is very serious. [Apparently]. He finished up the paper work and quickly ran through the order of events and my responsibilities. He did say that he would call in the prescription for the rinse and a anti-nausea patch that I need to apply the night before. [I'm wondering what the morning shower will do to the patch..?] He said to expect a call on Monday informing me on the time of the procedure. [That's off-putting].
Dan left and shortly after, the anesthesiologist arrived. [I can't remember her name]. She reiterated some of the information that Dan covered and answered some of my questions. She did go over the risks and possible outcomes, but felt confident [because of my age and health] that things would go 'the normal route'. She mentioned that Dr Schanzer is 'the best' and does hundreds of these types of procedures. [This is my hope]. I did learn that the entry point will be in my groin, not my gut as I had thought. She mentioned that there will most likely be two entry points for the needles (and guides), but sometimes the doctor needs to cut into the dermal layer to reach the femoral artery. Generally, she said this would happen for patients that are morbidly obese. [I guess I'm just obese...LOL] It is what it is.
I asked if the plan was to still have one night's stay. She said, "Depending on the time of the procedure, you may need to have two nights. But everyone is different". She asked if I had any further questions, and with my saying no, she said, 'You're free to go - and good luck".
Now the waiting. I hope the procedure isn't too early, but not too late. Although I'm getting a ride, no one wants to deal with commuter traffic. Unlike my other surgeries, this procedure is 'way' inside. So my anxiety level is very high. One can't help but have thoughts of their own mortality under these situations. All I can do is be hopeful and optimistic that the hands of my medical professionals are capable and that everything (for me) is 'normal'
More to come.
I had my pre-op appointment with the anesthesiologist for my Triple A (Abdominal Aortic Anuerysm) endo-vascular procedure schedule for early next week. My appointment was at the UMass Memorial campus in Worcester. I'm happy that the weather cooperated and the bright sunshine provided positivity and hope. UMass Medical is huge, really huge. But, thankfully I was able to find parking in a lot right outside of the building I was visiting. [Reasonable price too - $3].
Not knowing where exactly to go, I was guided by exceptional signage and arrived 25 minutes before my scheduled appointment. Everyone was extremely friendly. After being directed to the waiting room, I was called in to pre-register. Since I had already updated my patient portal, most of the work was done and it was merely checking to see if anything had changed. Within a few minutes I was given a patient bracelet and asked to return to the waiting area.
It wasn't long at all before my name was called. I was instructed to follow the nurse to the examination room section and quickly had my vitals checked. I was informed that I needed to provide a urine and blood sample. Easy enough, I had to 'go' anyway. The phlebotomist was great. Despite the condition of my veins in the only arm available for this (due to lymph removal in my left arm), she was able to fill a few viles with minimal discomfort. I told her that others have had much trouble taking blood in the past. She said, "I've been doing this for 25 years". Experience has its benefits.
Dan Smith, the Nurse Practitioner arrived with a few questionnaires and some paper work that I needed to sign. He was very thorough. I was surprised on what I needed to do prior to and following the procedure. I was given two antiseptic sponges that I needed to use in the shower the night before and morning of the procedure. In addition, he said that he would prescribed a special (mouth) rinse that I also needed to use on the same schedule. Both were designed to prevent infection and pneumonia. I was also informed that I had to use a lung 'incentivizer' to help stretch my lungs after the procedure. Apparently, lungs shrink under anesthesia, and this device helps 'stretch' them back. [I had never heard of this and was not given this devise for any other surgery that required anesthesia]. I had mentioned this and Dan told me that the type of procedure I was going to have is very serious. [Apparently]. He finished up the paper work and quickly ran through the order of events and my responsibilities. He did say that he would call in the prescription for the rinse and a anti-nausea patch that I need to apply the night before. [I'm wondering what the morning shower will do to the patch..?] He said to expect a call on Monday informing me on the time of the procedure. [That's off-putting].
Dan left and shortly after, the anesthesiologist arrived. [I can't remember her name]. She reiterated some of the information that Dan covered and answered some of my questions. She did go over the risks and possible outcomes, but felt confident [because of my age and health] that things would go 'the normal route'. She mentioned that Dr Schanzer is 'the best' and does hundreds of these types of procedures. [This is my hope]. I did learn that the entry point will be in my groin, not my gut as I had thought. She mentioned that there will most likely be two entry points for the needles (and guides), but sometimes the doctor needs to cut into the dermal layer to reach the femoral artery. Generally, she said this would happen for patients that are morbidly obese. [I guess I'm just obese...LOL] It is what it is.
I asked if the plan was to still have one night's stay. She said, "Depending on the time of the procedure, you may need to have two nights. But everyone is different". She asked if I had any further questions, and with my saying no, she said, 'You're free to go - and good luck".
Now the waiting. I hope the procedure isn't too early, but not too late. Although I'm getting a ride, no one wants to deal with commuter traffic. Unlike my other surgeries, this procedure is 'way' inside. So my anxiety level is very high. One can't help but have thoughts of their own mortality under these situations. All I can do is be hopeful and optimistic that the hands of my medical professionals are capable and that everything (for me) is 'normal'
More to come.
Monday, February 27, 2017
The Embarkment
Ventured to UMass Medical in Worcester today for my rescheduled appointment with Dr. Schanzer. He is my second opinion for my abdominal aortic aneurysm (Triple A).
Although my appointment was mid-day, and there was no snow to deal with, it was still quite tricky getting there. Of course GPS had me take a road that was closed for bridge reconstruction, but I was able to traverse by blazing through an alternative route.
The UMass Medical Campus is HUGE. I finally got to the parking garage and arrived at the doctor's reception/check in area more than the half hour prior to the appointment as they requested. Of course I had to fill out the obligatory paperwork and complete the multitude of questionnaires focusing on my current and past health issues. However, I completed those in time for my scheduled appointment, but I guess they weren't ready for me. I hate waiting, but I had to endure a two and a half hour wait. This unto itself was unpleasant, but the icing on the cake was having to hear my 'neighbors' watch endless You tube/Facebook animal videos WITH THE SOUND ON. I had all I could do to not say anything. Others in the area shared the rolling of the eyes, but not one person asked them to turn the phone volume down. I finally had to get up and find another area to sit. [I used to laugh at the sheep singing Whitney Houston songs, but WTF?]
Finally I was called in. I was so happy to see fresh faces and be away from the LOUD family. The medical professional started taking my vitals and led me to an examination room, where she entered information (from my work sheets) onto their system. She was pleasant - and quick. She had me disrobe and had me on the examination table when she realized how big I am. She said, "They don't make these tables for people your size." I said, "I get that a lot" as I chuckled.
I waited for some time before Dr Schanzer arrived. Once seated, I caught him up on my back story and he proceeded to tell me that he reviewed my CT scan results. "According to my calculations on what I could see, your aneurysm is 5.6 cm. Generally we don't do anything until it's 5.5 cm, so you are there. I wouldn't put it off, but you are at a 5% rupture rate if you wait much longer. The risk factors for the stint are 3%, so the benefits do outweigh the risks. Those risks are the same for most types of surgery: heart attack; internal bleeding due to damage to a vessel, and others."
He continued, "There are two ways to approach this. One being open surgery, where we go in and fix the area of the aneurysm. However, given your anatomy, I recommend EVAR (endovascular insertion of a stint). The procedure takes about 2 hours and requires an overnight stay (for most) with a follow-up in a week, then a month, then three, then six - for the rest of your life. An ultrasound will indicate if there is any slippage or endo-leaks, but most can be treated as outpatient procedures."
He looked at his calendar and said he could schedule something for March 28th. I raised my eyebrows. Thought a moment and said, "That makes sense to get it out of the way since it's been weighing on my mind since it was discovered." I asked what the recovery period was and if I would have to come back within a few days for a check on the femoral artery incision. Dr Schanzer pointed to my gut and said, "We'll go in through here, so there will be only two small entry holes. So there's no major pain. You'll probably feel 'beaten up' for about a week, but able to resume life shortly after." I asked if I would have any physical limitations. He said, "I wouldn't go to the gym or do any heavy lifting for about a week, but after - no problem."
So I agreed to have him pencil in the 28th. He asked if I had any further questions, but I told him I may after, but not right now. He gave me his card (contact info) and told me to call if I did. He added that his office will be contacting me and that I would need to come in for a visit with the anesthesiologist as part of the pre-op.
Upon leaving the campus, I needed to visit the parking cashier. The line was outside and around the corner. Apparently, their computer systems and self service kiosks were down. I felt sorry for the one attendant. When I got here attention, she told me to just leave and hit the 'help' button at the gate and I could get out. [Really?] I thanked her and left. Apparently everyone leaving had this inside knowledge and the gates were being raised almost automatically. [Why do I get the feeling that I won't hear the end of this?]
So I killed much of the day traveling, waiting and skipping out without having to pay for parking. At least when I left it was still sunny and I was traveling East, so I had no problems with solar slowdowns. I'll take it.
So it looks like this become real as I embark on a health side trip.
More to come!
Although my appointment was mid-day, and there was no snow to deal with, it was still quite tricky getting there. Of course GPS had me take a road that was closed for bridge reconstruction, but I was able to traverse by blazing through an alternative route.
The UMass Medical Campus is HUGE. I finally got to the parking garage and arrived at the doctor's reception/check in area more than the half hour prior to the appointment as they requested. Of course I had to fill out the obligatory paperwork and complete the multitude of questionnaires focusing on my current and past health issues. However, I completed those in time for my scheduled appointment, but I guess they weren't ready for me. I hate waiting, but I had to endure a two and a half hour wait. This unto itself was unpleasant, but the icing on the cake was having to hear my 'neighbors' watch endless You tube/Facebook animal videos WITH THE SOUND ON. I had all I could do to not say anything. Others in the area shared the rolling of the eyes, but not one person asked them to turn the phone volume down. I finally had to get up and find another area to sit. [I used to laugh at the sheep singing Whitney Houston songs, but WTF?]
Finally I was called in. I was so happy to see fresh faces and be away from the LOUD family. The medical professional started taking my vitals and led me to an examination room, where she entered information (from my work sheets) onto their system. She was pleasant - and quick. She had me disrobe and had me on the examination table when she realized how big I am. She said, "They don't make these tables for people your size." I said, "I get that a lot" as I chuckled.
I waited for some time before Dr Schanzer arrived. Once seated, I caught him up on my back story and he proceeded to tell me that he reviewed my CT scan results. "According to my calculations on what I could see, your aneurysm is 5.6 cm. Generally we don't do anything until it's 5.5 cm, so you are there. I wouldn't put it off, but you are at a 5% rupture rate if you wait much longer. The risk factors for the stint are 3%, so the benefits do outweigh the risks. Those risks are the same for most types of surgery: heart attack; internal bleeding due to damage to a vessel, and others."
He continued, "There are two ways to approach this. One being open surgery, where we go in and fix the area of the aneurysm. However, given your anatomy, I recommend EVAR (endovascular insertion of a stint). The procedure takes about 2 hours and requires an overnight stay (for most) with a follow-up in a week, then a month, then three, then six - for the rest of your life. An ultrasound will indicate if there is any slippage or endo-leaks, but most can be treated as outpatient procedures."
He looked at his calendar and said he could schedule something for March 28th. I raised my eyebrows. Thought a moment and said, "That makes sense to get it out of the way since it's been weighing on my mind since it was discovered." I asked what the recovery period was and if I would have to come back within a few days for a check on the femoral artery incision. Dr Schanzer pointed to my gut and said, "We'll go in through here, so there will be only two small entry holes. So there's no major pain. You'll probably feel 'beaten up' for about a week, but able to resume life shortly after." I asked if I would have any physical limitations. He said, "I wouldn't go to the gym or do any heavy lifting for about a week, but after - no problem."
So I agreed to have him pencil in the 28th. He asked if I had any further questions, but I told him I may after, but not right now. He gave me his card (contact info) and told me to call if I did. He added that his office will be contacting me and that I would need to come in for a visit with the anesthesiologist as part of the pre-op.
Upon leaving the campus, I needed to visit the parking cashier. The line was outside and around the corner. Apparently, their computer systems and self service kiosks were down. I felt sorry for the one attendant. When I got here attention, she told me to just leave and hit the 'help' button at the gate and I could get out. [Really?] I thanked her and left. Apparently everyone leaving had this inside knowledge and the gates were being raised almost automatically. [Why do I get the feeling that I won't hear the end of this?]
So I killed much of the day traveling, waiting and skipping out without having to pay for parking. At least when I left it was still sunny and I was traveling East, so I had no problems with solar slowdowns. I'll take it.
So it looks like this become real as I embark on a health side trip.
More to come!
Sunday, February 26, 2017
Tattoo Time
Mother Nature slammed us with a number of storms and more than 2 feet of heavy wet snow. All in just a few weeks. But par for the course, we've had unseasonably warm weather (like late Spring) and now all the snow is gone. Can anyone say climate change?
I had my appointment with Dr.Chatson for my aureola tattoo this week. I was a bit anxious since I've never had a tattoo and the fear of the unknown had taken over. While at the doctor's office, I was assured that there would be very little pain and the whole procedure would be quick.
Andrea, the tattoo artist did most of the work with Dr. Chatson reviewing the progress of her work throughout the session. Andrea was quite capable, however, she had some difficulty with the tattoo needle. Apparently, there was a short in the cord and each time she started to use it, the machine would cut out. There was quite the commotion in trying to determine what the cause was and how to remedy it. I had already received numerous injections of local anesthesia, so I was hoping that they would get it figured out, as I didn't feel like coming back another day. Finally (after about a half hour of fussing) things were working properly. Being a tall guy, most examination tables are too short for me. Because of this, I don't 'fit' right and after time, my back begins to bother me. While they were working on a remedy I had asked to stand for a bit. I'm glad I was able to.
Once Andrea proceeded with the tattoo, things began to go quickly. Yes, there was no pain, only the weird sensation of something thumping repeatedly on my chest. Once she was done, the doctor gave his approval and she asked me to look at her work. They did mention that the color would be darker because pigment is lost over time. I did look down but thought afterwards that I should have been given a mirror so I could see it head on. Oh well.
I was bandaged up and instructed to not shower (or get the area wet) until Saturday. I was given a follow up appointment in April and I went on my merry way. Most of the day I was still numb, but as the evening approached I began to feel some discomfort. I did not sleep well that night due to the fact that I'm a side sleeper and was unable to find a comfortable position. Luckily night two was much better.
On Saturday I was able to remove the bandages and take a shower. However, the blood had dried into the bandage and I was unable to remove portions of it fearing that I would lift the scab. I cut away most of the bandage and soaked the remainder in the shower until I was able to delicately remove the rest. I did get a good look at the finished product and did see how the color was a bit stronger than my other nipple, but unless you knew or were really looking, you couldn't tell. He/she did a good job. Now the healing.
I had my appointment with Dr.Chatson for my aureola tattoo this week. I was a bit anxious since I've never had a tattoo and the fear of the unknown had taken over. While at the doctor's office, I was assured that there would be very little pain and the whole procedure would be quick.
Andrea, the tattoo artist did most of the work with Dr. Chatson reviewing the progress of her work throughout the session. Andrea was quite capable, however, she had some difficulty with the tattoo needle. Apparently, there was a short in the cord and each time she started to use it, the machine would cut out. There was quite the commotion in trying to determine what the cause was and how to remedy it. I had already received numerous injections of local anesthesia, so I was hoping that they would get it figured out, as I didn't feel like coming back another day. Finally (after about a half hour of fussing) things were working properly. Being a tall guy, most examination tables are too short for me. Because of this, I don't 'fit' right and after time, my back begins to bother me. While they were working on a remedy I had asked to stand for a bit. I'm glad I was able to.
Once Andrea proceeded with the tattoo, things began to go quickly. Yes, there was no pain, only the weird sensation of something thumping repeatedly on my chest. Once she was done, the doctor gave his approval and she asked me to look at her work. They did mention that the color would be darker because pigment is lost over time. I did look down but thought afterwards that I should have been given a mirror so I could see it head on. Oh well.
I was bandaged up and instructed to not shower (or get the area wet) until Saturday. I was given a follow up appointment in April and I went on my merry way. Most of the day I was still numb, but as the evening approached I began to feel some discomfort. I did not sleep well that night due to the fact that I'm a side sleeper and was unable to find a comfortable position. Luckily night two was much better.
On Saturday I was able to remove the bandages and take a shower. However, the blood had dried into the bandage and I was unable to remove portions of it fearing that I would lift the scab. I cut away most of the bandage and soaked the remainder in the shower until I was able to delicately remove the rest. I did get a good look at the finished product and did see how the color was a bit stronger than my other nipple, but unless you knew or were really looking, you couldn't tell. He/she did a good job. Now the healing.
Other health issues
- Because of the storms, I needed to reschedule my Triple A consultation at UMass Medical until later in the month.
- I've been able to start walking again. I had worked up to three miles a day, but decided to take the weekend off since my foot was 'acting' up.
Thursday, February 2, 2017
Ground Hog Day - Update
Well it appears that Punxsutawney Phil has seen his shadow and scampered into his den, thus signaling 6 more weeks of Winter. Apparently his counterpart, Staten Island Chuck has signaled Spring right around the corner. Clearly one is dealing with alternative facts. Time will tell.
I had my appointment with Dr. Jonathan Ross of New England Neurological in Lawrence this morning. I was referred to him by my Oncologist, Dr. Mehta as a result of my 'gradual' worsening of the neuropathy in my feet (balls of feet and toes on each foot). After finding the office and filling out the obligatory patient paperwork, I was called into Dr. Ross's office for patient interview to gather history and a subsequent examination.
After telling my 'story', Dr. Ross asked me to remove my pants and socks. He had me stand on each foot with my eyes closed; on my tip toes; and on my heels. He seemed pleased that I could pass the 'field sobriety test' and had me sit on the examination table. He looked into my eyes and had me verify some of his hand movements. [Not sure why he was checking eyes, but I did tell him I had cataract surgery last May.]
He checked my reflexes then moved a cold-to-the-touch, implement at various points on my legs and feet. I was surprised how I couldn't feel any coolness on my lower feet. To some extent, I had a lesser sense of the temperature all the way up my calves before I could feel how cold the implement really was. That was an eye opener for me.
Dr. Ross then asked me to close my eyes and tell me when I could feel a pin. I had no sensation until he got to my ankles. As he went up the calf, I could feel the discomfort. Another eye opener.
After all the testing, Dr Ross stated that he agreed the neuropathy was a side effect of the chemo and most likely won't get worse or improve. He said, "Unfortunately there is no cure and your being tall is not helping you. The regeneration cells/nutrients have far to travel in your body, so your lower extremities are exhibiting the various degrees of neuropathy. You may, over time have some improvement, but all you can do is wait and see if it worsens before having neurological tests performed."
Well I can't say I expected any more or less. It is what it is. I'd gladly take this amount of neuropathy over a second round of cancer. As long as I'm still able to enjoy life and be mobile without nerve pain, I'm happy to monitor its progression.
I did mention to Dr. Ross that Charcot Marie Tooth disease (CMT) runs in my family. He thought that this wasn't that, but recommended a test if it progresses. He did ask if I knew which gene my siblings had. Apparently there are many genes capable of causing CMT so I'll ask.
So it appears that there is nothing he can do for me or my condition. He did mention again to contact the office if things change (worsen). If this does happen he wants to give me some tests.
More to come!
I had my appointment with Dr. Jonathan Ross of New England Neurological in Lawrence this morning. I was referred to him by my Oncologist, Dr. Mehta as a result of my 'gradual' worsening of the neuropathy in my feet (balls of feet and toes on each foot). After finding the office and filling out the obligatory patient paperwork, I was called into Dr. Ross's office for patient interview to gather history and a subsequent examination.
After telling my 'story', Dr. Ross asked me to remove my pants and socks. He had me stand on each foot with my eyes closed; on my tip toes; and on my heels. He seemed pleased that I could pass the 'field sobriety test' and had me sit on the examination table. He looked into my eyes and had me verify some of his hand movements. [Not sure why he was checking eyes, but I did tell him I had cataract surgery last May.]
He checked my reflexes then moved a cold-to-the-touch, implement at various points on my legs and feet. I was surprised how I couldn't feel any coolness on my lower feet. To some extent, I had a lesser sense of the temperature all the way up my calves before I could feel how cold the implement really was. That was an eye opener for me.
Dr. Ross then asked me to close my eyes and tell me when I could feel a pin. I had no sensation until he got to my ankles. As he went up the calf, I could feel the discomfort. Another eye opener.
After all the testing, Dr Ross stated that he agreed the neuropathy was a side effect of the chemo and most likely won't get worse or improve. He said, "Unfortunately there is no cure and your being tall is not helping you. The regeneration cells/nutrients have far to travel in your body, so your lower extremities are exhibiting the various degrees of neuropathy. You may, over time have some improvement, but all you can do is wait and see if it worsens before having neurological tests performed."
Well I can't say I expected any more or less. It is what it is. I'd gladly take this amount of neuropathy over a second round of cancer. As long as I'm still able to enjoy life and be mobile without nerve pain, I'm happy to monitor its progression.
I did mention to Dr. Ross that Charcot Marie Tooth disease (CMT) runs in my family. He thought that this wasn't that, but recommended a test if it progresses. He did ask if I knew which gene my siblings had. Apparently there are many genes capable of causing CMT so I'll ask.
So it appears that there is nothing he can do for me or my condition. He did mention again to contact the office if things change (worsen). If this does happen he wants to give me some tests.
Updates on other health issues
- Triple A - After some research, I decided to go with the current traditional endo-vascular repar (EVAR) approach. I have an appointment at UMass Medical in Worcester in a few weeks.
- My sore foot - After two months of being unable to take my daily walks due to an unexplained pain in my left foot, I'm happy to report that I was able to take a 1 mile walk yesterday. The foot is not 100% yet, but I'm hoping to build the muscle back so I can resume my regimen of 2-5 miles per day. Baby steps!
- Reconstruction - I have an appointment in a few weeks for my aureola tattoo. This should be interesting.
More to come!
Thursday, January 19, 2017
Buckle-up kiddies, rough road ahead!
Mid-January and Mother Nature has been kind - so far. We've been needing rain and we're getting it. Yes, some snow from time to time, but luckily in manageable amounts that don't last too long. I'm hopefully optimistic, but am well aware of what February can mean to the North East.
I had my follow-up appointment with Dr. Pare today to discuss the CAT scan I had at the end of 2016. [Technically it's called a CT scan, but the vernacular always leans to CAT]. I was really hoping that he would be telling me that the aneurysm has gown a little, but we'll continue to monitor - NOT. Unfortunately, the opposite transpired.
Dr. Pare greeted me and asked me to have a seat (not a good sign). After exchanging pleasantries, he asked if we had discussed the stint. [Geesh, cut right to the chase.] I said, "We did, briefly." He then excused himself to retrieve a stint. On the way out he said, "You are a good candidate for the stint."
Upon his return he had something resembling Chinese finger cuffs. He then told me that my aneurysm was now 5.5 cm [Sh*t] and we now have to look at options. He began a rough drawing trying to depict my aorta and bulging sack. He mentioned that the CAT scan was clear and he could see that it had progressed to the point where I was encouraged to do something. He gave me the sample stint and told me that it is inserted through my femoral artery and it opens to what we are now looking at. He positioned the stint over his drawing to demonstrate where it would be placed and then showed another piece that is attached. [Looked like a pair of pants.]
He said the procedure is day surgery. Generally, the patient is admitted the night before and given a blood thinner. The apparatus is inserted at the groin (both sides). Most are discharged that day. The recovery is quick and entails changing the dressing with yearly follow ups. He did say there was a risk of endo-leaks, but it did not require surgery to remedy. Like any procedure there are other risks, but each is monitored. I asked what the time-frame was. Dr. Pare said that 'the company' would take measurements from my CAT scan image and produce a customized stint. He mentioned that my bulge was far enough above the 'split'. This makes for a better 'seating' of the stint.
I had mentioned two other types that I have heard of and he was very supportive of my looking into those options. He said that the more information I had - the better. So he's going to contact the company and initiate their measurement process and he will contact me next week to discuss a timeline. He thought that it might be 6-8 weeks for the procedure.
Now I've reach a point where I have to do something. I will re-connect with St. Elizabeth's in Brighton to see how their 'pilot' program is progressing. They have a 'new' procedure that decreases/eliminates endo-leaks where they inject a polymer into the sack.
So, more research and phone calls are on the agenda.
More to come.
I had my follow-up appointment with Dr. Pare today to discuss the CAT scan I had at the end of 2016. [Technically it's called a CT scan, but the vernacular always leans to CAT]. I was really hoping that he would be telling me that the aneurysm has gown a little, but we'll continue to monitor - NOT. Unfortunately, the opposite transpired.
Dr. Pare greeted me and asked me to have a seat (not a good sign). After exchanging pleasantries, he asked if we had discussed the stint. [Geesh, cut right to the chase.] I said, "We did, briefly." He then excused himself to retrieve a stint. On the way out he said, "You are a good candidate for the stint."
Upon his return he had something resembling Chinese finger cuffs. He then told me that my aneurysm was now 5.5 cm [Sh*t] and we now have to look at options. He began a rough drawing trying to depict my aorta and bulging sack. He mentioned that the CAT scan was clear and he could see that it had progressed to the point where I was encouraged to do something. He gave me the sample stint and told me that it is inserted through my femoral artery and it opens to what we are now looking at. He positioned the stint over his drawing to demonstrate where it would be placed and then showed another piece that is attached. [Looked like a pair of pants.]
He said the procedure is day surgery. Generally, the patient is admitted the night before and given a blood thinner. The apparatus is inserted at the groin (both sides). Most are discharged that day. The recovery is quick and entails changing the dressing with yearly follow ups. He did say there was a risk of endo-leaks, but it did not require surgery to remedy. Like any procedure there are other risks, but each is monitored. I asked what the time-frame was. Dr. Pare said that 'the company' would take measurements from my CAT scan image and produce a customized stint. He mentioned that my bulge was far enough above the 'split'. This makes for a better 'seating' of the stint.
I had mentioned two other types that I have heard of and he was very supportive of my looking into those options. He said that the more information I had - the better. So he's going to contact the company and initiate their measurement process and he will contact me next week to discuss a timeline. He thought that it might be 6-8 weeks for the procedure.
Now I've reach a point where I have to do something. I will re-connect with St. Elizabeth's in Brighton to see how their 'pilot' program is progressing. They have a 'new' procedure that decreases/eliminates endo-leaks where they inject a polymer into the sack.
So, more research and phone calls are on the agenda.
More to come.
Subscribe to:
Posts (Atom)